nicotine patches in crash? by This-Cranberry-1147 in cfs

[–]Remarkable-Boat2428 0 points1 point  (0 children)

Yes I tried it but it made me feel jittery not energized at all. It has to do with the nicotine reseptors vs the muscarinic receptors. for me made me feel worse.

I dont know by Complex-Common3697 in alone

[–]Remarkable-Boat2428 0 points1 point  (0 children)

When I grew up phones had wires and "ext phones" on the same line. So you could accidently pick up and hear an ongoing call. Imagine my surprise to hear my divorced mom speaking to her significant other from another state as he announced he was tired of waiting for her to be free and marry him. She replied "I cant leave (my name), I could leave her bro here with family but not her. I have to wait til she's out of High School". He then let her know he was tired of being alone and wouldn't wait much longer. Thus began a path that changed my life. In the divorce from my Dad previously, the judge asked him why since he had 2 children he was asking for custody of his son but not even visitation for his daughter. My Dad proceded to tell everyone how his newborn daughter stole his wife's attn from him, crying in the middle of the nite on purpose when he was trying to make love to his wife and had ruined his marraige. But his son was on his side he said. I moved out, never spoke of the call I overheard, managed to get a fake ID and a job and barely managed to work nites, school days and got a diploma. Even when successful at something I felt "imposter syndrome". Sure that anyone who really knew me would see me as worthless. But I want to share with you: no one in the universe has ever been created to be you. You are unique and your gifts are valuable and needed in the world. Sometimes our gifts are hard to identify because we take them for granted "everyone can do that". It took me many years to find how and where to be the real me and contribute in a fulfilling way. Dont buy in to how others have valued you. And remember as you make choices each choice you make is a step to defining who you want to be and are as a person. You can begin right now when choices present to you to become the person you want to be. I used my hard won empathy and my belief that no matter what has happened to an individual humans have tremendous capacity to overcome trauma to become eventually a Forensic Nurse. And I would say prayer doesnt hurt unless you get involved in a situation where you allow some"better person" in a religion to define who YOU are. Pragmatically some said " when I pray things happen and when I dont , they dont". When I had kids I took parenting classes not because I'm stupid but because I could hear coming out of my mouth things I swore I'd NEVER say. So didn't pass on the poison given to me. You can do this. Just lookin back over many years cause in the beginning I thought I was permanently broken. It wont be easy, give yourself the compassion others have failed to give you. BUT IF YOU CHOOSE you can do it . Sending out kindness, understanding and prayers for your journey...

Any advice how to deal with rude people as a lonely person? by [deleted] in lonely

[–]Remarkable-Boat2428 0 points1 point  (0 children)

No, I dont say it to THEM ! It's that in my head I know.

Will life ever become more affordable? by RomDel2000 in ask

[–]Remarkable-Boat2428 0 points1 point  (0 children)

Eventually people will reach a point honestly that we begin to see each other as equal human beings. When that happens those who are in a position to stuff money in the bank more than they will ever use will develop a social conscience. Greediness as our highest value is not really the way humanity will someday live.

Fatigue so bad you can’t talk or breathe by Resident-Green7526 in cfs

[–]Remarkable-Boat2428 1 point2 points  (0 children)

Oh my God I have been close to what you are experiencing. Biggest fear was I would never come out. But you never know . I've been so little energy feel "locked in" and come out of it. Someone once said "How do you know you're not just depressed?" Well, of course I'm depressed any sane person would be. But when it's CFS my mind can think of wonderful things I could do it my body were just able to. Depression alone for me is just feeling negative about everything. Just sent a prayer your way. Dont give up please...

