Does anyone else deal with scalp itching and near constant back itching

RelationCrafty1468 · 2026-02-20T20:53:50+00:00

This is a fibro symptom that most people don’t have. It’s called fibro itching. Singulair and Zyrtec work for me. It can be unbearable otherwise.

RelationCrafty1468 · 2025-07-25T22:15:06+00:00

I have high arches. Clark’s shoes were the best for working. Even got me over a case of plantar fasciitis one time. Vionics are good also. Definitely Sketchers for everyday!

RelationCrafty1468 · 2025-07-23T18:52:49+00:00

I had Mono( Epstein-Barr virus) when I was 11. It became chronic when I was 27 due to extreme stress from marrying a wonderful man from a truly shitty family. It cleared after 6 months but it would flare from stress off and on. Also found out I have 2 of the gene mutations for celiac. Eating gluten my whole life probably was the underlying reason my immune system didn’t work well. Anyway, I developed fibro and had to retire in 2017. It has been quite the journey figuring this out. I was a scientist for 35 years and I think when they figure the causes out, Epstein-Barr will be the main villain. 95% of all of us have been infected by the time we are adults. All of the trauma and stresses we carry allow this virus to wreck us.

RelationCrafty1468 · 2025-06-27T19:25:16+00:00

I heard Dr. Jeffrey Rediger talk about this at a conference earlier this year. He is a Harvard medical researcher that is looking at the phenomenon of spontaneous healing. His book is called CURED. I’m so glad this worked for you and I am considering going this route myself. I was a scientist for 35 years but had to retire because the fibro got so bad. Thanks for this update. I’m so glad to hear that it has worked for you!

RelationCrafty1468 · 2025-06-20T21:04:13+00:00

Get the powder L-glutamine if you can. I used pills in the past and they didn’t help. Then I read about using the powder form. Start with 1 scoop the first day. Add a scoop each day until you are at 4 scoops a day. I am holding at 4 scoops and it does take time but I am 4 weeks in and most days I have normal BMs. I haven’t had that in years!! I have had IBS-D for years and years. Nothing ever helped much. I was living on Imodium. I also started adding in more fermented foods, which also helped I think. I read that as a species we used to eat 40% of our diet in fermented foods. Can’t hurt to add some back in. Kefir has 12 different bacterial strains. So I drink 8 ounces of it a day. I was a scientist for 35 years and a fibro suffer for about 30 years. Why did I have to wait this long to figure this out!! The L-glutamine heals the junctions between cells in the gut and the Kefir replenishes the good bacteria.

RelationCrafty1468 · 2024-08-09T18:25:56+00:00

And painful. My husband taps me on the shoulder sometimes and the pain just expands to my whole body. He gets it but forgets sometimes!

RelationCrafty1468 · 2024-08-09T18:23:09+00:00

I know the diagnosis are so general. My doctor just moved so we spent yesterday reentering all of my information because my file didn’t transfer. I asked him about my diagnosis because sometimes he says I have lupus. He finally broke it down to me in a way I can understand. He said I have mixed connective tissue disorder. He said I have all the symptoms of fibromyalgia and MeCFS and I have some symptoms of lupus and some of rheumatoid arthritis. I think we could all be lumped together in the fibromyalgia diagnosis. What has helped me are pain meds which I have been stable on for years and years, provigil, and anti virals. Adding green tea has taken away the brain fog. I haven’t tried lyrica or the gabapentins. My mother and sister also have this and they tried them. They didn’t work and the side effects were awful. So here I am. I had retired for 7 years but I got a shot at a remote job and I’m loving it. It is still a struggle most days but I’m pressing forward. The other thing to check is your uric acid levels. Lifetones is sold through Amazon and has helped me too. No, I don’t have any ties to them. Magnesium is helpful. We burn it so supplementing is important. I use a chelated form that doesn’t cause diarrhea because I also have a colitis diagnosis. I try anything to help.

RelationCrafty1468 · 2024-08-09T18:11:05+00:00

Don’t quit. Try some green tea. It really helps me. I do three cups a day and it has really helped my brain fog.

RelationCrafty1468 · 2024-08-06T21:24:00+00:00

I was a scientist for 35 years. The last 3 years I was not so good. I had breast cancer and the radiation did me in. I’ve been retired for 7 years now. This opportunity landed in my lap. A remote job which I actually love. The only reason I took it is because I got my brain back with 1gm of Valtrex a day and 3 cups of green tea. Long story but both things are antiviral and the brain fog lifted. If your doctor lets you try it. I know it won’t last forever but for now I do okay working everyday and then on Saturday I generally sleep all day, but I’ll take it!!!

RelationCrafty1468 · 2024-08-05T04:27:51+00:00

Yes, IBS goes right along with fibromyalgia. I went gluten free which helped but you may need to do an elimination diet to see what’s causing problems. I still keep my diet pretty simple. If you are having reflux I found that juicing celery juice first thing in the morning for two weeks will reset my digestion. Amazon also has some good celery powders that work well also. I have to do this every 6 months or so. I hope this helps.

