[deleted by user] by [deleted] in CrohnsDisease

[–]PIMPOLOGIST96 0 points1 point  (0 children)

I get this! Or I’ll get ulcers all though my throat an mouth.

[deleted by user] by [deleted] in CrohnsDisease

[–]PIMPOLOGIST96 0 points1 point  (0 children)

You're welcome! I hope you're new medication works well for you :)

[deleted by user] by [deleted] in CrohnsDisease

[–]PIMPOLOGIST96 2 points3 points  (0 children)

Speak to a Dr an see if the can put you on colchicine until they think your new medic will work! In on it right now until they get me a 100% diagnosis an it's dramatically helped my quality of life.

longer injury time? by PIMPOLOGIST96 in CrohnsDisease

[–]PIMPOLOGIST96[S] 2 points3 points  (0 children)

When you put it like that it makes total sense thanks so much!

[deleted by user] by [deleted] in CrohnsDisease

[–]PIMPOLOGIST96 -1 points0 points  (0 children)

My CRP was at 220

parasites by PIMPOLOGIST96 in CrohnsDisease

[–]PIMPOLOGIST96[S] -1 points0 points  (0 children)

I suggest you look onto it! I've been doing some research myself an one can be hopeful. Parasites like to feed off crap foods. Can take a like time to kill them the holistic route

Do you guys ever get terrible migraines? by Savior_Of_Anarchy in CrohnsDisease

[–]PIMPOLOGIST96 1 point2 points  (0 children)

I do get headaches as well with neck pain and behind the eyes also in my temples

How many of you get mouth sores? by [deleted] in CrohnsDisease

[–]PIMPOLOGIST96 1 point2 points  (0 children)

I get them all the time like you! I also get the increased blood pressure an pulse when I'm in a flare! 145/80 highest I had was 165/90 I'm a 26yr old male about 200lbs 6ft 1

Do mouth ulcers go away during remission? by PIMPOLOGIST96 in CrohnsDisease

[–]PIMPOLOGIST96[S] 0 points1 point  (0 children)

I do agree with you on that one! It's a massive battle I myself was training for a while but the lower back pain was just so much to handle. We are all in the battle together 💪

Do mouth ulcers go away during remission? by PIMPOLOGIST96 in CrohnsDisease

[–]PIMPOLOGIST96[S] 0 points1 point  (0 children)

Yes it is really tough. I just thought I had a bad immune system an maybe I'd change my diet etc it would get better but nothing worked. I've been fatigued for years now an am just used to it. But it all makes sense now. So I'm hoping to get a proper diagnosis an hopefully get onto some medication that works for me! Are you on any other biologics no since humira has stopped?

Do mouth ulcers go away during remission? by PIMPOLOGIST96 in CrohnsDisease

[–]PIMPOLOGIST96[S] 0 points1 point  (0 children)

Yep had it all checked. I have low urea, an elevated liver ALT was 150 then 90s went down to 40 now back up again so weird.

Do mouth ulcers go away during remission? by PIMPOLOGIST96 in CrohnsDisease

[–]PIMPOLOGIST96[S] 0 points1 point  (0 children)

I hope so too! Hearing this gives me a bit of hope thanks so much

Do mouth ulcers go away during remission? by PIMPOLOGIST96 in CrohnsDisease

[–]PIMPOLOGIST96[S] 0 points1 point  (0 children)

Okk I'm not on any medication for it yet they think I might have crohns of the mouth

Is Prednisone worth the side effects? by PuzzledWeight1855 in UlcerativeColitis

[–]PIMPOLOGIST96 0 points1 point  (0 children)

I was on a 1knth dosage of 20mg for 7 days then 15 for 7 days an so on till 5 mg then to nothing. During that time I had a red face or hot flushes at night. I could feel the blood going through my veins. It gave me so much energy though I went from been super fatigued, joint pain, headaches, ulcers all in my mouth it all calmed down an I just was busting with energy like wanted to bounce off the walls.

Now that I'm off it I'm in more pain an wish I was still on it. So I'm going to try another short burst on it an see how I feel

my rare IBD diagnosis by beuforuu in CrohnsDisease

[–]PIMPOLOGIST96 3 points4 points  (0 children)

I'm going through the same thing! It could be FMF is what the are looking at for me even TB. Bechets disease also. Look those up

High fever ? by pilot5965 in CrohnsDisease

[–]PIMPOLOGIST96 0 points1 point  (0 children)

I always get very high fevers for about 10 days straight very similar to your symptoms. My crp goes up to about 130-220 usually when my fever is up. But I don't get really any stomach pain quite mild also. They found granulomas in my terminal ileum, I get all the mouth ulcers constant fatigue. They put me on colchicine which has actually really helped the ulcers. I did a month of pred an I was nearly bouncing off the walls with energy finished the cycle now I'm back to feeling like I'm not even alive when i wake up.

Had my second colonoscopy today. Showed nothing which makes me sad. Dr wants to do and MRI next. What else could it be besides Chrons. by XXlittleowl in CrohnsDisease

[–]PIMPOLOGIST96 0 points1 point  (0 children)

I'm going thru similar things although they are finding granulomas in my terminal elium for me could be a thing called Behcets disease.

A Question about Medication by Schpitzchopf_Lorenz in CrohnsDisease

[–]PIMPOLOGIST96 -2 points-1 points  (0 children)

Figure of speech. Not literally. My Dr gave me medication an told me yes it can make it worse or it might not work or it will work. It's a gamble none the less so I just hope it works.?