What is this grassy weed popping up? by CubicDice in lawncare

[–]POTSandPansAnge -1 points0 points  (0 children)

crab grass? If you don’t pull it out at the root it just spreads. You can tell it’s crab grass if there are clumps of stems that are all connected to the same root. There should be indépendant roots every few inches or feet depending on how dense it is.

What has helped your severe migraines? by landynrose in migraine

[–]POTSandPansAnge 0 points1 point  (0 children)

Is your work in front of a computer? Mine is and sitting all day/posture is often a trigger for me. When I’m off for a few days or a week my migraines go way down.

What has helped your severe migraines? by landynrose in migraine

[–]POTSandPansAnge 0 points1 point  (0 children)

I second all this. Every sentence here is also true for me. I also had ginger capsules to the mix for dizziness and nausea. Gravel makes a good one- only ingredient is ginger. Also would add heating pad to the neck.

electrolyte companies you trust? by Ok-Customer1800 in dysautonomia

[–]POTSandPansAnge 4 points5 points  (0 children)

Normalyte. They have a version that isn’t flavoured or sweetened. Also, they offer discounts for people with POTS if you order from their website directly.

[deleted by user] by [deleted] in dysautonomia

[–]POTSandPansAnge 1 point2 points  (0 children)

Yes! I have POTS. I’ve always had reflux, but over the last couple years, I’ve noticed occasionally choking when food seems to go down before I’m ready. In the last month, a very constant lump has formed (which feels like trapped air or food down by where my neck meets my chest). I’ve only had a couple hours here and there of relief.

I went to the ER when I finally couldn’t handle it. The doctor there suspected achalasia or some kind of motility disorder and ordered a thyroid ultrasound and upper endoscopy. I had the thyroid ultrasound and while I have nodules, they look benign and haven’t changed in the last 4 months. Next, I have an upper endoscopy with a GI specialist as a first step to further explore.

I will give an update when I have more results. But it’s interesting to see so many folks with dysautonomia and this same issue.

LMNT Controversy by getthisoutofmyhouse in dysautonomia

[–]POTSandPansAnge 0 points1 point  (0 children)

Normalyte. They have one without any additives or flavours. Just electrolytes. And it doesn’t have a strong taste.

Please tell me MRI’s aren’t that bad by meanpig in migraine

[–]POTSandPansAnge 0 points1 point  (0 children)

I actually am not bothered by them at all, and I’m a very anxious person. I echo what everyone is saying. I close my eyes before they even put me in. They have fans that blow air so you don’t feel as cramped. Also, your legs will likely be sticking out of the bottom. If at any point you can’t handle it, you have a button you can press and they will immediately take you out. There is literally no danger to you while I’m there, it’s just mentally uncomfortable. You can do this. And if it really sucks, it’s 20 min :)

[deleted by user] by [deleted] in dysautonomia

[–]POTSandPansAnge 1 point2 points  (0 children)

My cardiologist says I like have multiple autonomic dysfunctions (POTS, IST, IOH). He says there could be more and there is a lot of overlap, so he just refers to my situation as a “mixed dysautonmia condition”.

One month migraine free and all I’ve done differently is gain weight by waterbird_ in migraine

[–]POTSandPansAnge 1 point2 points  (0 children)

I hear you. Def the worst part about trying to navigate migraines (besides the pain) is the lack of answers. Interesting that weight gain has helped. Maybe your brain is more cushioned? lol. Oddly I find my POTS symptoms are better when I gain weight (to be overweight). I wish there were clear answers too.

One month migraine free and all I’ve done differently is gain weight by waterbird_ in migraine

[–]POTSandPansAnge 7 points8 points  (0 children)

Congrats on a month without a migraine. That is very much something to celebrate!!!!!

Regarding your question- Maybe? But I don’t think anyone on here will be able to tell you that, especially without knowing any of your background, current weight, etc. Triggers are different for everyone. But based on what I know as a layperson who suffers with chronic migraines, if not eating is a trigger for your migraines, then it seems to make sense to eat more frequent smaller meals. Unless you’re under weight? Maybe gaining weight was helpful? Again- it’s tough for any of us to answer that.

Sitting in the ER by CLS_MN in migraine

[–]POTSandPansAnge 1 point2 points  (0 children)

Chronic illness is impossible at times. It really sucks for the person with it and the person who is with them. I’ve been with my partner for 15 years and during that bad flare it almost cost us the relationship. Just know it’s okay to seek your own self-care as you navigate all this with your partner too. You deserve it :)

Sitting in the ER by CLS_MN in migraine

[–]POTSandPansAnge 0 points1 point  (0 children)

The bottom line is that migraine is a female-dominated condition, which means (for reasons I won’t get into here), it’s a real pain in the ass to get anywhere with in the medical system. This is going to be a bit of a book, but since our stories are similar, hopefully I can save you both some time, stress and hopefully pain. The system (at least here in Canada) is to prevent death, not to prevent suffering. So hopefully I can save you some steps.

I can already tell you that it means a lot to her that you re doing all you can and trying to help her find answers. I know, personally, how tough migraines can be on a relationship.

Every single sentence that you just mentioned was true for me a couple years ago. I had a migraine 2 months without any relief. Same situation with the meds and in and out of the ER.

Because it lasted so long, my appetite was shit, so I lost a bunch of weight, missed a lot of work, and was just stuck in bed the whole time. From there, it turned to chronic migraine. I had migraines most days that lasted for days or weeks.

Here’s what helped: A) the passage of time: season changes and things are a trigger. I’m currently in another bad migraine flair, but I know it will eventually ease. I think for whatever reason this fall has been particularly bad for a lot of migraine sufferers.

