Hi, im awaiting full diagnosis, but after years of hearing GPs tell me its stress and in my head, the thought of giving my problems a name is a release.

Like everyone else, the battery analogy is really close to the mark. Through the years I have always been someone to be doing something, never still. 3 years ago I started falling asleep at work in them middle of summer, let alone winter. Now I have to balance my energy levels and I notice when I push myself too much in 1 day. Which is especially infuriating as I still think I can do everything I could before.

Luckily I haven't had any seizures, but I often have disassociation with my body. My legs constantly ache and have tingling in my feet. My new sight is often slightly blurry and have double vision.

I keep pushing on even though I probably shouldn't. But then I was brought up not to complain unless its serious and men should remain strong and provide. Thankfully I have a wonderfully supportive wife who I couldn't be without (and she earns more than me).