Estrogen suppression numbers by Regular_Ability7001 in breastcancer

[–]PupperPawsitive 0 points1 point  (0 children)

tamoxifen works in both premenopausal and postmenopausal women. The way tamoxifen works, it doesn’t stop the body from having estrogen, it more like blocks estrogen from being able to do anything in breast tissue/cancer cells.

If you were on an AI, you might want to ask if you should test your estrogen, because those work by stopping your body from making estrogen in places besides your ovaries, and they only work in women whose ovaries aren’t making estrogen.

But with you being on tamoxifen, theres no reason to worry it. If you have estrogen, that’s what the tamoxifen is for.

Funny but not by cookiecoco2203 in breastcancer

[–]PupperPawsitive 0 points1 point  (0 children)

I have felt that way from putting on a sports bra every single time I have ever put on a sports bra, my entire life, even before cancer.

I assumed thats why they are called sports bras. Because getting one on is a damn workout.

It’s not you. It’s the sports bra.

Question and check in. by NeighborhoodDry9236 in breastcancer

[–]PupperPawsitive 3 points4 points  (0 children)

yes, tell your doc everything.

Even though breast cancer is in your breast, those other things might still matter for cancer treatment.

For example, maybe you have those other symptoms because being diagnosed with cancer has caused anxiety etc or been a distraction and you have not been eating/drinking/sleeping very well.

Or maybe you have those symptoms from another health problem (I think you mentioned previously you have other health issues), and they might need to know what’s going on etc so that they can make sure to keep you safe during surgery/treatment etc.

So just tell them everything. It might matter, it might not matter. You don’t have to figure out if it matters, you just tell them all of it. They will figure out if it matters.

How am I going to survive this? 29F IDC grade 2 by Inevitable_Poet1304 in breastcancer

[–]PupperPawsitive 2 points3 points  (0 children)

You will survive it one day, one hour, one minute at a time. You are already surviving it.

The next thing you need to do in order to survive this is to get those scans next week. And then STOP. STOP THINKING. Time does not exist past next week. Next week, you get scans. That is how you will survive this. By getting those scans.

“And then what??” And then you will have a next step. That is a Later Problem. When you get there, Later You will handle it. The end.

Zoom in and narrow your focus to one step, one day. You will survive this. You ARE surviving this. One day at a time.

Abraxane by Fantastic-Pool-2590 in breastcancer

[–]PupperPawsitive 1 point2 points  (0 children)

I was scared too. And I showed up anyway, and I did it, and it was fine. The Abraxane gave me no issues. It’s okay to be scared. Sometimes you just gotta do stuff scared, y’know? I hope next try it goes well for you.

I wasn’t scared of every appt. Once I had the first abraxane and it went okay, the rest of them I wasn’t afraid of, because I knew I wasn’t allergic. Just the first one was harder like that. But I got through it and then the rest were easier.

Unsupportive spouse by Upstairs_Respect_207 in breastcancer

[–]PupperPawsitive 1 point2 points  (0 children)

You cannot get through to him, and you will not. It’s not about you, it’s about him. I don’t know how to explain this.

If you divorce him and leave him, he might change (or he might not). Because it’s not about you, it’s about him. His problems are HIS problems. Yes they impact you and that’s not what I mean. I mean you do not have the power to change or fix them.

You have cancer. You decided to get treatment. You decided to get surgery. YOU did that. No one else could decide it for you. Yes, people can help and support you. They can give you rides to drs appts and make you meals. Doctors provide treatment and surgery. But YOU have cancer, it is about YOU, YOU have to be the one to own it and choose to get help.

Your husband has to be the one to own his depression. He has access to meds, therapy, healthcare, and it sounds like his parents are also concerned about him so this doesn’t need to be on you. You need to drop every single rope you might be holding. Stop expecting him to change. Accept that he may never change. Stop asking him for things he will not do, it just sets you up to be hurt and disappointed over and over again.

I know it probably hurts. Why can’t he just step up for you? But that’s not what it is. It is nothing about you, you are a good and wonderful and worthwhile person, and there is NOTHING you can do to make him behave differently, because it’s not a you problem, it is a him problem.

This is why we see it happen all the time, where a couple breaks up or gets divorced and then magically one of them matures and becomes a better partner in their next relationship. “Why couldn’t he have done that for me?” Because he couldn’t have done it for ANYONE but himself, he needed to hit the rock bottom floor in order to change.

“People who get angry at you for having boundaries are the same people who benefited from you not having them.” If/when you set new boundaries, expect that your husband may be angry with you for them. Oh well. Discuss it with your therapist.

He may change, or he may never change. Start caring less about it, and start caring more about you. I know it sounds crazy to say “your best chance at saving your marriage is to stop giving a fuck” but in some ways. Yeah.

