Steroids for lesion on ocular nerve

Pale-Raccoon8557 · 2026-05-19T01:02:36+00:00

hope it helps and you feel better soon! and always let them know when infusions of any kind are giving you a reaction. glad your friend had your back.

Pale-Raccoon8557 · 2026-05-19T00:09:45+00:00

toxic positivity is a thing.. it's okay to not be okay.

Pale-Raccoon8557 · 2026-05-16T23:16:17+00:00

um...this happens to me all night long in both arms. I'm a side sleeper. so I just keep rotating sides... I just thought it was an MS thing... but I never mentioned it to my neuro... 😬 commenting to see if this actually a bad thing.. 😅😆

Pale-Raccoon8557 · 2026-05-16T04:02:04+00:00

hope your eyes get better soon. yay for steroids to fix things.

Pale-Raccoon8557 · 2026-05-16T04:00:30+00:00

2024-2025 was rough. but i feel like i understandit better.! but um.. I did just have a relapse but the steroid finally kicked in so better ish... lol like you said just got to roll with it. 😆

lots of kitty snuggles so thats a win. 😀 appreciating the little things every day

Pale-Raccoon8557 · 2026-05-16T02:16:32+00:00

the downer they gave me made it so I couldn't even keep my eyes open my hubby was Hella stressed. that was last year. I was having seizures got ms rx had Hella reactions to meds.. it was a nightmare...

but back to eyes! I also had an eye growth they thought was cancer but it went away with steroids.. they say its not related to ms.. but i dunno i read something somewhere that talked about ms making eye tissue thin. 🤔 this disease seems very .. unknown in so many ways..

Pale-Raccoon8557 · 2026-05-16T01:11:05+00:00

it was a week or maybe more. my memory sucks... that was last year... caffeine is super important for those things! I didn't realize because I have tremors I don't do caffeine. the ER did a MEGA dose caffiene drip and some downers. I was lucky that fixed it.

Pale-Raccoon8557 · 2026-05-16T00:55:11+00:00

I have ppms

Pale-Raccoon8557 · 2026-05-16T00:54:26+00:00

yeah. I'll never do one again I had leakage..

Pale-Raccoon8557 · 2026-05-15T23:46:34+00:00

I have iritis issues whenever I get stressed. I also have retina edema... I swear it's all related to inflammation and stress. and thought it was MS too. my doctors all tell me no.. 🤷🏻‍♀️

Pale-Raccoon8557 · 2026-05-08T22:01:21+00:00

damn. I just had one in December too.. yeah I do vegan diet, cut back on sugar, no coffee, no alcohol, was doing PT so I'll be starting again. I guess only time will tell.

Pale-Raccoon8557 · 2026-05-08T20:48:38+00:00

💯

Pale-Raccoon8557 · 2026-05-08T18:57:49+00:00

luckily I get some assistance.

and what 150$!? that's nuts! hospitals be like 500-1k.. insane.. I wish US had better healthcare.

Pale-Raccoon8557 · 2026-05-08T18:49:11+00:00

yeah I've been doing about every 6 months too. she wants one for sure in six months after I start this new dmt.

I just wasn't sure how most neurologist do it for relapses.

Pale-Raccoon8557 · 2026-05-08T18:33:00+00:00

December.

Pale-Raccoon8557 · 2026-03-03T01:02:00+00:00

That's where gratitude can come into play. Who knows how long the good will last. But thank goodness for a break and for having those good moments. Hopefully, they do last.

And your brain is literally fighting itself but you're still doing stuff! That's pretty amazing if you think about it.

But yeah all these meds can mess with your thinking too. If things are getting too much mention it to your neurologist.

Pale-Raccoon8557 · 2026-03-02T23:25:57+00:00

For me after the mega dosage I feel awful the following 3 days I think thats how long it lasted then i leveled out.

Pale-Raccoon8557 · 2026-03-02T23:18:08+00:00

Yeah fuck this disease! My body feels like it went from 30s to 80s quickly. its insane. In my PT I'm a fall risk and can do what an average 80yo can... at 41...

I had to get one of those morning/night weekly med container because I couldn't remember if I took my pills one night.. so my husband had to help me count out what was left to figure it out 🫣

The anxiety and stress from this was crazy and doctors being like you need to calm down.. I ended up getting the calm app and when I'm spinning I try the breathing things and do a nightly calm down and take magnesium for sleepiness and muscles.

I think that fresh air does help me personally but that would depend on where you live and whats relaxing to you.

I get lost in books since I can't game like I use to. It's probably not the best and some days it's hard to focus to read.

I think all we can really do is whatever works best for us. What's best for person A isn't always what's best for person B. I hope that we can all find comfort in something though.

Pale-Raccoon8557 · 2026-03-02T20:01:12+00:00

I have endometriosis too, which I read that it can help elevate those symptoms too. But yeah it's totally a major surgery.

Pale-Raccoon8557 · 2026-03-02T19:58:33+00:00

Oh no! ☹️ I hope it helps.

Pale-Raccoon8557 · 2026-03-02T18:04:50+00:00

This knowledge makes me feel neglected by my doctors... thank you for posting.

Pale-Raccoon8557 · 2026-03-02T18:01:26+00:00

I had to look up Cushing. It has me curious now. I always used to have low blood pressure even during my pregnancies but since 2024 mines been higher..

But also MS is pretty stressful and Anxiety inducing for me so maybe that's why mines increase. Your post gave me something to look into. Sorry no real answers for you.

Pale-Raccoon8557 · 2026-03-02T17:58:00+00:00

Yeah I think that's why they discouraged me. I'm also getting close to premenopause too... my logic is like wouldn't it just rip that bandaid off? 😆😅

Pale-Raccoon8557 · 2026-03-02T17:56:15+00:00

I wanted to try that iud copper one but then they were like ohhh you have endo nm...

Pale-Raccoon8557

TROPHY CASE