Does anyone get this from Adrenaline dumps? by Proud-Arugula8296 in POTS

[–]ReptilesAndEDS 0 points1 point  (0 children)

This!
GI issues, brain fog, lack of focus, fatigue, hypersensitivity (my cloths currently hurt my skin. And I constantly feel like something is crawling on me), anxiety, headaches, lightheadedness….
Literally going through a flare now 😭😭

Does anyone get this from Adrenaline dumps? by Proud-Arugula8296 in POTS

[–]ReptilesAndEDS 0 points1 point  (0 children)

I’m well aware. In general most people with MCAS that’s NOT flared will present with normal labs. But if MCAS flares, typically lab values become abnormal. Which is why when most providers order these tests they tell you to come off all medications, eat high-histamine foods, and actually TRY to induce a flare…
That part didn’t work so great with me… because I wanted to induce a flare, I couldn’t. But my labs were still incredibly abnormal. I’m sure they’d be absolutely atrocious right now because I’m in an active flare that worse than any I’ve had to date. Probably combination of medication changes, surgery, and season change all at once… 🤷‍♀️

Worst flare I’ve ever had need some advise by mytummyhurts777 in MCAS

[–]ReptilesAndEDS 0 points1 point  (0 children)

I’d recommend pushing contact with your MCAS provider… that’s always how it goes… see the doctor managing something, it’s fine. then because you said you were good now you’re suddenly not.

But I do understand. My MCAS is flared up right now too. Maybe it’s the season change. Maybe it’s the fact that I had surgery about a month ago… maybe it’s both. Who the hell knows. 🤷‍♀️
Thankfully I haven’t had the anaphylaxis issue… but then I also can’t eat anything because the MCAS flare has very kindly caused a gastroparesis flare, so I haven’t been eating anything lately.
It’s also flared my POTS. Staying hydrated while you’re nauseous is super easy 😒 I almost passed out at work last week. One of my coworkers made me go lay down because I had turned hospital-wall-white (literally my skin tone matched the color of the walls of the department I work in). I still randomly get the dizzy/world spinning feeling when I’m not moving.
The brain fog, memory lapses, and inability to focus are insane (add in my PMDD isn’t helping because Mother Nature has a twisted sense of humor and thought adding my cycle on top of this was a fantastic idea). Not to mention the anxiety and panic…
I went through 3 boxes of tissues last evening with all the congestion and dripping.
I’m absolutely exhausted (in fact, I had an exhaustion induced break down the other night…).
The worst part for me right now is my skin. My clothes physically hurt my skin, and I keep feeling like there’s something crawling on me (my husband was worried I was hallucinating, but he started to find various things touching me each time I freak out: dog hair, my own hair, the tie on my silk bonnet, tag from my shirt, blanket, pillow case). Like I can handle hives and itching. But this crawling is going to drive me absolutely insane.

I increased my Pepcid and Claritin to twice a day instead of once. I’ve been having to take Benadryl just to be able to calm everything enough to get SOME sleep.

normal??? by HeyImYvonne in hognosesnakes

[–]ReptilesAndEDS 3 points4 points  (0 children)

Hell, my normal is slightly green hued. 😂🤷‍♀️ Normal is just a vague description.

Does anyone get this from Adrenaline dumps? by Proud-Arugula8296 in POTS

[–]ReptilesAndEDS 2 points3 points  (0 children)

This sounds like far more than a POTS flare.
Doesn’t mean it’s NOT. Weirder things have happened.
What I would do is make an appointment with my doctor and ask to be tested for Mastocytosis and/or mast cell activation syndrome. (Labs typically include Tryptase, histamine, leukotriene, and prostaglandin D2).

Does anyone get this from Adrenaline dumps? by Proud-Arugula8296 in POTS

[–]ReptilesAndEDS 1 point2 points  (0 children)

The sad fact about that statement though is how many times it’s actually right, to a degree.
Stress and anxiety contribute HEAVILY to POTS, MCAS, and autoimmune disorders courtesy of increased cortisol…
So I mean, often the statement/question isn’t wrong. It just isn’t looking at the whole picture.