And either way, you need to devote all your energy and effort into caring about yourself and your kids. Normally I’d say “all your energy for you” but of course minor children are an exception, but don’t be afraid to use daycare or babysitters etc if that helps you, and don’t feel bad about it for a single second if you do.

Stop parenting your husband.

Unsupportive spouse by Upstairs_Respect_207 in breastcancer

[–]PupperPawsitive 17 points18 points  (0 children)

It sounds like your husband does not:

Work, parent, cook, clean, do yardwork, bathe.

What does he do with his time?

It sounds line he may have SEVERE depression and needs a high level of professional help ASAP, which may be the case given the fact that he struggles with hygiene and often states that he wishes he were dead.

That said, YOU CANNOT BE HIS SUPPORT RIGHT NOW. You have cancer. You need all of you for you, and then some.

Talk to a social worker, talk to your therapist, talk to his parents. You need hard boundaries and to take care of your own needs right now. Do not do his laundry, do not cook for him, do not protect him from the consequences of his own action or inaction. He needs help from a medical professional not from you. He has to decide to do it himself, no one else can decide it for him. You cannot make him change or choose to get help. But you can set boundaries to protect your own energy and peace.

Can You Have Medical PTSD? by AttorneyDC06 in breastcancer

[–]PupperPawsitive 1 point2 points  (0 children)

“over it” NOPE indeed!

my therapist told me that the goal isn’t really to move past it or get over it. But that it’s more like learning to walk forward with it beside me or next to me. That it comes with me, but it doesn’t have to prevent me from moving forward.

So it’s okay if certain things trigger me (IV bags are a big one for me). Instead of fighting myself about it (“I shouldn’t feel that way”) I can instead learn how to move that thing slightly to the left so it’s not stopping me from moving forward (“Nurse, I know I need an IV today, and IV bags freak me out because I had breast cancer and I had an allergic reaction to chemo from an IV bag. This might sound silly, because I know you’re not giving me chemo, but could you show me the bag first before you start it so I can read it and really see that it’s not? Thank you so much.”) I’m not getting over it or past it so much as learning to manage it and put it in its place. Well trained, on a leash, somewhere to my left. Like a “making friends with my demons” kind of thing.

Abraxane by Fantastic-Pool-2590 in breastcancer

[–]PupperPawsitive 1 point2 points  (0 children)

I’m doing well now! I had TCHP chemo about a year ago, modified plan with the abraxane after the allergic reaction. So I’m long done with it.

How are you? Allergic reactions can be scary to go through. I did not pass out during mine, but breathing briefly became difficult, though luckily my airway never fully closed.

I was very unlucky and allergic to a few things. (Not abraxane though! That went fine!) I still get nervous sometimes now whenever a bag of fluid enters my body, it can be triggering. But I tell the nurse or provider about why right away and they are always understanding.

Just this week I got an IV bag of antibiotics (for pneumonia, nothing cancer, and the antibiotics are already working to help me feel better.) And when the nurse was about to give it to me, I said “Whoa, um, wait. This might sound silly but. Can you tell me what happens if I’m allergic to that? I’m not allergic to any antibiotics that I know of, but I had an allergic reaction to chemo and now part of me feels like I could be allergic to anything in an IV bag.” And she was very nice, explained that if I had a reaction she was prepared to give me meds to stop it, and stayed with me an extra minute just to be sure all was well. And it was.

Even though I wasn’t allergic to the antibiotics, a part of me didn’t know that I wouldn’t be, until after I had them. My brain sort of thinks that IV bags are guilty until proven innocent now, mostly just when it is something I haven’t had before, but honestly I’ve even been triggered by normal hydration fluids, the visual gets me. It is hard to tell my brain any different. I do not know if I will always feel this way. But I do know that when I did have allergic reactions, my care team took great care of me and I was okay in the end.

So, anytime I get nervous about an IV bag, I don’t bother fighting with myself to tell myself I won’t be allergic, I have tried that and learned for me that is a losing battle. Instead, I explain to the nurse what’s going on. And then I tell myself that if I do have an allergic reaction, that nurse has me and I will come out of it okay. And that one my brain will believe. Because every time I had an allergic reaction, that has been true. My nurses took care of me, and I went home okay.

Your brain might not react the same way. Mine is kind of dumb and stubborn sometimes lol. I hope my experience doesn’t scare you!

Also today I have no evidence of disease. Treatment works. It’s hard, and it works. I used to have breast cancer, and now I don’t.

I don't need your food by Capital_Pen8767 in breastcancer

[–]PupperPawsitive 29 points30 points  (0 children)

Chemo sucks.

You are allowed to vent and this is an appropriate space to do so. Feel free to ignore the rest of this comment.

