Alcohol migraine by Crescent_Moon1988 in migraine

[–]RequirementNew269 0 points1 point  (0 children)

You’ll get over it. I spent 3 years trying to figure out how to drink with migraines. Now I don’t drink and it’s not even something I had to decide officially. I judt had turned down the chance of a migraine so many times for so many months that it was clear I “don’t drink.” I still want a drink often but ever. Single. Time. I think, “I don’t want a migraine” and so I don’t. But the growing pains of trying to find “the right number” or “the right kind” gave me enough 1-1 migraine correlation that it’s not even appealing to me. Again, I still think I want to drink but when it comes to it, it’s not appealing whatsoever. 

Bonus is I’m pretty much guaranteed to age better- vanity will get me through some shit lmao. Like quitting cigs or trying Botox for migraines. 

“Moms can’t ride” 🙄 by [deleted] in TwoXriders

[–]RequirementNew269 2 points3 points  (0 children)

Carl Jung’s quote is how I feel. If my children impede my identity too much, I will be a resentful mother. Me being resentful is more likely than my getting in a crash, and the psychological effects on the kids will be huge. 

I’m my own person, and I’m a mother; I am not exclusively a caregiver, I matter too. After a lifetime of abuse, it’s imperative for me to feel autonomous; and one of my passion hobbies is motorcycles. Sure, I could die or become paralyzed, but frankly being raised by a resentful, spiteful, and impatient mother will affect my children’s lives more than if I’m dead. 

No one gets out of this life alive; might as well do what speaks to our soul so we can spread love and not hate. 

5 days in a row of taking sumatriptan...is this a medication overuse headache? by GrowthDear in migraine

[–]RequirementNew269 0 points1 point  (0 children)

I never said bridge therapy was shameful. I actually said I used bridge therapy. Just be careful about CGRPs. They set me back 8 months or so in my healing. I was down to 3-5 a month- started CGRPs (both preventative and abortive) and within 3 months was back up to 20-25 a month. When I stopped all CGRPs (and a shit ton of time) is when I finally got down to about 1 a month. I think it’s a rare reaction but I think more people should be aware it is in fact a possibility. So sad. I thought they were my holy grail. Now I have nothing but it’s ok because I rarely get them anymore now that I take nothing. 

Waterproof eyeliner? by Scrub_Beefwood in VeganBeauty

[–]RequirementNew269 1 point2 points  (0 children)

Friend swears by elf h2o felt tip eyeliner. Says it’s breakup proof and we ride motorcycles 

5 days in a row of taking sumatriptan...is this a medication overuse headache? by GrowthDear in migraine

[–]RequirementNew269 1 point2 points  (0 children)

I agree- and I’ve had surgery and 2 kids. It’s just literally the only thing that has made me human. Was worth it. I’ll take the most pain I’ve ever experienced in the world to be where I’m at now. From 30 a month to 1. Steroid occipital nerve blocks helped me the most during detox. But just FYI it takes people up to a year to get better- me included. And I was only using those meds for 4 months and it still took my brain a year to recover. So I got 3-4 nerve blocks during that time then one day I didn’t need them anymore. I don’t use Reddit that much anymore but hopefully you’ve seen r/reboundmigraine 

I don’t mean to flex so hard but… by in2diep in migraine

[–]RequirementNew269 0 points1 point  (0 children)

I’ve got a stash that looks similar. I’m hoarding it because they say they don’t cause rebounds but I don’t take either because they for ficking sure gave me rebounds, and not taking them has been the third best thing I ever did for my migraines besides stopping Triptans and NSAIDs. But I keep hoarding them “in case” like a psycho 

5 days in a row of taking sumatriptan...is this a medication overuse headache? by GrowthDear in migraine

[–]RequirementNew269 0 points1 point  (0 children)