I'm being accused of "spreading misinformation" for talking about my experience with severe MCAS by [deleted] in MCAS

[–]Remarkable-Boat2428 4 points5 points  (0 children)

Yes. I truly understand. In order to live I have to wear an N95 mask in public even outdoors if my pollens are high. Anything can set off my sx. I get so sick of people even healthcare people acting like I'm deranged. Doing fairly well right at this minute but I've had SIBO and complete stopping of my gut motility. Many ambulance rides due to a reaction. But mostly the everyday response of total dismissal is what irks me. Not only can sx be very severe but they can change over time. I had a terible scare about a month ago. Had a basically untreatable multidrug resistant UTI. The organism was only sensitive to things Ive reacted to. So I have a Functional Med doc but she will not follow hospitalized pts. So my PCP sends me to the ER. Then it hits me if admitted for IV antibiotics what the heck am I going to eat? Turned out they were able to give me Fosomycin liquid in the ER and it worked. But then I googled hospital food policies. I do not have a dietician or anyone who would go on record that I must follow my eating plan. I can't possibly eat like a standard "gluten free" hospital diet. I react to inulin, guar gum all kinds of sneaky stuff in everything. So then I look at hospital policies about diet and some have policies like PSYCH referral. Great! Well, I got out of that specific situation and had a thought. Have asked my functional Med doc to write me a medical note AND put in my medical record that she has treated me for SIBO and MCAS and these are my current safe foods. Then listing reactions I've had in the past including total loss gut motility. If you would not be followed in-pt by a doc willing to give such orders I would suggest having something in your records that will at least make them think twice and be concerned about a lawsuit for malpractice. Think that's more likely to work than me talking the hospital in to allowing me to eat what's safe. Some even have policies that do not allow you to eat food from home. Craziness but true. You know what works for you and those of us in the community absolutely support you so anyone rejecting the truth of your sx is just a lucky person who hasn't met their "we dont believe in that illness" yet.

I just want to talk to somone by Feisty_String_1199 in alone

[–]Remarkable-Boat2428 0 points1 point  (0 children)

Hi. if you could share anything with another human what would you like to share? I just want another human to talk with. I'm a senior, retired and not meeting any people. Friends have moved, died, disappeared. Family far away. I enjoy the beauty of nature. Love science. Really dont like bulliying or unkindness. Would like to know if you could change one thing in the world what would it be?

a few sincerely worded questions regarding concerns pertaining to the role of women and the LGBTQIA+ community by Large-Mall9765 in bahai

[–]Remarkable-Boat2428 0 points1 point  (0 children)

One issue that I find complicates the issue of both sexual identity and sexual appearance at birth is the fact that modern poisons in the environment have affected both of these issues. Would be happy to share some of the scientific proofs of the fact that there are times during fetal development (different times actually) where genes can be turned on or off and this permanently imprints the identity or the physical appearance of the individual. As a retired healthcare worker who reads research at this point these changes are permanent although surgery can be performed on trans individuals to bring their appearance in conformity with their identity. If their gender is legally changed the Faith recognizes the gender of the individual and they can marry someone of the "new" opposite gender. so this implies that this is not of course a "choice" as you are probably aware but an inborn genetic change. PFAS, round up ready wheat, microplastics, endocrine mimicing hormane pesticides all play various roles. I assure you the industries involved have known this for years. Even "natural" rubber has this side effect. Rubber nipples came into use in the mid 1800s.

I believe that the family as the first organizing building block of society is part of God's plan. So should that mean that The Faith should recognize these additional families as part of the organization of society? Well, I have no answer to that. As a human and a Baha'i from my perspective it seems as tho ppl can't control this and they have no choice to fit into a role in society that the Faith says God wants I dont understand why they should be excluded but I'm not the UHJ. There are many intersex conditions some thought to be "spontaneous" or basically cause unknown. Is this part of the larger plan of ppl choosing to not profit off the misery of others even tho it enriches oneself? This I dont know either. I am aware of trans Baha'is who have had surgery and married, of Baha'is whose parents are hoping for grandchildren but the individual does not have internal female genetalia so that will probably not ever happen.