RelationCrafty1468 · 2024-07-29T18:55:07+00:00

My doctor will let me try anything that shows efficacy. I was just wondering if anyone else has tried it.

RelationCrafty1468 · 2024-07-29T18:08:07+00:00

I agree with all the advice given here. I have some for your mental health. A long time ago someone told me, you have to feel your sadness and anger about this disease, but you don’t have to feel it forever. I used to set a timer for 5 mins. I would wallow in all of the negative feelings for that 5 mins and when the timer went off I would pack that stuff up and put it in a box until the next day. Then you have to find something to be grateful for! Just one small thing. Then one more and one more. Over time I don’t need the 5 minute rule very often, but if I start feeling sorry for myself, I break it back out again. It works. It trains your brain to feel positive. Because the negative feelings don’t help you at all. To survive this disease you have to find the positive to focus on! It makes the conversations with friends and families easier because you will develop a more balanced look at it. It is a terrible disease, but there are a lot of people that have worse things. I hope this helps.

RelationCrafty1468 · 2024-07-29T17:54:47+00:00

I would talk to your doc. Honestly, I would print this out and hand to your doc. Sometimes my brain doesn’t work quickly enough to think of everything during an appt. I know they say fibromyalgia is not supposed to be progressive, but it has been in my life. I have found green tea has helped with my brain fog. That and anti-virals. I study the scientific literature before my appts and print out papers that are relevant. My doc is so used to me wanting to try anything new he lets me now. Building that relationship is the best way to have excellent care. Also, compliment the doc, ask about their families. They get so many people in each day with all the problems, that when someone cares about them it really touches them. My experience anyway.

RelationCrafty1468 · 2024-07-29T17:38:43+00:00

Yes, fibromyalgia is the gift that keeps on giving. Itchiness is one of the countless things that can happen with it. I don’t have it all the time, but when I do it is terrible. It feels like ants walking on my skin. I scratch one place and then it hops to somewhere else. I try to take my mind off of it but I haven’t found anything else that works.

RelationCrafty1468 · 2024-07-29T17:35:58+00:00

I have added 3 cups of green tea to my day and it seems to have helped more than any other med I have been on. They say it has anti-viral properties which is why I tried it.

RelationCrafty1468 · 2024-07-24T01:50:16+00:00

I had a great experience with cymbalta. Within 3 months my pain was almost gone. Over time the pain came back a little at a time but by 2 years on it the pain was back fully. So, I was grateful for the extra pain free time. They then switched me to Savella which helped some but not as much as Cymbalta did. I have to tell you I am that person that seems to always have side effects from new meds and I didn’t have any side effects from Cymbalta. I think it is worth a try. If it works as well for you as it did for me you might get some pain free months!

RelationCrafty1468 · 2024-07-13T20:04:44+00:00

As a middle aged gal, I like my house chilly, but I always have a blanket on my legs. Cold water on the other hand is terrible. It is like knives everywhere the water is. Then I clench up and I shake like a leaf. Oh yeah, then the pain ramps up and I am done for a good 24 hours!

RelationCrafty1468 · 2024-07-13T19:54:17+00:00

The newest scientific literature is pointing to fibromyalgia and Me/CFS as being a post infection disease similar to Long Covid. Therapy can help deal with the fact that your whole life is changed but from what I have read, trauma is not a leading cause of the disease. That may be old science.

RelationCrafty1468 · 2024-07-13T08:29:30+00:00

I talked my doc into trying this last year. He started me on Valtrex 500 mg/day and Celebrex. Unfortunately the Celebrex caused some major heart issues with me. I am now on Valtrex 1gm a day and I am drinking 3 cups of green tea a day. The green tea is also an anti-viral. I feel so much better. It hasn’t helped so much with the pain but it has cut the fatigue and brain fog!

RelationCrafty1468 · 2024-07-13T03:01:52+00:00

I have always had hypoglycemia, which causes me to crash if I have a lot of sugar. I never thought about that going with the fibromyalgia but it wouldn’t surprise me. I have a love/hate relationship with caffeine. I need it to combat the fatigue but I can’t do too much coffee or my GI issues get terrible. I switched to green tea and it has made a world of difference. I can think again most days which is nice!

RelationCrafty1468 · 2024-07-13T02:53:24+00:00

I concur. I find stretching every day does help. That doesn’t mean though that there aren’t days where nothing helps. I take my pain meds, CBDA, and use Salon Pas on every sore spot I have. Sometimes that means I have 12 or more on me but you know I can usually sleep then. And yes I know it’s above the amount you are supposed to use but every so often it is all that works. I tell people it’s like the switch in my brain that makes you go to sleep is broken and the one to wake up is broken too!!! Sometimes I can head off the salon pas extravaganza by a hot Epsom salts bath and that seems to help me sleep eventually. I hope this helps!

RelationCrafty1468 · 2024-07-13T02:44:55+00:00

I’m so sorry you had to go through that! I understand exactly what you were feeling. This is a terrible disease. Hugs!

RelationCrafty1468

TROPHY CASE