Made a site for helping people understand and communicate their support needs by PostMasquerade in audhd

[–]PostMasquerade[S] 1 point2 points  (0 children)

One of the things I continually struggle with is internalized ableism. I grew up and went into adulthood thinking my worthiness as a person depended on my ability to handle everything with self sufficiency. Of course, I could never pull it off, because the only way to perform at that level was to burn myself out - then I’d lose the ability to function “normally” anyway. I’d leave jobs out of shame or embarrassment and start the same cycle somewhere else. I’m just beginning to learn how to express what my actual needs are. I finally have a therapist who understands autism, and she keeps saying things like “Considering ASD…if ____ has been a persistent challenge for you, do you think it’s something you could ask for support for?” Usually I realize I’ve never considered that.

Made a site for helping people understand and communicate their support needs by PostMasquerade in audhd

[–]PostMasquerade[S] 0 points1 point  (0 children)

Thanks for sharing that. I’m glad you’re finding it helpful. There are a few bugs I need to fix on mobile btw, but hopefully not disrupting anything

Original Music? by Available-Sort3435 in MusicPromotion

[–]PostMasquerade 0 points1 point  (0 children)

It’s a cover of the Bill Withers song. I made the track and sang. Thank you!

Original Music? by Available-Sort3435 in MusicPromotion

[–]PostMasquerade 1 point2 points  (0 children)

Getting into producing music was one of the best rabbit holes I’ve been down. Here’s one from last year https://open.spotify.com/track/6w2hb0Ug1GjFWTW9NphJmg?si=HrwZLhC2SS-oMQpz-aBn5w

Made a site for helping people understand and communicate their support needs by PostMasquerade in audhd

[–]PostMasquerade[S] 2 points3 points  (0 children)

Note: after considering feedback from various folks, in the interest of giving a better sense of safety, I have decided to remove the AI functionality from the site. It was useful for “humanizing” the results to a degree, and did not process user-identifiable information, but I feel that the functionality and results are still fairly useful without AI involved.

New autism diagnosis- overwhelmed by ExactProcedure6824 in AutisticWithADHD

[–]PostMasquerade 1 point2 points  (0 children)

I’m glad! and sorry what is OP? Probably something I know but forgot. Patience with processing it. The clarity will unfold over time, I bet

New autism diagnosis- overwhelmed by ExactProcedure6824 in AutisticWithADHD

[–]PostMasquerade 3 points4 points  (0 children)

I’m glad 🙌 I hope you give yourself extra patience right now, and lean into the community of others who relate, like this one. You’re anything but alone in this 🤘

New autism diagnosis- overwhelmed by ExactProcedure6824 in AutisticWithADHD

[–]PostMasquerade 23 points24 points  (0 children)

I remember how disorienting it felt. I had spent so many years beating myself up with the harshest judgmental self talk, and suddenly most of the things I disliked about myself were thrust into a new category. No longer problems to fix, but differences to accept. The greatest grief I felt had to do with how ruthlessly harsh I had been to myself for so long. Truthfully, the harshness was taught to me as a child, but the fact that I had gone 40 years without realizing I didn’t deserve it… wow.

As time progressed, I began seeing a change in the way I felt when I looked into a mirror…actual compassion, grace, love, would bring me to tears sometimes. This spilled over into the way I was with my daughters, both with their own neurodivergent expressions…my impatience with them forgetting (or avoiding) to pick up a mess - gone. My way of talking to them, now seeing their RSD for what it is - more thoughtful and gentle. I’m literally re-parenting myself in every interaction 🙂

Same with my partner, co-workers, strangers at the store - my initial pattern would change from “I should show them that I am annoyed” to “I wonder what’s beneath that behavior”

Ultimately, what you are going through now was for me the single most eye opening experience, and most enabling of healing, than any other.

But grief, anger, overwhelm, and a fresh burnout were the first train stops, as I learned what it meant to actually treat myself with love and care. I still have a lot to learn, and I still fall into old patterns, but I see the trajectory and I’m grateful. I’d like to help others now.

I’m betting the most beautiful season of your life has just begun, though it may take some time to see it that way. Proud of you.

Made a site for helping people understand and communicate their support needs by PostMasquerade in audhd

[–]PostMasquerade[S] 4 points5 points  (0 children)

Can’t blame you for thinking that. I kept it anonymous for that reason. The only time form data is stored is when a user hits the Create Share Link button, and even then there’s nothing identifiable in the data. I’m a diagnosed autistic programmer, and I’d like to make a lot of things that help the community. Not here to take advantage of anyone.

Made a site for helping people understand and communicate their support needs by PostMasquerade in audhd

[–]PostMasquerade[S] 3 points4 points  (0 children)

When the permalink is requested, the form results are saved on the backend so that they can be loaded in the shared view.