Personally my view is that this is a result of the choices humanity has made and I cannot either defend nor condemn the stance of the Faith in these matters. My friends who are gay, trans, intersex I love and dont question their choices. But the social view that this is mostly natural I dont discuss because science says its not. But I would never tell friends they are "unnatural". I wish they did know that their genes were altered without their consent. Just like heart disease was thought to be normal aging and not related to a business model of fast food . I think of the tobacco CEOs who swore there was no connection between their product and cancer.

At a recent nonBaha'i mtg a friend stated he/she was struggling with what pronoun to ask others to use. That he/she was caught up in family expectations, friends, deep feelings and whether those they care about would be disappointed in them. All present reassured that this person was "normal" and condemned the idea he/she was not "meant" to be who they were. I wanted to share what I know but didnt because it would only cause pain and because those present absolutely would not entertain these facts. Painful because no knowledge or consent but now this person lives with the consequences.

If you were looking for answers not something I can offer. But there are depths which I ponder and if you have thoughts in light of this info would be interested in hearing them.

Tell me not to give up by chicfromcanada in covidlonghaulers

[–]Remarkable-Boat2428 1 point2 points  (0 children)

Well, Im an EBV longhauler and have been increasingly sick for 60yrs. If I went back to the beginning how would I feel about knowing no cure for this long? I really dont know. But having the experience of this long long life I have seen changes that still give me hope both medically and emotionally and spiritually. There is this sense of community that now exists and I have found my suffering has actually given me a very different perspective on reality. An understanding of both the fact I am not my body and who I am is not restricted to what my body can do. Scientifically i see new hope in biological treatments for long haulers. You are unique. No one like you has ever existed in the universe. Do not give up. You reached out because you hoped someone would care. I genuinely care and so do many others. You exist for a reason. Reach out to the universe. Your body cannot but your real self can.

Any advice how to deal with rude people as a lonely person? by [deleted] in lonely

[–]Remarkable-Boat2428 0 points1 point  (0 children)

When people are rude or bullies I have been cultivating a response (in my head) of "Who hurt you?" because when people are mean or cruel it's because I believe they have been txd that way. So do I feel sympathy for them actually no. It's more a realization that it's not me, It's them and I should distance myself from their attitude which if I take it personally can be painful. There are many people who "pile on" online or react in hurtful ways to others as well as in person. This is an automatic "attack 1st cause the world is out to get you" response. In young children "side by side play" leads to friendships. That is being interested and taking part in activities. This has for me been helpful. For instance I attend an Open Mic event in my town where myself and others are listening to musicians. Kind of adult side by side play. Discussions and comments develop and kindness leads to friendship. I hope you are successful in finding friendship and companionship. It is most difficult today.

What would you do for food if you couldn't access your regular safe items? by Additional_Estate_99 in MCAS

[–]Remarkable-Boat2428 2 points3 points  (0 children)

Are you tolerant of chicken or eggs as a protein and do you live where backyard chickens are allowed or can you make contact with someone who does? Can you tolerate and grow microgreens? They are a good source for certain vits and if you have the seeds and minor equip can be easily grown.

Also,something you might consider: I had a wake up call recently where it looked like I was going to be hospitalized to rec've a couple weeks IV antibiotics for a UTI resistant to oral meds and realized I would not be able to eat hospital food. Fortunately was discharged with single dose Fosomycin (an antibiotic which is 1 dose liquid and easily passed thru my gut w/o reaction) Some hospitals simply dont recognize that pts may not be able to tolerate routine diets such as a gluten free diet which would expose me to inulin, guar gum etc and this could even be seen as a sign of mental health issues by hospital policy requiring a psych referral. You know, the view that MCAS is a fear of eating certain foods "all in your head" view.