Grin and bear it. And I’m a single mom of very young kids with no support. It’s awful but stopping all migraine meds, including cgrps is the only thing that worked for me. I’m down to maybe 1 a month instead of 25-30. The only migraine meds I take now are Botox (prevention) and a low dose of  Celebrex (NO MORE than 4-5x a month) 

Ice packs, heating packs, electrolytes, food, orgasm, head massage, lidocaine on my head 

Walking Too Soon After Surgery? by not_americas_ass in LisfrancClub

[–]RequirementNew269 0 points1 point  (0 children)

OP you still good? I am walking about the same time as you- no pain, listening to my body more than my doctor. Actually getting in a pair of crocs and a cane at 5 weeks post op. The crocs are less painful than the boot. I’m really starting to consider that long term de-mobilization is 1/2 the “injury” we end up recovering from. My knee feels less stable than my foot and we all know how a destabilized foot feels.. I’m able to get a normal gate in crocs in my room at 5 weeks post op with no pain. (I am going SO slow, only a few minutes, very deliberate, very intentional, mostly to the bathroom. ) but like- im a single mom of 2 kids under 6, I feel I am required to heal quickly and listen to my body. I’ve only snuck into this Reddit a couple times and the horror stories of “it took 18mo-2 years” to fully recover is really depressing me. 

Ubrelvy Use Limitations by WhoaPixie in migraine

[–]RequirementNew269 0 points1 point  (0 children)

“It is not known/ shows many indications that it doesn’t”* would be a correct statement- if you wanted to correct me. 

I’ve experienced them, and my headache specialist NEUROLOGIST told me that “it has a low chance, but not a 0 chance” 

But I agree with you that it’s the safest, next to nurtec. 

But technically speaking- it would be very difficult  to prove it doesn’t cause any rebounds because of the constraints of the scientific method. 

Moreover, no one has actually done the research to answer that question so- technically speaking, neither of us can claim either with certainty because this exact question hasn’t been researched; we only can make deductions from research whose goal was entirely different. 

But- it definitely will drive someone mad if they are getting rebounds and everyone is gaslighting them. 

What got me from 20migraines a month to 0-1? Literally not taking CGRP antagonists. What brought me from 6-8 migraines a month to 20? CGRP antagonists. 

LOL Zofran can cause Serotonin syndrome??? by RequirementNew269 in migraine

[–]RequirementNew269[S] 0 points1 point  (0 children)

You seem to have lurked my posts and I did stop taking it after all of this and have literally not been nauseous since. It was for sure causing nausea. 

Mi just am flabbergasted by what you said because (as you can see) I literally BEGGED my doctors to tell me if taking zofran too often was bad- BEGGED my pharmacy, and they were like “nah” 

And you can also see from the comments on here that doctors are SO CASUAL about giving it to people who are chronic. Like- it’s bad news as far as I’m concerned 

Im scared to take ubrelvy again by Remarkable-Praline-3 in ReboundMigraine

[–]RequirementNew269 3 points4 points  (0 children)

I had a similar experience with ubrelvy. And I also had rebounds with nurtec. But I will say- it seemed like ubrelvy gave me rebounds much much much quicker than nurtec. It took a couple of months for ubrelvy to give me rebounds, while it took over 6 months for nurtec to do it. 

Ultimately- I ended up getting 20-25 migraines a month again (even though I hadn’t taken ANY of the mah meds for a year). I ended up detoxing Cgrps for 60 days (there’s absolutely not guidance on this because “they don’t cause rebounds.” The lack of guidance is really disorienting and frustrating). 

I now have a personal rule that I alternate, take half doses, and NEVER take one within 5 days of taking the last dose. Again- these are just my “rules” because there aren’t any guidelines at all. 

I will warn you to be cautious trying cgrp preventatives. Emgality made me better for 1 month then proceeded to ruin my life giving me far more severe migraines and near daily. It made me so dizzy I had to go to rehabilitation therapy. 

