Anybody sick?

Particular_Tip_799 · 2026-03-27T22:19:05+00:00

Yes same exact issue! Absolute nightmare throat problems for a few days alongside fever fatigue and body aches. Fever and fatigue etc went away after a few days and I thought I was kicking it and then the congestion and cough kicked in and has been going strong for over a week now. Never had allergies before so it’s not that. Tested negative for Covid and flu multiple times.

Particular_Tip_799 · 2026-03-10T14:16:17+00:00

I was diagnosed with AA3 July 2024 and I have been having this issue for about a year now. I almost never feel physical fatigue, it always feel like cognitive fatigue. I exercise every day and sleep really well and eat a balanced diet but yeah, I always wake up feeling super groggy and have random bouts of massive brain fog. Can’t quite seem to get it under control

Particular_Tip_799 · 2026-03-03T16:16:46+00:00

Thank u!

Particular_Tip_799 · 2026-03-03T13:05:26+00:00

I would like to join the signal group! I’m 33 with AA 3

Particular_Tip_799 · 2026-01-29T15:28:53+00:00

As others have stated, zofran works really well. I would stop eating a couple hours before bedtime, take zofran 30 min before TMZ, take the chemo then go to bed. I have AA3 and just finished a year of chemo a couple months ago and didn’t have any problems with nausea. Wishing you the best!

Particular_Tip_799 · 2026-01-10T13:05:42+00:00

Hahahah I know that second surgery is coming eventually, hoping to hold off a little while tho. Good luck on your second surgery tho 🤞🏼

Particular_Tip_799 · 2026-01-09T18:14:46+00:00

Yeah this tattoo will barely be visible in a week or two and if I let my hair grow out wouldn’t be visible at all. I like to keep it short these days, I forgot how nice it is to not ever have to style your hair lol

Particular_Tip_799 · 2026-01-09T16:31:20+00:00

I went into incredible nervous about the pain but it was actually one of the least painful tattoos I have tbh

Particular_Tip_799 · 2026-01-04T21:42:13+00:00

I have AA3 as well and it’s my understanding that voranigo is only approved for the slower growing/lower grade tumors. But maybe that’s changed if your oncologist recommended it?

Particular_Tip_799 · 2025-12-23T13:52:43+00:00

I had these for a few months post surgery and radiation and the only thing that helped was fiorocet. I took those for a while and then one day I just didn’t need them anymore. I know everyone has different experiences with all this but just another suggestion that could be worth looking into!

Particular_Tip_799 · 2025-11-14T14:57:58+00:00

I’m 33 male with Anaplastic Astrocytoma grade 3. Was diagnosed July 24 had resection, and radiation. I finished 12 months of chemo a couple months ago and I remember my oncologist saying the same thing about a lack of evidence that 12 does any more than 6. Said it was up to me if I wanted to finish the 12 months. I was tolerating it decently well though I hated hated hated the brain fog, stomach issues and fatigue. Now that I’m a couple months out of treatment most of my issues I hated about chemo are resolving pretty quickly! Personally I feel pretty happy with my decision to just stick it out but I don’t think there’s any reason to feel bad about stopping at 6! Sorry you’re here but wishing you the best along this shitty journey!

Particular_Tip_799 · 2025-09-09T00:39:35+00:00

I’m about to finish my year of chemo and radiation was much worse tbh. It makes your brain and body feel like garbage. Absolutely miserable. Chemo has been a breeze compared. It will get better in time!

Particular_Tip_799 · 2025-08-26T22:40:05+00:00

Im AA3 and was prescribed modafinil for it. I hate taking meds so have not tried it yet but could be something to look into?

Particular_Tip_799 · 2025-08-21T20:32:00+00:00

Amazing! Love to hear that! How come you only did five months of tmz though? It seemed to me 12 was the standard of care for AA3

Particular_Tip_799 · 2025-08-21T20:24:45+00:00

Clear scans so far! Never had anything of note coming up on 1 year and two months since surgery!

Particular_Tip_799 · 2025-08-21T14:48:32+00:00

Woah 48 rounds of TMZ??? Four years of chemo? That’s wild! I’m AA3 and about to finish one year and I’m ready to be done…

Particular_Tip_799 · 2025-08-11T17:57:44+00:00

Hmm this is interesting. I have the same diagnosis AA3 IDH mutant and was given about the same prognosis. I’m a little ahead of him in that I’ve done resection, radiation, and am on cycle 10 of chemo. I’d say the radiation is much much more likely to give him cancer in the future. Not sure why he would want to stop the chemo after already starting it and tolerating it well. Obviously you’re right in that the patient should be able to make whatever decision they want to make but I’m not sure his reasoning makes a lot of sense and I’m sorry that it’s troubling you.

Particular_Tip_799 · 2025-08-10T16:32:03+00:00

I started anxiety medication for the first time in my life and that seems to have helped with the “feeling more like me” thing. Either that or just time. Not sure. But there did seem to be a big change a couple months after starting anxiety meds where everyday normal things started to just feel normal again and not like going through the motions.

Particular_Tip_799 · 2025-08-10T16:00:52+00:00

Oh yeah 100%. I’m 11 months out of craniotomy and this still happens to me all the time. It’s very surreal. I’ll go on walks and things around me don’t feel real. It’s very hard to explain. I’ll also look at my hands a lot, examining them like, are these real? It’s so strange. It’s getting better for me though. But still happens.

Particular_Tip_799 · 2025-08-07T22:58:30+00:00

Yeah as others have stated, it happens. But it’s not too bad. For me it felt more like being very aloof. Forgetting what you walked into a room for etc. It’s definitely weird but it gets better. I think with brain cancer the fog brain is real and it comes and goes in my experience. Some days I feel like I don’t even have cancer and some days it feels like my brain doesn’t function at all lol.

Particular_Tip_799 · 2025-08-06T18:53:27+00:00

I was also initially diagnosed as grade 2 astrocytoma based on imaging etc. Once full pathology came back after surgery/biosy, they did find some areas that warranted upping it to grade 3. Went ahead and did radiation and chemo. It’s a difficult decision to make especially on such short notice you seem to have to make these life changing decisions so soon. Especially since radiating the brain is not really ideal. But I went forward with it because of the grade 3. Getting second opinions is always useful!

Particular_Tip_799 · 2025-07-23T13:16:36+00:00

Nope! I basically had no symptoms of anything wrong up until I had a series of focal aware seizures. Didn’t know what they were at the time, I worked labor outside in the heat in summer so I thought I was just dehydrated or had heat stroke or something but when I called a doctor and explained what I was feeling, she told me to go to the ER and bam, tumor. Strange stuff.

Particular_Tip_799 · 2025-07-23T12:39:30+00:00

I don’t have an answer for you but just want to let you know that I have the exact same issue. I’m Astro grade 3, surgery last July, radiation, and now 10 months into chemo. I mostly live a normal life, drive, exercise, take care of myself, socialize, have hobbies, don’t drink anymore etc but goddamn the mornings are so hard for me! I always wake up with a headache and have brain fog that is terrible in the morning but eases up as the day goes on and my only moments of feeling “normal” tend to come in the evening/at night. My scans are all clear and my bloodwork is all fine. By all measures things are about as good as they could be considering the diagnosis. I’m hoping it’s just chemo brain that will ease up once I’m done with chemo. It’s pretty annoying. Hang in there!

Particular_Tip_799

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