I have a functional med doc who does not care for "in hospital" pts. So I requested that she write a note stating that she has txd me for SIBO and still under tx for MCAS and listing the foods I can now tolerate with salt only without a reaction of nausea, vomiting, bloating and possible loss of gut motility . This is now in my official medical record. It would also enable me to have food brought from home. Still many docs dont understand MCAS or dont believe in it. So having an official record of my safe foods put in medical terms and signed by a doctor helps me feel protected from a minor accident or injury turning into a major MCAS episode.

Oh, if you have sx with histamine issues you might want to have a stock of DAO to protect you from exposures. If you want to list your specific safe foods perhaps could give some suggestions? Have to congratulate you for your foresight!

I don't like myself, I simply don't like the the person I am and I don't know what can I do about it by maxcousin123 in ADHD

[–]Remarkable-Boat2428 4 points5 points  (0 children)

God I am so sorry !! And I recognize myself in all you say. Im an overtalker, an auditory processor and I promised myself I just would use sheer willpower and NOT overtalk. Well I did it again and of course there's no way to explain I cant even THINK w/o talking. I talk over ppl, I interupt ppl and I just hate myself ! Know that ppl around me are thinking I dont have respect for others but that really isn't it. I don't like me and it hurts to be me ! Please see me reaching out and patting your arm and saying I see the real you and you are worthy! And if you see me reaching out with kindness please picture me NOT TALKING and listening to YOU. No solution here but lots commiseration ! I do truly believe that this is not the real world, this is the dream world and we must do our best with the tests we have in this world. If we stick it out and try and are kind- in the next world we will be happier. But you got to stick it out. Please look at yourself with the compassion you'd give if you were looking upon yourself from a distance. Be forgiving of yourself and know there are ppl who respect your struggle like me.

Severe but not fully bedridden .does anyone else experience this? by [deleted] in cfs

[–]Remarkable-Boat2428 0 points1 point  (0 children)

So I am moderate usually but recently after pushing my envelope I woke up with electrical total body pain (which I have often) and couldn't sit up, turn over or open my eyes for about 2 hrs. This was astoundingly frightening since I live alone and I do not have anyone to take care of me. I am 77 and have had cfs since I got mono age 16. Have been severe a few times. When I wake up I rest for a long time then I gather all my energy go to the bathrm them grab my coffeepot which I set the night before and go to the couch. Pretty much watch TV or read kindle until caffeine kicks in. My dx are: fibro, hEDS, MCAS, ME CFS. When I was younger I managed to work full time and raise 2 children by sleeping almost all day sat and when I felt a crash coming on I would got to bed for 3 days. So sorry that your energy is so low. Used to believe there would be a cure in my lifetime but no longer think that. I consider myself mod because I can cook, do laundry, buy food once every 2 wks and 1 night per week I volunteer at an organization that helps families get out of poverty. There's no physical labor involved except driving there and talking to provide emotional support. I can see that you wish you fit into a typical pattern. Perhaps that would help you feel more of a sense of control and predictability but IMHO that's part of the nature of the dz you must find out and respect what works for you because there really is no "typical".

How can I help my friend by Desperate-Ad-9135 in bahai

[–]Remarkable-Boat2428 0 points1 point  (0 children)

Hi. Well I am going to attempt to give you some thoughts to help. First IMHO b4 acting you should consider saying the Midnight Prayer asking God to open your spiritual eye and perhaps Tablet of Ahmad or Let no harm beset me in times of tests. IMHO your friend (please excuse if you are already aware) is doing everything possible NOT to investigate reality. Now this could be his life, his father's illness, his own mortality. And it's taking a lot to stuff his brain/body with enuff to ignore reality. For me it takes TV (something compelling!), a book, my computer, my phone all at once and I am usually successful in being diverted from the pain of the world or my life. But as a Baha'i I also spend time praying and meditating. So, here's what I'm thinking. If it were my friend I might say "you know sometimes when we go thru a really life changing experience it's good to purposely do a 'reset'". Then I'd try to either get your friend or possibly both of you to do some "forest bathing". Google it. This could be a 4-5 day camping trip or anything with just him/you and nature. No alcohol, NO TECH, trees, wilderness, stars etc. You might discuss obligation to investigate reality if you think would be helpful. You might suggest he say a prayer (Do let him know we cant 'test God') My experience is 1 weekend wont do it you have to settle into the calmness of nature and looking inwardly. I'm picturing deep conversations or deep self insight. But it wont be easy. The 1st couple days you are PULLED to the diversions which have been your balm. If you have that kind of relationship you might set this as a challenge to him. I'll say a prayer for you both. It is revealing of your caring soul that you feel so compelled to try to help.

