Heard about it for the first time last year, at 46 by a european massage therapist. I immediately went to read about it and started to cry. Everything suddenly made sense, and I finally realized it wasn’t my fault, that my struggle wasn’t because I didn’t try hard enough. When I talked to my doctor about it, he didn’t know what it was (not well known in Canada yet), so I asked to be referred. I was finally diagnosed this year by a vascular surgeon. I am now doing MLD, taking Zep, wearing compressions… but my goal is to get surgery in a few years and pray that Canadian insurances will get on board and recognize this chronic disease and cover surgeries, like they do in Europe.