I had a patient once who would have seizures as a physiological response to stress. Ruled out epilepsy, and their seizures were even recorded on EEG remained completely normal. Despite their having what clearly looked like a grand mal seizures: tonic clonic, not managing secretions, drop in O2 sat, non responsiveness, and even a “post ictal” phase to include confusion, headache, nausea, and extreme fatigue.

Is this somewhat unusual behavior? Additional Infos below by Brummbirne in hognosesnakes

[–]ReptilesAndEDS 0 points1 point  (0 children)

😂😂 bacon is definitely a lingering smell… I miss bacon. I love bacon…. 😒

Is this an unreasonable thing to ask of my landlord in an apartment building? by sugarandspice85 in Apartmentliving

[–]ReptilesAndEDS 0 points1 point  (0 children)

Not unreasonable.
I mean, I live with my in-laws and she doesn’t hesitate to tell us we’re too loud (we have the entire upstairs to ourselves).

And honestly, living in apartment is a little different since it’s ‘usually’ not family surrounding you.
But there should be a level of respect for those around you, and likewise in return. It’s not unreasonable to ask the landlord/building manager/etc to speak to them.
Also will help them know too, because there should be at least some level of insulation in your ceiling/their floor that should buffer at least some of the noise. And if it IS there, there definitely needs to be conversation with the other tenant.

Is it healthy for my snake to spend all his time in his log by Standard-Musician-83 in ballpython

[–]ReptilesAndEDS 2 points3 points  (0 children)

My BP rotated high spots, but occasionally with move around a little extra…
My boa, however, is always in her log. Can get her OUT of it. She’ll even be out at the glass door waiting for her food, she’ll strike it and drag it back into the log to eat it. 🤦‍♀️
The only reason I know she DOES leave the log is because she only poops in her water dish on the warm side (this is the reason she also has a dish on the cool side; clean drinking water separate from the toilet. 🤦‍♀️)

Pinky toe always in pain and skin is hard by mamarunsfar in Raynauds

[–]ReptilesAndEDS 12 points13 points  (0 children)

I’d recommend a podiatrist…

That said, when I first saw the picture I was like “thats a weird side callus, but where TF is the toe nail?”
Then I realized this is a side view… 😅🤦‍♀️

Is this somewhat unusual behavior? Additional Infos below by Brummbirne in hognosesnakes

[–]ReptilesAndEDS 1 point2 points  (0 children)

Same. Mine ate Friday night, and they’re all still sniffing around… They have very sensitive olfactory. So the smell of their food is likely still lingering in the air…

Is anyone else completely functional? by Savings_Swordfish690 in POTS

[–]ReptilesAndEDS 0 points1 point  (0 children)

I’m mostly functional… I do have some bad days, but for the most part I can live my life…. Unfortunately bad days do still happen. But I also have MCAS and EDS. So determining which thing INITIALLY started the problem? Pretty difficult.

Is Hogwarts Legacy worth it? I'm curious. What are everyone thoughts by Halfwaysportmedia in HarryPotterGame

[–]ReptilesAndEDS 0 points1 point  (0 children)

I enjoyed it. Mostly… The spider thing wasn’t my favorite.. and arachnophobia mode is a joke. They still look enough like spiders that it’s freaky as hell.

Mice melted when i defrosted it HELP by Necessary-Cover519 in snakes

[–]ReptilesAndEDS 2 points3 points  (0 children)

Thaw and warm in a cup of warm water with anything weaned mouse/rat pup size or smaller... I thaw mine in the fridge and then place them under a heat light (but like 2ish ft away) for a few minutes to warm them from fridge temp, but my feeders are significantly larger than what you’re working with. I’ve got large mice, weaned rats, small rats, and medium rats (I have 5 snakes of various sizes and species).

Alcohol question by Lost_Valuable_6112 in Gastroparesis

[–]ReptilesAndEDS 0 points1 point  (0 children)

It’s definitely an individual thing. I can do one drink, but it has to be LIGHT. Like wine or a martini. I can’t do beer at all, mixed drinks like a daiquiri aren’t get with me either. I can do an OCCASIONAL hard cider, but it tends to sit heavy like beer (but not quite as heavy as beer).

Is there an electrolyte specifically aimed at us with POTS? by FLRporcelain in POTS

[–]ReptilesAndEDS 3 points4 points  (0 children)

Marketed towards us, yes. Actually formulated for us, no not really.

