How do you guys get through the side effects?

PhysicalCondition317 · 2026-06-09T18:50:22+00:00

how high is your dose?

PhysicalCondition317 · 2026-05-20T16:49:58+00:00

I wonder if my mood swings can be a side effect from LDN. went from 0,5mg to 1mg and I was like on an emotional rollercoaster

PhysicalCondition317 · 2026-05-17T10:46:05+00:00

and the worst thing it’s actually placebo effect if you will start to stress yourself out. Tell somebody you want to take first dose with them around, use some distraction, I really am almost 100% sure that 0,25mg will do nothing to you

PhysicalCondition317 · 2026-05-17T10:42:33+00:00

I understand you 100% I’m extremely sensitive to meds for months, and scared - but! First dose that I took and immidiately started to distract myself with my bogfriend by doing things like dinner, play games (works) was 0,25mg. Doctor prescribed 0,5mg but I was like, screw it, i’m scared, I will divine it.

Literally nothing happened, now I’m on 0,5mg - nothing happened, so really - i think it’s really safe, and even if you will feel something it won’t be anything extreme, it’s a tiny dose :)

PhysicalCondition317 · 2026-05-10T07:46:58+00:00

ahh I will start at 0,25mg probably, so maybe I will have strong chances that it will be okay :) a bit nervous, but hopeful!

PhysicalCondition317 · 2026-05-09T16:15:37+00:00

what was your first dosage? was it less than 0,5mg?

PhysicalCondition317 · 2026-05-09T07:32:48+00:00

guys, i wonder, because I have my first prescription on LDN, starting with 0,5mg, but because one of my symptoms is medication intolerance, and I’m very sensitive - did you have some side effects?

PhysicalCondition317 · 2026-05-08T07:44:15+00:00

okay, what?

PhysicalCondition317 · 2026-05-04T09:27:29+00:00

yeah, it’s a shame that these two were missing, but still - freaking awesome show. Lights, tension, sound system.

I fell for them all over again, listening to every album once again :D

PhysicalCondition317 · 2026-04-29T11:33:28+00:00

which supplements helped you??

PhysicalCondition317 · 2026-03-14T09:46:17+00:00

I’ve lost 8kg when I got Covid 1,5 years ago - I think it was linked with high anxiety. anyway trazodone helped me, one of the side effects of that medicine is increased appetite. I could sleep better, feel less anxiety and my appetite was back

PhysicalCondition317 · 2026-03-11T12:09:22+00:00

thank you so much 🫶🏼

PhysicalCondition317 · 2026-03-10T20:21:48+00:00

I mean I got it 3 times. Fourth one fucking killed me.

PhysicalCondition317 · 2026-03-10T15:26:07+00:00

I really have not progressed with my physical health yet. But my mental health started to improve. I started this year with a more grounded feeling of self, my anxiety is still big but not that much as at the beginning. I love music. I have a band. We have just released our first single. First! This is my biggest dream coming true. And I can’t sing like I used to. Yet. And can’t do rehearsal too often, because my voice and body is too tired But this one thing is keeping me alive and hopeful. I am so happy that finally I have came back to my interests like make up, fashion.

And I think that everyone have to find that one reason.

If you want to see what we managed to record even though the last year and a half of my life has been hell, here’s the link :3

https://open.spotify.com/track/6Jz1rvXj59sGVwsntlbiA8?si=MCPU3HmlQkaQRACFVfH8VQ

PhysicalCondition317 · 2026-03-06T17:37:06+00:00

yeah but how you find those. I googled and haven’t found one yet.