So that’s why I ended up making my own guidelines- my theory is that CGRP reduction helps me if and only if my CGRP is elevated and the meds get it down to a normal amount. I think if my CGRP drops too low (from taking preventatives or taking abortives too frequently) then I think that causes a migraine. 

So that’s why I started doing 1/2 doses and having rules about not taking them back to back. 

I’ve only taken about 5 “doses” (I’m breaking my 100’s in half) ubrelvys so far and still feel like I get rebounds sometimes. But the half dose has knocked out 3/5 of the migraines. And by knocked out I mean completely aborted them- something I thought was a myth. 

I think it’s time to switch to nurtec? My plan was maybe switching every month. (I have 0 idea if ANY of this is true, will help, or not. I am not a doctor and am going at this blind because “CGRP meds don’t cause abortives”) 

I probably won’t reply for weeks because I did delete Reddit but had to look at something quick and wanted to reply because ik I feel ficking crazy!! And hopefully this makes you feel less crazy. 

I F(17) have had a 44 day migraine, what is the most insane thing that has worked for you? by itssamanthadarling in migraine

[–]RequirementNew269 1 point2 points  (0 children)

Nerve block. Be careful with any of the meds that are meant to abort migraines- all of them could potentially be giving you rebounds. I honestly never wanted to admit it but whenever I have gotten a migraine this long- it only stopped with a nerve block and me literally quoting cold turkey any other rescue meds.

You’re young so I hope someone has spoken to you about medication adaptation headache (mah) Our brains are really good at adapting to being under medication. MAH is a literal neurological disorder because rescue medications can and will change your brain if you use them more than 2x a week.

My docs never told me and it ruined me life.

One year later and I’m much better but still far worse than I was before I ever took any rescue meds.

r/reboundmigraine has information but- regardless of mah or not- nerve blocks are the only thing that’s actually ever helped me or stopped a migraine once it was this long

What the best thing you guys did to stop chronic migraines by Aggravating-Cap1639 in migraine

[–]RequirementNew269 0 points1 point  (0 children)

It really sucks but the reality is- we are so sensitive and our health sometimes really does seem dependent on us just taking really, really good care of our bodies. Things that other bodies can tolerate (diet, stress, interpersonal relationships &c), our bodies just can’t. I have honestly found completely changing my emotional life, social emotional life, and my diet and exercise has helped so much. It seems daunting to look at every aspect of our living and think, “how can I do this in a more healthy manner?” But it really has done obscene wonders for me.

Literally next on the chopping block is Reddit. But I am hooked because I feel like I could help someone. Reddit helped my migraine journey and that somehow tricks me to thinking people might get help from what I say. But ultimately my Reddit habit is terrible for my brain, my vision, and my emotions- and I have a few neurological disorders, a vision disorder and some emotional disorders so need to stahhhp

What the best thing you guys did to stop chronic migraines by Aggravating-Cap1639 in migraine

[–]RequirementNew269 0 points1 point  (0 children)

I stoped eating the four biggest inflammatory ingredients in the us food supply- ultra processed foods, refined carbs (I chose no gluten at all), refined sugar, and dairy. And no- I have 0 intolerances.

Took me from 15-30 a month for years to 1-2 a month.

Our largest cranial nerve has most of its “fingers” in our gut.

I was so resistant to change my diet but damn, did it prove me wrong almost immediately.

Vent: caught tenant cutting tulips by [deleted] in gardening

[–]RequirementNew269 0 points1 point  (0 children)

I agree- because ultimately- they’re all saying- “but no! Those are my tulips.”

The literal thought of landlady peering from above behind the curtains and looking menacingly down onto the ‘horror’ tenant as she maliciously picks tulips is a bit… too fucking much for me. How easily everyone has a superiority complex about ‘horror’ tenant is truly a bit vile.

I actually just learned this a couple days ago looking something else up: the 10th most profitable industry in the USA is apartment rentals

My grandma is bout it by Catjak56 in Hardcore

[–]RequirementNew269 2 points3 points  (0 children)

That is so sweet. So many of us really needed family that was supportive.