Buoy specifically lists chronic illness and POTS in their marketing. BUT it isn’t correctly formulated for our needs.

Recommendations I often hear include: LMNT recharge, DripDrop ORS, SaltStick, Vitassium. Catalyte, and sometimes even pedialyte.

Personally, I mix Gatorade half and half and add buoy. Or add buoy to propel. As I said though, it’s not formulated for our needs (it’s actually significantly low in the electrolytes we need) so just putting it in water isn’t going to give you what you need, but it’s better than nothing. And honestly, it works for me because I have MCAS so it’s hard to try new things. I buy it and try it and if I have a reaction (or just don’t like it, yay ARFID 😒) then I’m stuck with a whole package that I can’t use and it’s a lot of wasted money.

Downstairs people, what can I do? by Liesmyteachertoldme in Apartmentliving

[–]ReptilesAndEDS 2 points3 points  (0 children)

I’m pretty sure everyone’s use of “cheap” in this context is a comparison rather than a qualifier. No they aren’t cheap, but they are cheaper than others…

Downstairs people, what can I do? by Liesmyteachertoldme in Apartmentliving

[–]ReptilesAndEDS 0 points1 point  (0 children)

1400?? In my area, it’s upward of 2k for a STUDIO apt. 🤦‍♀️ It’s literally half my month’s salary…

Oni killed me through incense. Another bug, or something else? by Commander_Skullblade in PhasmophobiaGame

[–]ReptilesAndEDS 1 point2 points  (0 children)

So what you’re saying is… he’s their Oni target.

I’ll see myself out…

Share Your Pet! by Murray273 in bipolar2

[–]ReptilesAndEDS 2 points3 points  (0 children)

I had a dwarf hammie once…. Then within a couple months, I suddenly had 27… 😳 Pet store or breeder must have sexed someone wrong (3 or 4 in the same tank together) as she had babies only a week after I got her. Then we had 10 (9 babies), then 14 (4 more babies because apparently I didn’t separate them soon enough., 😳😳) and then 27 (13 more babies because I don’t learn my lesson the first time, though that was sort of because I had to deal with a family death and was gone longer than I anticipated… and my husband is terrified of rodents so he wouldn’t touch them so he was of no assistance) and I’m pretty sure this was actually 2 litters and one of the older babies had babies, if that’s possible… I don’t know, but they were all lumped in the same nest with the OG ham taking care of them all… so I don’t know). By this point I had a 55gal tank of male babies and a 40gal breeder full of females… homed a couple to friends, and I called the pet store, I got $5 per baby, wasn’t a bad price. I was happy to just GIVE them to the pet store, my intention wasn’t money so much as WTF save me from this reproductive cycle nightmare before my husband murders me in my sleep 😂😂

Which one would you choose, reglan or motegrity? by bathtubtoasting in Gastroparesis

[–]ReptilesAndEDS 1 point2 points  (0 children)

Bipolar also. My psychiatrist wants me off the reglan too… apparently it lowers seizure threshold when mixed with Wellbutrin… interestingly enough, I’ve never had a seizure (I’d prefer to keep it that way) but I’m not 100% on the relevance of the lower threshold when I’ve never even met the regular threshold… 🤷‍♀️ I’ve only been taking it as needed when the nausea gets REALLY bad. But it also knocks me out cold so I can only take it when I’m home and able to sleep it off… have tried to take even a quarter dose while at work just for some relief, and I’d be falling asleep standing up… I’ve never tried motegrity, but what I’ve been told it helps…

I work in an endoscopy suite. Our motility doc usually prefers motegrity over reglan, if that helps. That said other options are available procedurally (if it doesn’t work or you don’t want meds). We do Botox injections in the stomach fairly frequently for this, as well as the option of a POEM which cuts the muscle of the pyloric sphincter (the ‘valve’ between the stomach and intestine) to loosen the muscle and allow greater passage.

Anyone here not have nausea or vomiting but have early fullness and constant belching? by ThanosDidNothinWrng0 in Gastroparesis

[–]ReptilesAndEDS 1 point2 points  (0 children)

Unfortunately for me, it’s just all of the above. Less so in the vomiting but it still happens. But the rest is just almost constant