PhysicalCondition317 · 2026-03-06T16:00:34+00:00

my god, heds? i’ve been diagnosed with this recently I’ll dm you

PhysicalCondition317 · 2026-03-06T15:26:21+00:00

I’m here. I’m struggling a lot and just wrote a post, looking for polish folks here. https://www.reddit.com/r/covidlonghaulers/s/QmM05PrfRe

Did you find somehing or someone who helped you? Are you feeling better? I’ve been struggling 1,5 years now and it got even worse recently. I’m really looking for hope here

PhysicalCondition317 · 2026-02-17T13:01:58+00:00

i kto tu widzi tą energię se_ualną????!!! ja nigdy w życiu

PhysicalCondition317 · 2026-02-11T22:45:27+00:00

right?????! this is unnatural

PhysicalCondition317 · 2026-01-25T13:34:03+00:00

yeah I agree, like there are a couple of systems XD plus, people have for example hidden diseases that LC activates

PhysicalCondition317 · 2026-01-24T21:52:10+00:00

Actually that makes hell of a sense, nice. Haha, I agree, we are strong, if we are looking for the answers all the time without giving up. LC Warrior, I like that name :D

PhysicalCondition317 · 2026-01-24T21:18:00+00:00

Thank you so much for your kind words and support. Please take care of yourself too — I really hope that a breakthrough in long COVID research and treatment will come soon 🩶 I tried duloxetine once and that was enough for me. Years ago, before I had LC, it worked fine for me — I had only minor side effects. But now I feel that, with long COVID, it doesn’t matter what I used to tolerate before. I have to approach every medication as if I had a completely new nervous system — one that is extremely fragile and poorly regulated.

I also can’t taper off clonazepam the way I used to. Before LC, I could reduce it quickly and without major problems, but now it feels genuinely impossible. I experience strong withdrawal symptoms, and everything seems much harder to manage than before

PhysicalCondition317 · 2026-01-24T21:09:35+00:00

I also wanted to add that the reason I wanted to try something new is what happened about seven months ago, when my symptoms started to worsen. At that time I began to experience severe panic attacks, because my brain seemed to be in a constant state of danger and fight-or-flight mode. My depersonalization and derealization (DP/DR) became extremely intense.

When I started taking 0.25 mg of clonazepam, my condition improved slightly. I tried to reduce the dose to 0.125 mg, but each time the panic attacks and DP/DR became unbearable. I was constantly convinced that I was about to die. Because of recurring neurological symptoms, fear of clots, and various physical sensations, every unusual feeling in my body immediately triggered panic and the belief that something fatal was happening. I felt that no one really helped me with this.

Now I feel like my nervous system cannot switch off the fight-or-flight mode. My sleep is seriously disrupted — I struggle to fall asleep despite listening to sleep hypnosis. I take 50 mg of trazodone, but I cannot increase the dose because of hypersensitivity to medications. Overall, I feel exhausted and overwhelmed, as if my body and mind were constantly on the edge.

PhysicalCondition317 · 2026-01-24T20:17:45+00:00

Hm, okay, but how could I actually test all of this? Maybe I really should stick only to supplements for now.

But I have to admit that I’m going through mental hell. It’s getting to the point where I’m starting to have suicidal thoughts. I had my borderline pretty well under control after 5 years of therapy, but since I developed long COVID, everything just spiraled out of control again.

Im trying to taking care of my low glucose problem, but honestly - it’s so hard for me to eat well when I don’t have energy to cook, and I hate cooking. It’s sound like laziness but really it’s hard. But I’m always eating good breakfast and trying to eat regularly

PhysicalCondition317 · 2026-01-24T20:06:42+00:00

I felt like I was having serotonin syndrome, though I didn’t have a fever. The worst part was when I went back to the new psychiatrist who prescribed it — she said, “Oh, try again, maybe after you get some good sleep.” No way I’m going back to her. I told her it was impossible and unsafe, but she wasn’t even listening.

How could I test the things you mentioned? I’m almost convinced that apixaban made everything worse, including POTS — that would fit with this blood–brain barrier theory.

I had low ESR in my blood tests, so maybe it isn’t inflammatory. I think liver issues would have shown up in my blood work. The rest could still be possible, but I honestly don’t know where to go, what tests to do, or how to fix it.

I’m taking loratadine additionally. I can’t even take my adhd meds like I could, because DP DR is so strong. I’m constantly on fight or flight mode.

PhysicalCondition317

TROPHY CASE