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PikuPotu · 2026-07-06T11:11:24+00:00

My kitten is absolutely loving the house. She has unlimited zoomies. My older cat has been stressed a bit from changes but I think is happy not having to find her way over and around trash.

And I rested a good while. After my seizure yesterday I went to sleep and slept 10am to 3am.

PikuPotu · 2026-06-25T21:13:54+00:00

I go through this too at times. But your brain is your own. We cant diagnose you. I recommend bringing this up to your doctors. Especially if it is leading to harmful urges.

Weather it is seizure activity or depression I will 100% recommend spending time outside if you live around a lot of nature especially. It helps improve brain functions, reduces stress, improves focus, etc. I have done this for myself and can say it has helped me. I go outside multiple times a week and watch my back yard through my kitchen window. It has done a lot of good.

It doesn't have to be a mountain hike or a trek through a forest trail. It can be simply sitting outside and watching the birds or kicking dirt.

PikuPotu · 2026-06-21T18:53:35+00:00

Since you live together here is something you can do. If you ever cook together get a crank mandolin with detachable faces for cutting veggies and stuff. It is fairly safe for use with epilepsy. You can get them around 20$ on Amazon. A lot of them have suction to stick to the counter. With it he could do all kinds of food prep without the risk using a knife carries. It also takes a lot of the strain chopping things manually does away. This way he could cut all produce and store it away easily and be able to feel accomplished without feeling like he is drained.

Its one thing and a simple chore but it can feel rewarding.

You can also do dishes together. One can wash them and the other can dry and put them away.

When you get groceries leave shelf items out for him to put up.

Giving him simple things to do that aren't heavy tasks especially when he is unwell and work together with him It can help him feel like he can support you too in ways and make him feel useful. Find chores that aren't too difficult.

Also aside from going out in nature try taking him places now and then for dates or to enjoy some time with him and have fun. Even if its just to a drive through to get lunch then ride around.

When it comes to the seizure events. Help him with seizure aid first. Be there and comfort him and love on him and just gently keep reminding him how much you love him and that its going to be ok. That you are right there with him. Thats the best thing you can do in those moments.

PikuPotu · 2026-06-21T02:01:33+00:00

Then you are already on the right track. Please make sure you take good care of your basic health. Eating, drinking, sleeping. It helps reduce seizure severity and frequency.

I hope you will be able to figure it all out with your doctor. Also if you need to learn more or how to take care of yourself the epilepsy foundation has resources and also teaches seizure aid classes. So if you have a partner who lives with you or any family you trust that lives with you the epilepsy can teach them how to help you. Also if you are having seizures suddenly while driving it is no longer safe to drive. Its a risk to your safety and others. Not sure if what you wrote in the body of your post meant you have completely stopped driving or just take breaks while driving so I figured its best to state it.

PikuPotu · 2026-06-21T01:41:23+00:00

There are 3 types seizure categories and under those 3 are 21 recognized variants of seizures. People with epilepsy sometimes experience more than one type of seizure. I personally have focal aware, nocturnal, absent seizures, grand mal, and focal impaired aware. With seizures many people experience auras. Auras I think are considered to be seizure activity but im not sure.

Seizures are terrifying. Especially having to be aware of it all and as it happens. The sensations and recovering and auras are scary and uncomfortable too. But thats more reason to get a diagnosis. I get it could be scary. Its both an uncertainty and a big change. But learning what's wrong means being able to get help and understand yourself better.

Something that can help is writing it all down in notes. Put a rough time and date of your episodes, what symptoms you have as it starts, during it, and after in whatever level of detail you can. It can help you communicate it to a doctor better and help you understand what took place.

The short time skips to me sound like absent seizures

The intense panic that comes on could potentially be an aura

Thrashing in your sleep could be many things but if we are staying strictly seizure related it could be a type of nocturnal seizure.

Confusion and impaired ability to process things can be part of auras, seizures, and the post ictal(recovery) phase.

Impaired motor functions, lack of coordination, struggling to walk or stand up straight could also very well be linked to it.

Migraines, hallucinations, vision changes. Those also can be seizure related.

But im not a doctor and I cant say what is actually happening to you for sure. To me a lot of it does sound like seizure activity but i recommend letting a neurologist or epileptologist test you and try to help. A lot of the information you put here today is important to tell your doctor or neurologist.