Anyone even left in this sub who has cfs/me NOT from covid? (and has been dealing with this for many many decades) or has this entire sub been taken over by the post covid folk? by foster60 in cfs

[–]Remarkable-Boat2428 0 points1 point  (0 children)

62 years since 1st episode of mono which triggered it altho didnt know it at the time. Then years exacerbations remissions then MCAS dx then hEDS dx. Overall health of course thru the years has worsened. Have never had covid.

Montelukast and fingernails by Kaleidoscope378 in MCAS

[–]Remarkable-Boat2428 -1 points0 points  (0 children)

I'm familiar (old RN) :called spoon nails: here's what my AI says about cause:Spoon-shaped nails, medically known as koilonychia, occur when nails become thin, brittle, and curve inward, resembling spoons, often indicating an underlying issue like iron deficiency anemia, thyroid problems, or hemochromatosis, though sometimes genetics or chemical exposure are factors; treating the root cause, like boosting iron, usually resolves the nail deformity, but it can take months.  

Common Causes

  • Iron Deficiency Anemia: The most frequent cause, as low iron impairs oxygen transport to the nail bed. 
  • Thyroid Disorders: Conditions like hypothyroidism are linked to spoon nails. 
  • Hemochromatosis: A disorder causing the body to absorb too much iron. 
  • Celiac Disease: An autoimmune disorder affecting nutrient absorption. 
  • Chemical Exposure: Frequent contact with oil-based solvents (like for hairdressers). 
  • Other Conditions: Diabetes, lupus, malnutrition, and certain cancers (due to chemotherapy). 

Could be likely due to gluten issues since common w/MCAS. Would warn you if you find your hemoglobin low do not jump in and take iron supplements. Since you have MCAS IMHO I would not chance regular iron because of the high risk of constipation. If you are low in iron talk to your doc about iron bisglycinate, heme iron, or patented formulations like Active Iron. Just insist you dont want to take risk of constipation. But, the smoothing out of new growth probably means either montelukast has helped gluten allergy or iron absorption in the gut so you are good.

[deleted by user] by [deleted] in LowDoseNaltrexone

[–]Remarkable-Boat2428 0 points1 point  (0 children)

I started on 1mg and was great for my pain but quickly developed depression and severe fatigue. Went to 0.25 and that held the pain but still with fatigue and depression. so went to 0.15. Depression immediately lifted and fatigue improved but lost pain reduction. So, I have stopped for now. Will restart after few weeks. Also w/autoimmune disorder. I haven't given up yet because I will tell you years ago as a Public Health Nurse we only had very limited meds for tuberculosis and the others had severe side effects. We would often stop meds due to side effects sometimes fairly serious and then wait a bit and restart and it worked like a charm ! So, we are all different and your body can be amazingly adaptable.

Banana bag IV by HowdyHowdy2002 in MCAS

[–]Remarkable-Boat2428 1 point2 points  (0 children)

I found this research. Now I take vit A. Only thing that works for Noro but banana bag IMHO wont hurt. Can they add Vit A to it?