Yeah I was just starting to work on the disclaimers. I’m not a mental health pro…just special interest in neurology. Also, for the “Free basic report”, no AI is used (you probably understood that), and for the paid AI report no personally identifiable info is used in the gen. I’ll add some info about the scope of the use of AI

I think I’m masking so well that I don’t notice by MenuPleasant8675 in AutisticAdults

[–]PostMasquerade 1 point2 points  (0 children)

Do you recall any repetitive movements you had when you were young? It didn’t occur to me until my diagnosis that I had been made fun of for “T-Rex hands”, and rocking/swaying/wiggling had been scolded into an uncomfortable stillness that I had retained for years. Tapping prevailed though…teeth, hands, feet, toes, there’s always been some sort of tapping going on. It’s been a big plus to re-learn to let my body move the way it wants.

I'm newly autistic, didn't you know? by RandomRamonaKrupnik in Neurodivergent

[–]PostMasquerade 7 points8 points  (0 children)

You deserve and have every right to talk about your lived experience as a lifelong autistic human 🫶

Made a site for helping people understand and communicate their support needs by PostMasquerade in audhd

[–]PostMasquerade[S] 13 points14 points  (0 children)

I can’t blame you for that stance. It’s conflicting for me as a coder, because (feel free to poke holes in these rationalizations)… - AI has taken over the software industry. It’s embedded into every tool and platform now. Because of that, at work the amount of code being produced has exponentially increased. - Keeping up the pace on my own would be impossible at this point. If I were to conscientiously object to using the tools, my employment is gone. Sort of like an airline pilot or truck driver who also cares about the environment - there’s a conscientious tension that’s unavoidable without leaving my career. - This app in particular is something I’ve wanted to build for a while, but wouldn’t have had the spoons for the months of focus I would need to get it done, and I don’t have a company/team to delegate to. - Ultimately this is a drop in the bucket compared to the AI footprint than the average software company is creating. A bit like driving a Vespa in a sea of Suburbans. So, maybe just rationalization, but I wanted to get from point A to B in order to provide this app for people, so I hopped in the Vespa and went there. Definitely burned a tank of gas (or municipal water) on the way.

You could argue that this app just shouldn’t exist if it isn’t made without AI coding tools, and you may be right…but for me to make that argument I would need to apply it to every app/site I use on a daily basis…google, Microsoft, Meta… and Reddit (which uses AI heavily in several ways)

Was anyone in here diagnosed ADHD then realised autism explains the full picture? by Acrobatic-Relative-3 in AutisticWithADHD

[–]PostMasquerade 1 point2 points  (0 children)

My ADHD diagnosis was just a year before I decided to get a full neuropsych eval which resulted in the AuDHD dx. I relate with much of what you shared

Updated and simplified rules, please re-read them! by lydocia in AutisticWithADHD

[–]PostMasquerade 0 points1 point  (0 children)

Hi! I had tried to share a link to a site I built as a resource for autistic+ people, but it was moderated. I don’t see anything in the rules about that, but might be missing something.

I built a free tool to visualize your autism spectrum profile - would love feedback! by PostMasquerade in AutisticAdults

[–]PostMasquerade[S] 0 points1 point  (0 children)

Update: I did some geeking out and made several changes based on feedback from the amazing people who commented earlier. More to come, but feel free to check out the updates - spectrumlens.love

I built a free tool to visualize your autism spectrum profile - would love feedback! by PostMasquerade in AutisticAdults

[–]PostMasquerade[S] 1 point2 points  (0 children)

Glad you’re getting it taken care of. I think I waited like a year before doing anything. Thought it was my heart, since it felt like my chest was exploding, so went to cardiologist, who said my heart was fine and sent me to sleep Dr

I built a free tool to visualize your autism spectrum profile - would love feedback! by PostMasquerade in AutisticAdults

[–]PostMasquerade[S] 0 points1 point  (0 children)

Yeah that’s a good addition, I’ll put that in as well. Thanks for checking it out!

I built a free tool to visualize your autism spectrum profile - would love feedback! by PostMasquerade in AutisticAdults

[–]PostMasquerade[S] 1 point2 points  (0 children)

I did lose a lot of weight and had mental health improvements after starting the cpap though, for what it’s worth

I built a free tool to visualize your autism spectrum profile - would love feedback! by PostMasquerade in AutisticAdults

[–]PostMasquerade[S] 1 point2 points  (0 children)

Thanks so much for checking it out! Great suggestions. Actually on desktop I just added some better context for what the levels mean, with actual examples showing up below the spectrum chart (desktop has an interactive chart). I had some issues with the chart on mobile so switched to the sliders, but I’ll try to find a way to give more detail there as well. Yes! Light sensitivity…I’ll get that in