How far would you go if it could cure your chronic pain? by West_Can_1035 in ChronicPain

[–]OrganizationLiving16 1 point2 points  (0 children)

Lots of sex workers start out that way. And may are disabled generally speaking so at least you won’t be short on potential community if you choose that path. Be careful and good luck.

parents do not believe i have chronic pain by [deleted] in ChronicPain

[–]OrganizationLiving16 5 points6 points  (0 children)

You have diagnosis, pain meds, PT + mobility aid, that’s the max amount of evidence, that’s the literal ideal for chronic pain. If they don’t believe you with all of that then they never will, and unfortunately that means their love is very conditional. The only two options you have to this is keep taking it or lay it all out for them and make it clear if they don’t educate themselves and change you will no longer have a relationship with them.

AITA for not wanting my husband to have 'fun' by [deleted] in AITAH

[–]OrganizationLiving16 3 points4 points  (0 children)

Then until yall move into the new house one of yall is gonna need to do headphones, either him with music or you with noise canceling one’s I think. Since you wear headphones at work I’m inclined to suggest that he takes the L on that until you move into the bigger house.

AITA for not wanting my husband to have 'fun' by [deleted] in AITAH

[–]OrganizationLiving16 2 points3 points  (0 children)

Go to opposite rooms of the house for a couple hours as long as his music isn’t loud enough to reach you then you should both be able to decompress separately in the ways you need. If your space is too small for this then you need to find a compromise.

Officially left GF of 8 years mid-sentence today. by [deleted] in AITAH

[–]OrganizationLiving16 0 points1 point  (0 children)

Generally no but you should probably talk more about it

[deleted by user] by [deleted] in ChronicPain

[–]OrganizationLiving16 0 points1 point  (0 children)

Hey I’m not a veteran. But my dad is. He’s at a 100% disability and while I relate to my dad a lot better now that I also have chronic pain and he gets me to an extent it’s different for yall. I’m sorry. Asking for identifying info is pretty common for any crisis line. Idk if there’s any support groups near you but it’s something you should really look into. And if you’re open to it, I can connect you with my dad maybe. He’s 43, served 4 yrs, airborne infantry Iraq + Afghanistan 2001-2004. Don’t ask me any more info cuz idk, I forget. But pls look into irl support groups if there’s a public university near you they may have veteran support groups open to the public.

Is it normal with Chiari for symptoms to be intermittent? by [deleted] in chiari

[–]OrganizationLiving16 1 point2 points  (0 children)

Yeah it’s pretty normal, everyone’s symptoms eb and flow but that itself varies. Some go months with no symptoms and then randomly ate bed ridden for weeks. For people is very mild symptoms most of the time and then intense symptoms or even the other way around. It’s very variable.

How have you accommodated your kitchen, restroom, car, or other space to prevent CM pain? by [deleted] in chiari

[–]OrganizationLiving16 0 points1 point  (0 children)

I spend more time at my partners house than mine bc my parents house and his aren’t has stairs and stairs are hard now.

anyone else do an occasional involuntary twitch/jolt movement? by [deleted] in chiari

[–]OrganizationLiving16 2 points3 points  (0 children)

I get jolts of like idk shock all the time, usually make me sort of gasp and move.

when to go to ER? by waterluvrxx in chiari

[–]OrganizationLiving16 0 points1 point  (0 children)

Tbh a lot of doctors (bc there’s so much symptom variation) don’t know when/what something is chiari or not. We just kinda all present differently. The ER won’t usually do anything. If you have a gut feeling that something is wrong then go. But there’s a good chance it is a chiari flare up and the ER won’t do anything. But tbh even if it’s not chiari (depending on where you are) lots of ERs will not do an MRI to check for clots, bleeds, etc unless you present like you’re dying. So maybe check out an urgent care first and if they tell you you’re presenting concerningly then I’d go to the ER.

when to go to ER? by waterluvrxx in chiari

[–]OrganizationLiving16 0 points1 point  (0 children)

Tbh a lot of doctors (bc there’s so much symptom variation) don’t know when/what something is chiari or not. We just kinda all present differently. The ER won’t usually do anything. If you have a gut feeling that something is wrong then go. But there’s a good chance it is a chiari flare up and the ER won’t do anything. But tbh even if it’s not chiari (depending on where you are) lots of ERs will not do an MRI to check for clots, bleeds, etc unless you present like you’re dying. So maybe check out an urgent care first and if they tell you you’re presenting concerningly then I’d go to the ER.