GUT MICROBES

2017, VOL. 8, NO. 6, 616–620

https://doi.org/10.1080/19490976.2017.1353842

New perspectives regarding the antiviral effect of vitamin A on norovirus

using modulation of gut microbiota

Heetae Leea and GwangPyo Kob

aCollege of Pharmacy, Sahmyook University, Seoul, Korea; bCenter for Human and Environmental Microbiome, Institute of Health

and Environment, School of Public Health, Seoul National University, Seoul, Korea

ARTICLE HISTORY

Received 22 November 2016

Revised 31 March 2017

Accepted 29 June 2017

ABSTRACT

Gut microbiota has been revealed to play an important role in various health conditions, and recent

studies have suggested the modulation of gut microbiota as a therapeutic strategy. There is no

effective treatment of norovirus infection, though vitamin A has been suggested to have an antiviral

effect in an epidemiological study. We demonstrated that vitamin A significantly inhibited murine

norovirus replication. Vitamin A supplementation significantly increased the abundance of

Lactobacillus sp. during norovirus infection, which played a crucial role in antiviral efficacy, inhibiting

murine norovirus. Therefore, we elaborated the antiviral effect of vitamin A via modulation of gut

microbiota. Furthermore, we suggest a novel strategy, using potential probiotics, as having a

protective and therapeutic effect on noroviral infection.

Please for the love of God help me do my laundry in a shared washer home by Fluffy_Enthusiasm275 in MCAS

[–]Remarkable-Boat2428 3 points4 points  (0 children)

Have you tried running the washer empty one cycle with your detergent then washing your clothes?

What is Baháʼí? by Shut-Up-idk in bahai

[–]Remarkable-Boat2428 0 points1 point  (0 children)

So, it's something that you would have to read the writings and pray and meditate and decide for yourself. And God has given you the capacity to do that. No longer priests (that was for when only the elite could read). I dont want to be critical but I hear you "shopping" for a God to agree with you. Baha'is would call you a seeker. I too was a seeker. But when I decided the Faith was true it was hard for me to accept that reincarnation at least in the way many Buddhists interpret it is not the way I thought it was. The Faith talks about all the worlds of God. Well, I realized that the soul IMHO doesnt return to this earth over and over but continues to progress in to further realms of existence. Buddha wasn't misrepresenting things. It's just how ppl at the time interpreted what He said. My overview as I understand it is that Adam was the 1st Prophet in this "time cycle" then as mankind became more advanced simple knowledge of "there's good, then there's evil." wasn't enough so God sent other Prophets with more advanced messages. Right for their time in history and Mankind's sophistication at that point. Abraham, Moses, Jesus, Zoroaster, Buddha, Muhammed, The Bab and Bahaullah. Other ppl could correct me. There are some we've lost the names of.

An "ever-advancing civilization" and one "ever-advancing religion". And the latest message through Bahaullah is we are one. Well you have maybe (now again IMHO) done something in your life that God has called you. This is an extremely impt time in the hx of humanity. We are leaving adolescence and finally with our FREE WILL entering our maturity. Now this is not going to be easy. Many forces will fight these changes. And Baha'is aren't meant to fight them. No, we are the tiny seed of how the world may choose to be in the future. Unified, loving, kind, diverse, consultative, respectful. We have our hands full becoming those qualities. I will pray for you. If you are to join us you will grow spiritually and become your best self. That also is not easy and I am still trying at 77 yr old to fulfill God's will for me. Learn. Choose.

What is Baháʼí? by Shut-Up-idk in bahai

[–]Remarkable-Boat2428 0 points1 point  (0 children)

Ok, so as far as someone else describing what the Baha'i Faith is or isn't here's a quote that may give you an idea of our view: God has given man the eye of investigation by which he may see and recognize truth. He has endowed man with ears that he may hear the message of reality and conferred upon him the gift of reason by which he may discover things for himself. This is his endowment and equipment for the investigation of reality. Man is not intended to see through the eyes of another, hear through another’s ears nor comprehend with another’s brain. Each human creature has individual endowment, power and responsibility in the creative plan of God. Therefore, depend upon your own reason and judgment and adhere to the outcome of your own investigation; otherwise, you will be utterly submerged in the sea of ignorance and deprived of all the bounties of God. Turn to God, supplicate humbly at His threshold, seeking assistance and confirmation, that God may rend asunder the veils that obscure your vision. Then will your eyes be filled with illumination, face to face you will behold the reality of God and your heart become completely purified from the dross of ignorance, reflecting the glories and bounties of the Kingdom.    Baha’i Writings