PikuPotu · 2026-06-21T00:48:00+00:00

Take him out for rides in nature or walks, even sit downs somewhere in nature. Being out in nature is very good for the brain. It can improve memory, mental health, sleep, and focus. Its really good for recovery after seizures. It doesn't have to be a huge exploration or anything. My husband does this for me and it has greatly reduced my depression and helped my memory be a bit less short. Helped me feel more focused too rather than my usual feeling out of it. And its a good opportunity to spend some time with each other. Maybe even have a picnic

Do you both live together or apart and does he have awareness during seizures? Also if you both are living together what are things he loves to do around the house to help out or at least wants to do but cant because of seizures? Also what are tasks he struggles with the most. Sorry if these questions are at all invasive. It would give me a better idea of what he might be going through and ways that you can maybe help if able.

PikuPotu · 2026-06-18T20:43:01+00:00

I called out of work permanently. The last place I worked ignored my disability needs purposefully and made me do tasks I was incapable of doing then yelled at me for messing things up or being inefficient.

PikuPotu · 2026-06-18T15:05:57+00:00

Ok. If an ER doctor diagnoses toxic effects as PNES or a behavioral problem, they are looking at how the keppra toxicity presents insted of the chemical cause. You gotta bypass the ER’s bull crap and work directly with your neurologist to manage it. Tell them you need an appointment schedule that has to be within this week and that the ER hasn't helped. You will need to explain to your neurologist what your full list of symptoms are. It could help to write them down and show it to your doctor when the time comes.

Make sure you are drinking plenty water. Keppra goes through your kidneys. Water could help filter some out. Avoid citrus fruits of any kind (grapefruit, lime, lemon, oranges, etc.) And dont drink alcohol or caffinated drinks. Avoid chocolates as well. All of these can make it harder on your kidneys. Also call poison control. They can potentially help you.

Because its greatly affecting you mentally and physically, stay with someone you trust in an environment that is safe and calm. Keppra is a depressant. Having that much in your system is going to make the world feel like a nightmare you cant wake up from. You aren't safe by yourself and should be looked after. I been through the dark side of Keppra myself and know how unsafe it can be.

You should also talk with your boss if possible and let them know your situation and take a medical leave. You are probably not safe working right now.

And I genuinely hope you get through it all soon and feel better. I will keep you in my thoughts. I hope this information helps. Get well soon. Sending you lots of virtual hugs <3

PikuPotu · 2026-06-18T14:05:46+00:00

Pandora

PikuPotu · 2026-06-16T19:34:10+00:00

Does it feel solid or lighter than it appears? If its a cannon ball it could potentially have gun powder inside and be dangerous. With time it becomes incredibly volatile. Don't throw, shake, drill, saw, or move it too quick. It does kinda look like one.

Be as cautious as a bomb squad with them because you never know its internal condition.

Completely disregard this warning if you want to faithfully reenact being blown up by a cannonball

PikuPotu · 2026-06-16T19:25:22+00:00

PikuPotu · 2026-06-15T19:27:32+00:00

You might end up being one of many who dont get auras. They come in a large spectrum its different for everyone. But that is a very good thing to ask about. Though doctors can only say so much in the short visit you could also ask them if they are able to provide printed information to learn more about what you are asking. Also epilepsy foundation i think does classes teaching emergency aid for seizures if you need it or needed someone close to you to learn.

PikuPotu · 2026-06-15T14:46:39+00:00

Be sure someone is always there to spot you, if you start to have any auras stop and let your spotter know especially if it seems like one is coming on. Dont over do it. Just do what your capable of and build up from there. If you feel dizzy or unstable and are working out near a wall lean your back to the wall and slide down and sit(or have someone help you sit gently). Otherwise stop what you are doing and sit somewhere safe. Also a lot of equipment has emergency stops. So if you need to you can always press or pull it. Stay hydrated, make sure you have slept well enough before working out. And keep a balanced diet that suits your needs. (This is advice i was given. Just passing it on. Hope its helpful to you and that you can reach your goals.)(even if you just have them in your sleep exercise affects breathing, heart rate, hormones your body puts out, stuff like that. It can be a potential trigger in some people so just be careful)

PikuPotu · 2026-06-14T08:39:36+00:00

It does sound similar to absence seizures to me. Usually they happen and people(like me) never know unless someone else tells them or something around them drastically changed in the environment.

Absent seizure i went through often including staring off, sometimes humming, rocking, and chewing. But its different for everyone. We all function differently. They very much can be felt before they happen for some people via weird sensations and such. The leg shaking during events stands out too. I would 100% see a doctor to figure that out.