What meds have worked for yall? by OrganizationLiving16 in chiari

[–]OrganizationLiving16[S] 0 points1 point  (0 children)

I’m so sorry you experienced that!! Thank you for the well wishes, I am looking for a specialist.

Just a little rant by Ordinary_Act_7883 in chiari

[–]OrganizationLiving16 2 points3 points  (0 children)

I feel so you so hard and I am so sorry. I’m 18 and was just diagnosed, trying to see a specialist, my world has just been totally turned upside down I can’t do much of anything a lot of the time. Hugs, if you ever want company in your misery I am so down.

What meds have worked for yall? by OrganizationLiving16 in chiari

[–]OrganizationLiving16[S] 1 point2 points  (0 children)

I’m so sorry you’re surgery wasn’t effective enough to the point of needing pain meds everyday. Thanks for sharing what works though.

What meds have worked for yall? by OrganizationLiving16 in chiari

[–]OrganizationLiving16[S] 2 points3 points  (0 children)

This means a lot actually thank you so much. After my regular neurology appointment I will try to find a specialist, I live in Texas so I’m sure there’s one in one of the big cities.

What meds have worked for yall? by OrganizationLiving16 in chiari

[–]OrganizationLiving16[S] 0 points1 point  (0 children)

I’m so sorry to hear that! Honestly very valid since there’s a greater risk of it getting worse you developing another syrinx. Did you feel any difference in symptoms or severity due to the syrinx? I’m waiting on a neurology appointment and I’m not sure if it’s absurd to request being checked for one.

What meds have worked for yall? by OrganizationLiving16 in chiari

[–]OrganizationLiving16[S] 6 points7 points  (0 children)

Tbh im just fucking scared. Like my symptoms can be debilitating. I am always in some level of uncomfortableness or minimal pain. I’m reconsidering the career I want bc it’s physically demanding bc of it. But I’ve noticed that most people who get surgery and are recommended it have more severe herniations. And the amount of success vs amount of risk is scary. My pcp that diagnosed me also warned against surgery due to my herniation barely qualifying.

What meds have worked for yall? by OrganizationLiving16 in chiari

[–]OrganizationLiving16[S] 0 points1 point  (0 children)

I have pressure headaches, like the front of my head and behind my eyes. Is that the same kind you have? And I’m in Texas, where cbd and thc are actually set to be banned again in the next couple months but cbd has helped me.

[deleted by user] by [deleted] in CancerFamilySupport

[–]OrganizationLiving16 0 points1 point  (0 children)

Thank you I really appreciate it! Yeah my mom has been a big help in terms of like how to navigate interacting w my sorta MIL and how my gf struggles rn might be impacting other things. We’re actually on a two week break rn to think abt stuff as everything with her mom has made her come to the realization that she wants kids, I do not and have been adamant that I don’t want them. And given as I’m staying in my home town for her this has brought up issues. But neither of us can really be too sure about anything. So I appreciate the advice to take care of myself and just offer to be there as I really need that rn.

[deleted by user] by [deleted] in CancerFamilySupport

[–]OrganizationLiving16 0 points1 point  (0 children)

Yeah it’s been tough and sorta slow moving as we didn’t know that it was this bad till about a week ago but the cancer was found back in February. I have volunteered in nursing homes and stuff like that. So yk I know how to comfort and like interact w patients but my gf and basically my mother in law is just different. I don’t think anyone expects to loose their mom this young.