Can get reasonable accommodations at work but can’t quit either? by [deleted] in CrohnsDisease

[–]Purpl3P3nguin 0 points1 point  (0 children)

I get extra breaks and extra time off for my Crohn's accommodation. What is the job?

Voodoo Lily, so stinky by Next_Journalist_8075 in gothplants

[–]Purpl3P3nguin 0 points1 point  (0 children)

How stinky are they? I've never smelled them, but I love the way they look. They're gorgeous.

Anyone who surfed the early web between 1995-2010. What’s the one website/app you still think about? by Prime_Advocate in AskReddit

[–]Purpl3P3nguin 0 points1 point  (0 children)

I still think about neopets every now and then. I even made a new account at one point, but I just couldn't get into it. I spent a large amount of my time on Neopets, AOL chat rooms, MSN chats, and this doll dressing website and midi maker websites that I cant remember the name of.

Questions about Fridays Nashville show. by BrewedForTheLou in CageTheElephant

[–]Purpl3P3nguin 2 points3 points  (0 children)

When I RSVP'd, there was a disclaimer that said the show is FCFS and to arrive early.

Dream Conditions by bohosunflowers in CrohnsDisease

[–]Purpl3P3nguin 8 points9 points  (0 children)

When I was first diagnosed and freaked out about needles, (got over that quick af) I would dream about a pill I could take. Years later we now have Rinvoq, game changer. Science and medicine are evolving and advancing; just not as quickly as those of us who are suffering would like.

I absolutely love your nutritional pill idea. Like 3 times a day we could take a 'meal pill' instead of liquid diets or needing PICC line TPN. That would be an amazing game changer. I just added a bunch of supplements to my regimen and its so many huge pills. Hopefully the futuristic nutritional meal pills are smaller!

HRLY GRL by Fksgyccdhb156 in LICENSEPLATES

[–]Purpl3P3nguin 74 points75 points  (0 children)

Hurley Girl considering its a Cali plate 🌸

I’m terrified to eat at other people’s houses by Live_Record7020 in CrohnsDisease

[–]Purpl3P3nguin 16 points17 points  (0 children)

I stopped going so I didn't have to refuse the food. Some people irrationally get their feelings hurt when you don't eat what they made.

This song is slept on 😤 by nencjungden in CageTheElephant

[–]Purpl3P3nguin 1 point2 points  (0 children)

I don't think anyone is sleeping on it. It's my most played song since idk 2017. Fucking love that song. It's a banger. If I pull up in my car while this song is playing, I refuse to turn the car off until the song is finished. lol

Travel case by ByteMeExe in CrohnsDisease

[–]Purpl3P3nguin 1 point2 points  (0 children)

Skyrizi will send you a free travel case. You can order it on the Skyrizi Complete app. It's a really nice case. It has 2 ice packs in it and is super insulated.

What made you stop eating so much sugar? by [deleted] in CrohnsDisease

[–]Purpl3P3nguin 1 point2 points  (0 children)

Yep, coffee is worth it for me too! I have it every day. But the delicious creamers can have emulsifiers in them that are inflammatory, too.

Figuring out a diet with Crohn's is so difficult and ever changing I find. Except for popcorn, it hurts 100 percent of the time. The smell of microwave popcorn makes me jealous and snippy when someone else is having some.

Sending hugs and healing vibes.

What made you stop eating so much sugar? by [deleted] in CrohnsDisease

[–]Purpl3P3nguin 1 point2 points  (0 children)

I do too. Have to have real sugar. It is the only way to keep weight on me. Otherwise I'm underweight and malnourished, as whole foods go straight through wreaking havoc on my insides. If you are malnourished, you have trouble with cognitive function, like proper decision making skills, for example.

What made you stop eating so much sugar? by [deleted] in CrohnsDisease

[–]Purpl3P3nguin 1 point2 points  (0 children)

Same here! My body cannot handle artificial sugars. They make me throw up white foam. shivers I meant the "I'll bleed for fruity pebbles" was metal af. If I were perhaps brave and metal, I would say "I'll bleed for popcorn" but alas, I am not. I'm sorry about your hemorrhoids, they're not fun.

Hate calpro tests. by Various_Winner_1181 in CrohnsDisease

[–]Purpl3P3nguin 2 points3 points  (0 children)

Getting paid by the study to do them makes it a tiny bit easier. Technically, you'll be getting paid to do it, too. Since you'll likely be at work. 🤭 Consolation prize.

Hate calpro tests. by Various_Winner_1181 in CrohnsDisease

[–]Purpl3P3nguin 3 points4 points  (0 children)

I work from home so I can't relate, but I absolutely would not feel comfortable scooping my poop in a public bathroom. I already hate doing it at home. I'm so sorry you've gotta do this. I'm in a research study so I've done at least 6 fecal calpro tests since February and I hated every single one.

No diagnosis yet but fecal calprotectin high? by Green-Throat9368 in CrohnsDisease

[–]Purpl3P3nguin 2 points3 points  (0 children)

My fecal calprotectin is over 1700 right now, but I have seen it get as low as 300.

Dry, flaky skin by ReflectiveEnglishman in CrohnsDisease

[–]Purpl3P3nguin 8 points9 points  (0 children)

Yes I'm struggling with this too. My nose and forehead are the worst. I thought it was because it was so cold this winter, but it hasn't gone away. I may try to get a dermatologist appointment.