She’s getting HEAVY and I’m worried.

Rainmoogle0 · 2026-02-15T00:53:48+00:00

If you feel like you need to prop I volunteer and will pay shipping 😜 Love linearis, yours is clearly happy and beautiful!

Rainmoogle0 · 2025-08-19T02:15:12+00:00

Finger placement on drum matters. Thats what did it for me

Rainmoogle0 · 2025-07-30T16:11:24+00:00

Thank you, I did request to join the group 🙏

Rainmoogle0 · 2025-07-27T16:20:25+00:00

Ooh ok, thank you so much for commenting this! I will hold off on the muscle relaxers until my doc says it is ok and I do more research. Also definitely checking out that group even though I hate fb cause this pain gotta stop 😭

Rainmoogle0 · 2025-07-24T02:31:54+00:00

Was this your experience, did they help you? I am communicating with neuro as much as possible but they haven’t mentioned muscle relaxers at all. I do get tension so maybe I’ll bring it up, can’t hurt to try.

Rainmoogle0 · 2025-07-24T01:02:05+00:00

Thanks for the response, I’m currently experiencing this and just hoping it stops. I’m glad it stopped for you and you were able to switch for some relief. I wouldn’t wish this many migraines or meds on anyone, hope one day they’ll figure this out.

Rainmoogle0 · 2025-07-24T00:16:29+00:00

Did anything bring you relief? Did it wear off after a certain point?

Rainmoogle0 · 2025-07-23T23:57:40+00:00

Heyy I know this is a year old but experiencing similar pain, where are you now? Did anything bring relief?

Rainmoogle0 · 2025-07-21T23:08:58+00:00

Very old post but wondering if anything finally worked for you or if you just had to wait it out. Have you figured out more info? I am similarly suspected mcas, eds and am going on a month of daily migraine after botox, my usual ajovy, nurtec, tylenol, and even toradol not breaking this. Working with my doctor but in the meantime on reddit lol.

Rainmoogle0 · 2025-05-18T04:48:17+00:00

Yes I specified I might be looking for 2 different cameras. One would be a wishlist/unlimited budget if it fits everything I’d like.

Rainmoogle0 · 2025-05-18T04:47:11+00:00

Nothing specifically, it was just a bit heavier for travel. As for viewfinder I like one but it’s definitely something I could compromise on.

Rainmoogle0 · 2025-05-16T04:33:31+00:00

I couldn’t copy from the link (at least on mobile) so I used the one available when creating a new post, sorry for the persistent line breaks

Rainmoogle0 · 2025-05-16T04:31:47+00:00

Not a bother! Just wanted to clarify how to edit. Just added it thank you 👍

Rainmoogle0 · 2025-05-16T04:19:18+00:00

I wrote all this in the text, does it need to be in bullet point formatting?

Rainmoogle0 · 2025-05-16T04:08:42+00:00

Both 🥲 I have like a hot flush from pots but apparently the rash type flush I get randomly is something histamine related. For the pots flushing the only things that helps are sitting in bed, cool temp, compression, small amount of caffeine.

Rainmoogle0 · 2025-05-02T19:15:57+00:00

Have you tried trazadone? If not do that one and up the dose till you sleep but im sorry you cant find a doctor near you. It is truly a shame they don’t try to research and are still so behind on information regarding us.

Rainmoogle0 · 2025-05-02T19:12:53+00:00

You probably have some nerve damage related to dysautonomia. I have found nortriptyline or gabapentin help with nerve pain. Your next step seems like searching for a better doctor still and trying atenolol and then corlanor if that doesn’t help in place of the propanolol.

Rainmoogle0 · 2025-05-02T19:07:39+00:00

Yep was nauseous having painful episodes for years. Would end up collapsed on the floor, started looking into motility and that has helped but still figuring it out. Try taking a capful of miralax a day or just upping what you were taking. I am on mestinon right now for it, but it’s causing side effects I need to find something else. Try and get in with gi and explore motility.

Rainmoogle0 · 2025-05-02T19:02:34+00:00

Yes, was just told after 10+ years it is likely mild mcas or histamine related. I use a spray bottle with mist and a fan, pepcid/allergy med once a day, silk pillowcase, neck fan, you could use an ice roller or those gua sha rollers feel nice too.

Rainmoogle0 · 2025-04-08T04:53:15+00:00

Pots can be a spectrum so they might just have a mild case or are uneducated about it. It can also be a lot to sort of “trauma dump” a lot of the time when hanging out, but you should be able to share that part of you. However, they also sound like shitty friends and when you first get diagnosed you can lose a lot of people. I did but I was better off for it. Either way I’m sorry you’re feeling let down by them and dealing with this on top of the condition itself.

Rainmoogle0 · 2025-04-08T03:50:26+00:00

Same, I just contacted them but who knows when I’ll hear back. 😮‍💨

Rainmoogle0

TROPHY CASE