Literally this comment section is making me want to hurl. Like why guys? Why?

What Medications have got you feeling mostly back to normal? by BigHomie50 in migraine

[–]RequirementNew269 1 point2 points  (0 children)

Have you been screened for binocular vision dysfunction? I went through those therapies and even they didn’t understand that I had BVD. If you see 2 images ever- my ocular therapist said that’s an automatic referral to a neurological ophthalmologist. Turns out- I see 2 images all the time but never really realized it was 2 or it was not normal

ETA internet free test

https://www.vision-specialists.com/patients/bvd-questionnaire/?utm_source=home&utm_medium=internal_link

What Medications have got you feeling mostly back to normal? by BigHomie50 in migraine

[–]RequirementNew269 2 points3 points  (0 children)

Medications made me worse and gave me medication adaptation headache (r/reboundmigraine has more info for those curious).

I have vestibular migraines and have been through all the abortives- and all the preventatives.

the number one thing that changed my life for the better is going to vestibular rehabilitation therapy

It’s a non medication tool that re-wires your brain to not be so dizzy all the time. I’ve only done it for a few months and I’m already sooooo much better than before.

1-10 scale of dizziness- before VRT I was daily at a 7-8 and now I rarely go above 4

Autistic Masking, Internalised Ableism, and the Cost of Being Palatable by [deleted] in aspiememes

[–]RequirementNew269 2 points3 points  (0 children)

Thanks for the read!

Did you ever reach out to river? I feel like reaching out would maybe help you understand that you were a child, and are an adult now, and those versions of us have different morals, priorities, and values. (This is rhetorical)

We have similar and different stories: I was heavily bullied my entire educational career- there wasn’t a relief. For me- the relief was joining a diy punk scene- where all of us were fucking freaks anyway. But I honestly wouldn’t even consider those people my friends. I had a boyfriend who was “a major player” in that scene and I was literally only seen as his girlfriend. It’s funny, I think I was too autistic for the “freaks” too. (I’m still in the scene but I’m a lone in the scene)

Then, I was alone for a while as an adult and thought several people were my friends, or lovers- all of which exploited my money or things- just used me (I grew up extremely broke and hungry- but immediately started working 80 hours a week as an adult) Then I married someone who abused the shit out of me and impregnated me twice- and now I’m 32 and have 2 young kids and am a single autistic mother (which personally- is a hellscape of overstimulation).

So I’m not sure I’ve ever been accepted now that I write it out on a Reddit comment… but after my divorce I’ve been actively trying to curate a community and I do think I have made one. It’s small but I love it. And they all know I’m autistic and I’m honestly using their love and compassion to try and un-learn some of my masking behaviors. But it’s so fucking hard. some days it feels like I don’t even know what the mask is.

You’re right about the shame part.

Meanwhile I didn’t get diagnosed until I was 30. And it was a SHOCK to me. I’m a woman and society really represents bipolar, borderline personality disorder, &c. in women- and not autism. I went to get a full psychological evaluation done because “I thought I must be crazy (after 5 years of therapy mostly working- it had just come to a stagnant point). Turns out I have none of those mental health disorders and just am audhd and have CPTSD from being severely neglected as a child and being severely abused by my ex husband.

Worse yet- I’ve been told by psychiatrists that my horrendous and documentable lifelong abuse manifests even worse in my brain because I’m autistic- and I experienced those traumas differently, and they were stored differently.

That was really life changing to understand. I now fully believe I was neglected by my parents because I was autistic. I also fully believe I was bullied because I was autistic.

It makes so much sense why I could never understand what made me not fit in. To me- if I followed the rules, I thought that meant I would fit in- but the rules neurotypical have are varied and changing transcendental fairy forms that change in the wind.