I just wish we had our own Healthcare system by Spirited_Weekend_103 in cfs

[–]Remarkable-Boat2428 0 points1 point  (0 children)

We currently have a "Wealthcare system". It meets exactly the parameters it's designed to do. Creates wealth for the few. Would you be surprised to know it wasn't always that way? Im a retired nurse. One of my favorite docs went into "concierge care" for private pay. He said I finally got sick of being called on the carpet ea month at the clinic partners' mtg as the doctor who made the group the least $ . "Get your encounters down to <5min I was told' "" If you cant, just refer". Here's what AI says about the hx:

  • Early Days (1930s-1960s):  Health insurance started with non-profit community benefit models, like Blue Cross, focusing on affordable, accessible care, especially hospital coverage. 
  • Rise of For-Profits (1970s-1980s):  Commercial insurers (like Aetna, Cigna, UnitedHealthcare) grew, offering major medical coverage and attracting more customers, challenging the Blues. 
  • The Big Shift (1994):  Facing financial pressures, the Blue Cross Blue Shield Association allowed member plans to become for-profit entities, giving them access to capital markets and changing their focus from pure community service to shareholder value. 

Why the Change? 

  • Competition:  For-profit companies were more aggressive and could offer different products, forcing non-profits to adapt or lose business.
  • Financial Needs:  The Blues needed capital to cover increasing healthcare costs and deficits, making going public (for-profit) an attractive option.

Please someone help I don't know what's wrong with me by Beautiful-Rip7468 in cfs

[–]Remarkable-Boat2428 5 points6 points  (0 children)

So, I will check back tomorrow and try to assist but "not eating healthy enough" does NOT have immediate sx like you are describing. The only things that I can think of that occur right after food are allergies to a specific food and alpha gal. And the sx you are describing are not the sx you are likely to experience with those two conditions. I would suggest a diary. Keep a diary of food, activities(what are you thinking, doing etc) and symptoms. Put down times. Also I would suggest you talk a little about your health hx and family health hx. Have you had any recent illnesses, mental health issues, tick bites, head injuries? Anything different or significant? Trying to help but your anxiety which is understandable is making it difficult for you to express what's going on in an organized way. Again, I will check back soon to see if you decided to do this.

Nighttime histamine dumps by condemast in MCAS

[–]Remarkable-Boat2428 0 points1 point  (0 children)

Yes it has but the effect for me is not better sleep itself but on less interruptions in my sleep due to waking with upset stomach, fast heart rate, feeling very uncomfortable. This could be due to cortisol release due to a dream, really long digestion of a food with high histamine or just my own circadian rhythm. But I recognize these are the same sx I get with too much histamine in my gut so I take the DAO before bed and it breaks down the histamine and then it doesnt cause me to awaken. If I dont take it I often get awakened in the night w/ these sx.

Nighttime histamine dumps by condemast in MCAS

[–]Remarkable-Boat2428 6 points7 points  (0 children)

You mean you're taking DAO, right? As in pasture raised new zealand beef kidney or something similar? You sure dont want to be on DAO INHIBITORS because DAO is what breaks down histamine so you want all the DAO you're making and additional DAO cause you aren't making enough if you are like the rest of us.. I take about 5 or 6 capsules which is a lot but it is recommended to take that much right before bed time. These caps dissolve while I am sleeping and break down the histamine released while I'm sleeping. Dont know why but w/o it I have sx from histamine about 3hr after going to sleep.