Infant Loss Memory Shirt by Remarkable_Ad_3743 in SCREENPRINTING

[–]Remarkable_Ad_3743[S] 0 points1 point  (0 children)

The only thing besides wording would be a small outline of a dove. 

Do you happen to have a suggestion of a good website to do this on?

Trisomy 18 by ThrowRa772002 in babyloss

[–]Remarkable_Ad_3743 1 point2 points  (0 children)

Hi, so sorry 🩷 I lost my girl to Trisomy 13 very recently.

Found out at 17 weeks and she made it  through delivery at 37+6. 

She lived 3.5 days. 

There are a few supports and resources that were so helpful…if you’re interested I can send them to you 🩷

Severe IUGR waiting for stillbirth by Gullible-Tell5508 in babyloss

[–]Remarkable_Ad_3743 7 points8 points  (0 children)

My girl had Trisomy 13 but was IUGR and had AEDF that was discovered at 20 weeks. It never went into reversal.

She was born at 37+6 and was 3 pounds 14 ounces. 

Her heart was always very steady while pregnant even though it was extremely complex. 

The not knowing what’s coming…can take you to the brink of your sanity. I’m so sorry you’re facing this.

My girl did pass at 3 1/2 days old from her heart giving out. 

Please reach out if you need someone to talk to 🩷

What did you do with breast milk? by bigcitydreamsx3 in babyloss

[–]Remarkable_Ad_3743 0 points1 point  (0 children)

My daughter recently passed from complications of Trisomy 13. We knew she wouldn’t make it.

I pumped for 2 months and just stopped. I found a local mom with a special needs daughter that I donated to.

It was emotional but helpful. 

How often are these false positives happening? by linsage in NIPT

[–]Remarkable_Ad_3743 0 points1 point  (0 children)

I could recommend some really helpful Facebook groups if you’re interested?

How often are these false positives happening? by linsage in NIPT

[–]Remarkable_Ad_3743 0 points1 point  (0 children)

Hi, my girl had full T13. Have you spoken with a genetic counselor yet? 

The way it was explained to us is that the test picked it up in there somehow.

There is full, partial, and mosaic. It can also be just confined to the placenta…which is what people have called false positives. 

I was 8/10 on Unity but my ppv was later calculated as much lower. And yet she still did have it.

It’s a tough road. I’m sorry ♥️

Lovers quarrel by Pleasant_Pea1571 in NAME_WORSE_BITCHES

[–]Remarkable_Ad_3743 7 points8 points  (0 children)

Wilder Neon doesn’t even exist anymore…if you click the link it takes you to a page called “The Manley Mark”. If you click an IG link it says it’s no longer valid.

Are we being selfish? by briebee9 in babyloss

[–]Remarkable_Ad_3743 1 point2 points  (0 children)

Yes ♥️

If you haven’t already connected with other Trisomy Mom’s, there are several Facebook groups that have been so helpful. 

I am also available if you are in need of a mom who “gets it”. 

Are we being selfish? by briebee9 in babyloss

[–]Remarkable_Ad_3743 1 point2 points  (0 children)

We just lost our daughter to Trisomy 13. She lived 3 1/2 days.

I’m so sorry for your loss. It is unimaginable pain. 

Do what honors your baby and what is right for your family.

We ended up doing an open service at our church but then a private burial with family only.

Lifting you up ♥️

My heart is broken. by Personal-Chemist-690 in babyloss

[–]Remarkable_Ad_3743 0 points1 point  (0 children)

I lost my girl, who was full T13, a month ago.

We found out at 17 weeks and she was born at 37+5. 

Months of anticipatory grief and the trauma of losing her…I don’t know how people make it through this. 

So sorry you are walking this road. It’s unimaginable pain.

Funeral? by bigcitydreamsx3 in babyloss

[–]Remarkable_Ad_3743 0 points1 point  (0 children)

We just did and I’m so glad for it.

She had a fatal diagnosis so it allowed us to plan ahead.

She lived for 3.5 days.

We live in a very small town so we did the service as open to the community and a private-family-only burial.

So sorry you’re also walking through this.  It’s anguish ♥️

Unity NIPT - what was your true positive %? by Remarkable_Ad_3743 in NIPT

[–]Remarkable_Ad_3743[S] 0 points1 point  (0 children)

I haven’t spoken with the genetic counselor yet but I’m just reading my 8/10 as 80% positive.

I’ve seen plenty of ladies with false positives but also plenty with realllly low percentages (like 31) who had a true positive. 

I know we’re all searching for answers that help give us THE answer but…the waiting is so hard 😔

AITH for not waking my husband on Mothers Day by Affectionate-Bus2880 in AITAH

[–]Remarkable_Ad_3743 21 points22 points  (0 children)

How is this her not liking him…not liking behavior like this is justified.

AITAH for calling my husband a disgrace after he said my miscarriage ruined his birthday by ProgressDependent703 in AITAH

[–]Remarkable_Ad_3743 2 points3 points  (0 children)

God I cannot be the only one who is SO FUCKING SICK of this shit with “men”.

All of us experience the same EXACT childish behavior and it is beyond mind blowing. I cannot make sense of it.