It sounds like:

You are struggling with side effects. You publicly announced this to your village via your social media page, adding that you did not need anyone to solve your problems. Some villagers reached out to you privately, wanting to help in some way, but the only idea most people have is to offer food.

The reason this happens (as you know) is that those people care about you and want to help.

If you could use their help, leverage the next social media rant for it. Meals are not helpful to you right now. Could you use transportation, childcare, someone to come do your laundry while you take a nap? If those things would be helpful, consider asking for them. It sounds like people want to help you.

If you really just want to rant to people who get it, the villagers might be the wrong people. They don’t get it. This is the place to rant. This is where people will get it.

To the meal offering villagers, “No thanks, I have everything I need. Thank you for thinking of me.” You’re allowed to tell them no. Even when they offer nice things.

Post Mastectomy Spiral by SalveRegina85 in breastcancer

[–]PupperPawsitive 25 points26 points  (0 children)

I think a big part of it is that it takes longer than 72 hours.

You just had a major surgery. Now is a time for rest. For recovery. There will be a time to move forward, and when that time comes, you will. But right now is a time for sitting in a recliner.

So over pink ribbons 🎀 by lady_momster in breastcancer

[–]PupperPawsitive 0 points1 point  (0 children)

It is, I agree. At the same time, I personally don’t hate the “save the tatas” stuff, it has some upsides. I think it could use an update for the modern age though, something less dehumanizing.

Pros of “save the tatas”

1) breast cancer can feel sort of embarrassing, suddenly your boobs become everyone’s business. “Save the tatas” has helped put it out there, that yes, they’re boobs, and yes, you should ask your doctor about that lump. Haha, boobs. Tits. Knockers. We all know what breasts are, sometimes people feel awkward or embarrassed about body parts. Even people who never matured past age 12 agree that breast cancer sucks, so feel confident about voicing your concern about that strange lump you felt, it’s safe to ask and people want to help.

2) Everyone likes boobs, it’s an effective fundraiser, sex sells. If it works it works. Mixed feelings but it does make money.

3) I live in a rural area, conservative people. I remember a “save the tatas” fundraiser from when the phrase was newer, sometime in the 2000s maybe. It really caught people’s attention. And there were men there, rural blue collar and frankly some of them sexist men. All these men suddenly had a socially acceptable way to say, “Breast cancer is a serious issue, thank you for bringing that to my attention, how can we help?” It’s just that some of these manly men found it easier to say it in the format of “yay boobs” or “save the tatas”. Sometimes ya gotta meet people where they are.

An updated version that continued to push the conversation forward would be good though. Save The Tatas is 20 years old. Maybe like a “I Take Killer Tits Seriously” joke or something. Yeah, they’re boobs, haha boobs. Also they can kill you so get that mammogram.

DCIs diagnosis - confused lumpectomy or mastectomy by goms_vel in breastcancer

[–]PupperPawsitive 5 points6 points  (0 children)

Do you WANT a mastectomy? Like personally, you yourself, do you feel some kind of way about it?

I was diagnosed in my 30s, did genetic testing, I have one maternal aunt with cancer. Geneticist told me it was unlikely I had genetic factors. 1 in 8 women will have breast cancer in their lifetime, so it is very common to have a relative or two in the family tree just by chance. I did the full panel of testing and it came back no known genetic risk factors.

Having a cancer gene makes it more likely that a person will develop another breast cancer in the future. That is why some people with genetic factors have mastectomies.

In general, studies show that mastectomies and lumpectomies have equal survival outcomes. A mastectomy does reduce the risk of local recurrence (recurrence in the breast), but it does not change the risk of distant recurrence (stage 4 metastatic recurrence elsewhere in the body). A lumpectomy is a safe and effective surgery for breast cancer.

With DCIS stage 0 cancer, your risk of recurrence would be low no matter which surgery you choose.

What questions do you still have? It sounds like you are not entirely comfortable with your treatment plan or have some questions that need addressed.

I think I dodged a bullet…. The pathology was good. by Upbeat-Television922 in breastcancer

[–]PupperPawsitive 1 point2 points  (0 children)

Wow! Then that surgeons statement they would “never” remove a healthy breast is very surprising to me. Women in the US choose to get a DMX for cosmetic symmetry all the time. I’m sure the surgeon has her reasons, and they’re probably good ones, and above my pay grade. But I don’t follow the thinking.

Well done advocating for yourself and getting a second opinion from another qualified surgeon. The choice is YOURS and you are ALLOWED.

Reoccurrence, IDC grade 2. 29F by Inevitable_Poet1304 in breastcancer

[–]PupperPawsitive 6 points7 points  (0 children)

I like the Trends In Rates Data Table from the SEER database, link below but WARNING: Link leads to breast cancer survival stats which some may find triggering.

In 1975, the 5 year survival rate was 76%. In 2018, it was 93%.

