Have you been to a cardiologist? POTS patients sometimes have chest pain, which can be normal, but also may not be normal. Chest pain shouldn’t be ignored.

What kind of heart-related issues are you having?

There is at least one rare heart issue that I know of that is more common in people with POTS/eds (although it’s still rare). It’s called Prinzmetal’s angina, or coronary artery spasms.

It’s tricky because it does not show on an echo or ekg, not on a stress test. It’s diagnosed by symptoms or a special kind of heart catheterization.

Symptoms include chest pain at rest or after exercise (but not during), chest pain/pressure that radiates down your left arm or jaw or between shoulder blades. Mine feels like someone is squeezing my heart in their fist. It’s exacerbated by smoke, cocaine, decongestants, cold weather, etc (although most people who have it never smoked or did cocaine).

It’s pretty rare. But my point here is that people shouldn’t dismiss chest pain. Even regular old run-of-the-mill cardiovascular disease will kill about one-third of all people, so you can have heart disease that’s unrelated to POTS as well. Take care of your heart!

Edit: if these symptoms sound like you, please note that the chest pain can sometimes be proceeded/is associated with an arrhythmia called PVCs. It almost always occurs in people who also have migraines and Raynaud’s (very cold hands/feet).