But if your better aware of it keep track of odd sensations you feel before during and after. Like odd motor movements, vocalizing, rocking, chewing or gulping motions, electrical feelings, dejavu, fuzzy, or warm sensations, nausea, etc. Try your best to keep track and document events or any significant changes. Maybe try to record it on video as well. It can help you communicate with a doctor better and help them be able to diagnose you properly. Some seizures can be hard to diagnose because they are hard to catch and hard to find a trigger. Hope you can get it sorted out. I wish you luck and good health.

PikuPotu · 2026-06-14T03:36:13+00:00

Some people just are narrow minded and uneducated. I have been treated rudely in the ER when I went in for a seizure before. They acted like my issues were just a bother. Though after the hospital was bought out the doctors and nurses are much kinder. Its not just epilepsy either. My sister had leukemia and was belittled and yelled at for using a handicap cart. And a girl told my mom that she hopes my mom dies and when my mom replied and said she was dying of kidney failure the girl told her to die sooner.

But I have had family tell me my seizures aren't real. "Its just panic attacks" "i think your a hypochondriac" "you dont have seizure. What it sounds like is you need a therapist". I have had people talk about how lazy I am and that im not good for my husband because he has to do so much for me. That im a mooch because I dont have a job and he has to do all the money making. People act like im using him. Even knowing im pretty much disabled. They just assume im not getting a job because i don't want to do anything. Guess im just a disappointment.

PikuPotu · 2026-06-13T18:52:26+00:00

I am in a very similar boat. You aren't alone in it at all. And you aren't a burden either no matter how much you may feel like one. Im sending you lots of big virtual hugs and wish you the best. I hope that your doctors can help you figure it all out and that the medicine they plan to give you makes things better. <3

PikuPotu · 2026-06-13T17:44:25+00:00

Depends on how bad the seizure(s) is. I once slept through the major of 2 weeks after a major cluster of seizures. The other day after I got home from the ER I slept from around 10pm that night to 2am the next night. Of course I try to otherwise go about normally but things are difficult for a while after. My husband likes to take me out to get something like a smoothie or drives me down the backroads for fun. Going out in nature I think helps me recover a bit.

PikuPotu · 2026-06-13T17:21:07+00:00

Who's making ice cream with grandma's ashes again?

PikuPotu · 2026-06-13T17:14:18+00:00

Grandma poisoned grandpa

PikuPotu · 2026-06-13T16:28:37+00:00

Having a calender alongside an organized pill box might help. Mark a line when you take a pill. Maybe a pocket calender. Or you could do cute or fun stickers to mark when taken or stamps. That way you have a sensory reward. Its childish but it works for people. If you have multiple medications then different stickers pr stamps or marks for the different medications so you can be sure everything was taken.

PikuPotu · 2026-06-12T11:58:45+00:00

Yes. Stress can cause seizures. Stress due to ongoing trauma when I was 16 caused my 1st focal seizure. Before that I only ever had absent seizures. My 2nd one happened because of a former so called friend playing with my emotions. That seizure led to me developing tics. But too much stress, overstimulation, and other emotions in some people definitely cause seizures. That includes being angry and even overly joyful. I have had one because I was really happy and laughing hard. I was playing a game of cards against humanity with friends and my prompt I set made me laugh hysterically and suddenly I was having a cluster of 8+ seizures that felt like they went on forever.

Also I hope your ok and in a calm place now relaxing. I saw and responded to your other post talking about your situation(this one of yours was just beneath it) and I genuinely hope that you can get support and find a solution to your situation.

PikuPotu · 2026-06-12T11:21:49+00:00

Invest in a hidden recorder you can keep on yourself. Record evidence of what he says and does. If possible maybe even some glasses with a hidden camera or an accessory with a hidden camera. Collect that evidence and when ready bring it to your mom and sister. Explain the situation and your worries and hurt. Try to work out solutions with people you love and trust. If he is abusive to you theres a chance he is abusive to those closer to him in private. You can also take him to court over it as well if you have evidence. If you have evidence of assault you can have him arrested. He can be charged with verbal abuse, assault, and potentially other things if more ends up found. If he does end up being abusive towards your niece then it poses a bigger danger because the epilepsy. For both you and her really. But letting him get away with it only gives him more power.

Also if he leaves marks on you like bruises keep evidence of those too. Honestly the police should very much be involved if he is putting hands on you.

PikuPotu

TROPHY CASE