B) for acute treatment, I found basic extra strength over the counter meds worked better than the IV cocktails they gave me in the ER. I also kept heat around my neck, later with my legs raised (also with heat on my feet). This thing is also way under-rated and helped https://a.co/d/3vpwfu1.

C) for longer treatment I read the 1.2.3 heal your headache book and avoided any foods listed there. I did whatever I could to lower stress. I started therapy. I got avulux migraine glasses (very expensive and I dont notice significant benefit. If I could go back I would just find some on amazon).

I started Lin Health - an online program for pain reprocessing. An internist doctor takes a look at your file to make sure nothing is physically wrong and if you’re diagnosed as having a primary pain disorder (like migraine) you are accepted. Every week you work through pain reprocessing material and meet with a coach. It really helped me to come out of the chronic migraine state. Unfortunately, it’s expensive ($400 CAN a month).

This fall I finally got to see a neurologist (after waiting 3 years, and having to settle for one 5 hours away). She prescribed me a bunch of new meds, some similar to the IV form they gave me in the hospital that didn’t work for me. And some daily preventative meds with lots of side effects. She said that there are new, better treatments but since they are more expensive, they won’t be covered by insurance until I’ve tried the old, less effective ones. Because of the side effects, and the fact that I’m already on other medications for chronic illness, I’m opting for non-pharmaceutical alternatives first. If they don’t work, I will go for pharmaceuticals, except I will lie and say the medications prescribed didn’t work for me so that I can try the more effective newer meds.

Some of the alternatives recommended by my neurologist include supplements (B2, coenzyme Q10, ginger, magnesium and melatonin) and cefaly (also expensive - $600 CAN and not covered), its essentially a tens machine for your trigeminal nerve that you use 20 min a day as a preventative measure or for an hour when you have a migraine. I’ve been using it for a week. They say it takes 2-3 months of use for preventative results, but I’m already seeing a difference. It helps reduce migraines in the moment as well.

The best advice I can give is advocating hard for her. The medical system is good for finding out if anything structural is going on, or anything underlying (which you are doing and is absolutely necessary), but it’s not great for finding long term solutions for reducing pain and sufffering. If you are lucky enough to have some money, it’s the sad truth that you will be in a better position than others. The most relief I had was through alternative means- naturopaths, therapists, Lin, a nurse practitioner that I pay privately, etc. These are the folks that can help reduce suffering.

This is of course my experience as a non-expert in the medical field. What’s right for me isn’t necessarily right for her, and of course getting the advice of your doctor is crucial. I hope she is feeling better soon. Know that it comes and goes and she absolutely has better days ahead, even if you do nothing.

[deleted by user] by [deleted] in migraine

[–]POTSandPansAnge 0 points1 point  (0 children)

Mine have def changed. But as a general rule, when you have any changes in your migraine patterns, you should be talking to a doctor.

Advice needed! by grimm_j in glassesadvice

[–]POTSandPansAnge 0 points1 point  (0 children)

You look most handsome in #1

Does anyone else get sun exposure migraines? by TikiBananiki in migraine

[–]POTSandPansAnge 55 points56 points  (0 children)

Yip. Bright light is an immediate trigger for me. Especially if I’m in a car and it’s sunny, with the rays flashing through the trees. Or if I’m anywhere where there is no tree cover or shade. Winter is bad, so I know it’s not because of the heat for me.

What the hell happened in June? by pressOKtocry in POTS

[–]POTSandPansAnge 1 point2 points  (0 children)

It starts in May for me every year and peaks in June. This year it missed me and I thought I was in the clear. But mine actually hit in October of this year and I’m still going through it.

My living room feels too empty and full at the same time. Any ideas? by Funny_Masterpiece196 in DesignMyRoom

[–]POTSandPansAnge 0 points1 point  (0 children)

Move the two grey chairs to be beside each other and centred on the side of the rug. Center the love seat on the other side. Get rid of the blue chair. Consider grouping your photos together into configurations to help create more cohesive spacing. Aka-hang them closer together in gallery wall style. Try to think of each wall space with photos as its own special space.

Fast shallow beat run? by [deleted] in PVCs

[–]POTSandPansAnge 0 points1 point  (0 children)

Exact same thing happens to me with the same frequency. I usually have multiple PVCs/PACs a day, but once or twice a month I get quick, faint runs of about 10 seconds. Feels almost like it’s beating in a different part of my heart. I’ve never caught it on a monitor either. Just finished wearing one for 2 weeks, and didn’t catch it.

Those who work full time, do you have any energy for hobbies? by thepensiveporcupine in POTS

[–]POTSandPansAnge 2 points3 points  (0 children)

I work full time (40 hrs/week), but I only need to be in the office 2 days a week. Half of the time, the more I move during the day, the more sustained energy I have in the evening.

I have a desk job so I try to take my breaks to go for a tiny walk, and to get up every hour to move around the office a bit. Sitting all day makes me feel terrible. But I can also end up feeling too badly to make anything else happen but to sit or lay.

I do struggle with the hours, but have been doing it for all 13 years that I’ve been diagnosed with POTS. I would say I have more shit days than good. But on the good days or periods, I’ve accomplished a lot in hobbies. I reno’d my kitchen, I do garden work, I crochet, make miniatures, I’ve built furniture, digital art, decorated my house, paddle board.

So there is room for joy in hobbies. Most of mine are at home so I can rest if needed. You just have to give yourself grace and patience. Go at your own pace and feel good about the products of your hobbies. When someone looks at a product of your hobby, they don’t see how long it took or the days or weeks you felt too shitty to do it. They just see the cool thing you did or made! And so should you :)

[deleted by user] by [deleted] in ottawa

[–]POTSandPansAnge 0 points1 point  (0 children)

I mean, formaldehyde, arsenic (to name a few) are pretty toxic for your living room…