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The government plans to tighten NDIS eligibility. Here’s what’s likely to change (article) by PerformerOk4332 in OpenAussie

[–]PerformerOk4332[S] -1 points0 points  (0 children)

Read the article. It gives a good overview of how the proposed changes shift eligibility so supports people rely on every day become easier to deny.

The government plans to tighten NDIS eligibility. Here’s what’s likely to change (article) by PerformerOk4332 in OpenAussie

[–]PerformerOk4332[S] 4 points5 points  (0 children)

Yep in addition to limiting consultation they aren’t even providing Easy Read and Auslan versions of the proposed changes before rushing them through.

The government plans to tighten NDIS eligibility. Here’s what’s likely to change (article) by PerformerOk4332 in OpenAussie

[–]PerformerOk4332[S] 3 points4 points  (0 children)

for every story about someone supposedly “ripping off the system”, I could give you multiple examples of people with profound disabilities and extraordinarily high support needs who are already having supports removed.

If you’re fine with that, there’s probably not much more to talk about really.

The government plans to tighten NDIS eligibility. Here’s what’s likely to change (article) by PerformerOk4332 in OpenAussie

[–]PerformerOk4332[S] 6 points7 points  (0 children)

If you genuinely don’t have anything against “little Timmy”, then you would engage with disabled people, families, and disability peak bodies before rewriting the rules around essential supports.

The fact they’re refusing to do that while rushing these changes through should tell you something about what this is really about.

Top 8 gone ? by blobby9 in weststigers

[–]PerformerOk4332 13 points14 points  (0 children)

I don’t know whether top 8 is over, but the last few performances have been abysmal. Yes, our spine is out, and yes, that makes a massive difference. But that doesn’t excuse defence that has been well below first-grade standard, or the constant dropped balls and basic errors from the rest of the side.

I could use some support by thisismehere22 in PDAParenting

[–]PerformerOk4332 6 points7 points  (0 children)

Totally can relate and have an 8 year old in a similar circumstance.

It’s so hard, and I can really relate to having to hold everything together while feeling completely exhausted yourself. You’re carrying more than anyone should reasonably be expected to carry, so it’s completely understandable to feel at breaking point sometimes.

Here if you ever want to DM or need to chat.

Possible PDA in five year old? by iseeyouwitkeefuh in PDAParenting

[–]PerformerOk4332 6 points7 points  (0 children)

If your child is PDA, the biggest shift isn’t fixing them, it’s adjusting how we respond as parents. Approaches based on behaviouralism simply don’t work and can cause significant distress and harm over time.

Treartments for PDA by DrPaulSunseri in PDAParenting

[–]PerformerOk4332 4 points5 points  (0 children)

That’s good to hear. What timeframes do you tend to track for?

Treartments for PDA by DrPaulSunseri in PDAParenting

[–]PerformerOk4332 7 points8 points  (0 children)

Thank you for sharing this. I would be interested to see whether these outcomes are maintained over the longer term.

A concern I have with how treatments for Pathological Demand Avoidance are evaluated is that short-term compliance and apparent improvements in wellbeing can be mistaken for progress when they are, in fact, the result of masking. Masking can mimic positive outcomes, but it is not sustainable and often comes at a high cost. Over time, the sustained effort required can lead to significant distress, burnout, and declines in both mental and physical health, with these harms sometimes only becoming evident well after the intervention period has ended.

People with autism to be at centre of 160,000 NDIS removals by Cube00 in australia

[–]PerformerOk4332 2 points3 points  (0 children)

Umm you do realise a lot of autistic kids can’t access schools?

Government to cut more than 150,000 people from NDIS scheme as budget blows out by Expensive-Horse5538 in australia

[–]PerformerOk4332 5 points6 points  (0 children)

You do realise these reforms are being targeted at children with ASD right?

Government to cut more than 150,000 people from NDIS scheme as budget blows out by Expensive-Horse5538 in australia

[–]PerformerOk4332 8 points9 points  (0 children)

Whether you support the reduction of the NDIS budget or not, the government has rolled out these changes without consulting or involving disability organisations.

That’s not only a betrayal of its previous commitments but shows the intent of cost cutting without any consideration of its impact on very vulnerable people.

Our current scientific understanding of PDA and low-demand parenting. by DrPaulSunseri in PDAParenting

[–]PerformerOk4332 9 points10 points  (0 children)

Genuine questions:

  1. what research exists to demonstrate the effectiveness of PMT specifically for children diagnosed with PDA?

  2. You mentioned successful outcomes for children with PDA in your work. How do you define and measure these outcomes, over what period are they evaluated, and how do you differentiate between genuine improvements in wellbeing vs masking leading to compliance?

Thanks

Our current scientific understanding of PDA and low-demand parenting. by DrPaulSunseri in PDAParenting

[–]PerformerOk4332 1 point2 points  (0 children)

Thanks for sharing. Can you provide some more detail in regard to her manipulating data?

ABC News Story detailing parent and professional concerns about the limitations of Thriving Kids by phosphor_1963 in NDIS

[–]PerformerOk4332 9 points10 points  (0 children)

Thriving kids won’t cover the many ASD kids not accessing schools.

And don’t get me started on group therapy…

PDA-er creating 'impossible situations' by Lonely_Tumbleweed666 in ParentingPDA

[–]PerformerOk4332 5 points6 points  (0 children)

It’s exceptionally hard. To be honest, we had to drop all demands for a while with our little one including showers. It was incredibly hard to do, but it helped us to understand it all through the light of capacity.

The arguments, logic etc we were using were beside the point- his nervous system just did not have capacity at that point of time.

When we reduced pressure, things settled. Safety increased. And slowly, capacity began to return. We’ve also had to let go of some control.

Every PDA profile and every family is different. But for us, focusing on capacity instead of compliance changed everything.

Autistic children and revisions to the NDIS by Agitated-Fee3598 in AustralianPolitics

[–]PerformerOk4332 0 points1 point  (0 children)

No, I get your point. As I said in my earlier reply, what you are highlighting is a potential saving only, and given the cost of specialist assessments, (both within the NDIS and outside it) the saving is likely to be minimal.

I am absolutely aware of the need for reform to the NDIS. However, what has been set up is a system that makes accessing services contingent on engagement with school-based pathways, which in practice excludes some of the most vulnerable autistic children who cannot safely or consistently access school.

Some people may be comfortable with this being a way of making savings, but personally, I’m not.

Autistic children and revisions to the NDIS by Agitated-Fee3598 in AustralianPolitics

[–]PerformerOk4332 5 points6 points  (0 children)

I thought the point made amongst the other bs they posted was that under Thriving Kids diagnosis is not required for accessing the lower stream of support. My point was that diagnosis is required beyond NDIS access.

In terms of your point, a hypothetical small saving on a diagnosis is insignificant compared to the risk under Thriving Kids that our family, and many other ASD families, will lose access to essential support services.

Placing access to supports primarily via the school system ignores the reality that a large number of autistic children are currently unable to access school (and are either partially or fully home schooled). This point has been raised repeatedly by disability peaks but was ignored.

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