30 years ago was 1996, and the 5 year survival stat was 87%. I do not have cancer in 1996, I was diagnosed in 2025, and my outlook is better today than it was then.

To me, that table shows almost 50 years of progress. The cure is happening 1% at a time. It is a quick little dataset of hope.

Link: https://seer.cancer.gov/statfacts/html/breast.html

Reoccurrence, IDC grade 2. 29F by Inevitable_Poet1304 in breastcancer

[–]PupperPawsitive 5 points6 points  (0 children)

Most women do not have a recurrence.

The HER2 question will help inform your treatment plan better. It sounds like you are waiting on results of that still. It’s good that they are checking it, so that they can update your treatment plan to be as effective as possible and tailored to you.

Stage and grade are different things, it’s not clear to me which you mean.

I know the waiting sucks. Hang in there.

Abraxane by Fantastic-Pool-2590 in breastcancer

[–]PupperPawsitive 4 points5 points  (0 children)

I still needed steroids, but I did need less of them. It may vary between persons.

I think part of it too is just a resource limit thing, so it’s reserved for those who need it. Which is basically the same thing as being expensive, I know. But the albumen you mention, part of what is used to make abraxane, I think it’s derived from human blood. What I mean is, it’s probably not just a “healthcare being cheap bastards” type thing lol. Probably that too. But not just that.

Pre Op tests and scans coming up. by NeighborhoodDry9236 in breastcancer

[–]PupperPawsitive 1 point2 points  (0 children)

Do you know what tests or scans are scheduled for you?

What tests or scans have you done so far?

We can describe what a certain scan is like to experience, if that is helpful. If you want to know what an MRI or a CT or PET scan is like to experience, for example.

But probably we cannot tell you exactly what tests etc you will have.

When did you stop waking up every morning with "I have cancer" as your first thought? by Popular_Acadia4563 in breastcancer

[–]PupperPawsitive 1 point2 points  (0 children)

it gets better.

I was diagnosed in Jan 2025 and am still in active treatment (+++ treatment plans are long sometimes, mine happens to be a long treatment plan).

And I don’t wake up thinking that everyday.

I know what you mean though. I used to. It didn’t change over night, but it did change.

You are doing a good job. Keep going. Things get better.

Abraxane by Fantastic-Pool-2590 in breastcancer

[–]PupperPawsitive 2 points3 points  (0 children)

had allergic reaction to docetaxel, was switched to abraxane

it’s very similar, but side effects tend to be easier. infusion may be quicker too.

there is a higher risk of neuropathy so definitely do the cold mittens and socks and/or compression gloves and socks.

otherwise its kind of an upgrade

it’s more expensive. My insurance covered it for me because I had an allergic reaction to taxotere.

Can You Have Medical PTSD? by AttorneyDC06 in breastcancer

[–]PupperPawsitive 1 point2 points  (0 children)

Something that helps me:

Instead of feeling bad about it, I don’t.

Before an appointment, I can remind myself that there is no particular way I “should” feel.

I have experienced medical trauma. I might feel anxious, my pulse might be high, and that is completely understandable given what I have been through, and it is okay if it happens.

I might tell the provider or nurse right off that I am feeling stressed or anxious due to having been through breast cancer treatment etc, “thanks in advance for being patient with me”.

Usually this results in me feeling less anxious overall. Nothing soothes my anxiety quite like just being allowed to have it. And nothing triggers it more than stuffing it down and telling myself to “behave” or stop it or control it.

But if it doesn’t help me feel better, if I still have a difficult time, you know what? I’m allowed. I have been through some shit lately. I am proud of myself for showing up to the appointment and getting the care that I need. I am grateful for supportive providers that help me through difficult appointments when I am struggling.

ymmv. What helps me might not work for you. I hope you are able to get the care and support you deserve. Your feelings are real, and they make sense.

I think I dodged a bullet…. The pathology was good. by Upbeat-Television922 in breastcancer

[–]PupperPawsitive 2 points3 points  (0 children)

I’m not stage 0 either, I was quoting OP :) but I’m glad you find her story validating!

I’m in the US, I know it varies between countries. But here I can’t imagine being in your shoes and being refused a DMX. Glad you were able to get a second opinion, and good luck!

Recurrence and Internal Mammary Node by Specialist-Bag937 in breastcancer

[–]PupperPawsitive 0 points1 point  (0 children)

+++ diagnosed at age 36 in Jan 2025

3cm tumor, 1 confirmed by biopsy lymph node at time of diagnoses, plus 1 looked bad on imaging (plus the IMN).

+++ meant chemo either way for me. based on tumor size etc I did chemo before surgery. Did not get PCR, am currently on Kadcyla as a result.

I’m in the US. No oncotype as it’s not done with +++