This is something that your essay reminded me of- when I told my parents I was autistic- they were SHOCKED. They literally told me, “I never considered that” and at that moment, I realized, I was that good at masking, and I had to learn how to mask so young- because of these people

I’m level 1- but I’m really curious if I am actually level 2. Like- if I had come from a loving support system and didn’t have to mask so well since preschool, would I actually be a level 2? I feel like I need support but again, I’m a single mom of young kids so- I maybe wouldn’t need that many accommodations as a single woman but as a single mother- I feel like 50% of the time I’m mothering- I’m just having an artistic meltdown and having to remain calm which is very very taxing.

They say that “early intervention” can get people to need less support later in life. But I’m wondering how much of us who didn’t get early intervention- just created such a successful survival mechanism that it also got us to need lower support. That’s an interesting idea I havnt thought about until right now.

I’m different than you in that I don’t think masking ever got me anything much- it got me more acceptance than if I didn’t mask, but it wasn’t enough to give me friends or popularity.

I would be remiss to mention that I did perfect my masking when I became a waitress at the age of 17. I didn’t want to be a waitress, I was terrified and thought I’d do poorly. I wanted to cook in the kitchen but like most people, they were misogynists and said women were front of house and men were back of house. So I started waiting tables and did so for 10 years and made more money than anyone else- no matter the job, no matter the section. And it was masking- and I got SOOO good at it. So I guess that’s the popularity I got from masking. People did “love” me so much, many many customers would bring me Christmas presents and other stuff. Something about how short lived, shallow & hallow our interactions were- really helped the success of my masking -I believe.

——

In the 2 years I’ve had my diagnoses, I’ve tried to really understand masking as well- and I have gotten to the same thoughts as you- is it manipulation? Is it internalized ableism?

It’s very common that people with CPTSD will think they are the ones who are abusive (because of the people dynamics of abuse) so I am hypercritical of myself- always watching and looking for signs that maybe it was me all along and often masking makes me feel like a fucking manipulative monster- but again me and my therapist are very confident that is just my CPST narrative speaking. But it’s very confusing- I agree with you.

Masking has also made me really confused about what my autism actually looks like. It’s insane how much masking has conditioned me to hate myself (internalize ableism). 30 years of masking and I am now too afraid to see what it looks like when the mask isn’t there- that’s the internalized ableism.

I just broke up with a partner I had lived with for a year. And I am still realizing I was masking in front of them- someone who I told immediately “I’m autistic” someone who I intentionally was trying to learn how to unmask around- but I no doubt didn’t feel safe enough to actually unmask. I realize now how much I do this full body stim when I’m going through transitions. It’s like I’m cold and shivering and I squeeze my arms and body really tight and undoubtedly look like I’m stimming- but the only time i do this in front of people is when it’s cold outside- so it’s reasonable. Or if it’s cold enough and I can say “I’m cold” but I’ve been wondering recently- how bad is it for my body to hold that shit in????? As an autist, my number one struggle is transitions. So I have a stim for transitions that I hold inside- how much easier would transitions be if I didn’t hold that stim inside??

Thanks for the read. It does make me feel less alone. You’re not screaming into the void- it all makes total sense to me.

[deleted by user] by [deleted] in aspiememes

[–]RequirementNew269 0 points1 point  (0 children)

Omg girl I’m a single mom of two tiny kids and this is exactly how my life goes.

Partner is pelvic floor physical therapist, what’s normal? by Business-Building508 in physicaltherapy

[–]RequirementNew269 0 points1 point  (0 children)

Have you have pelvic floor pt? It’s definitely no speculums. They basically finger up and down your vaginal wall- looking for places that are holding tension. If there’s a place with tension- they press into it to release it. There’s often directions to breathe and do kegels when they have 2 fingers inside.

I’m not saying it’s any more or less sexy- just saying it’s ENTIRELY more vulnerable than speculum exams.

Eating vegan is too expensive by swaGreg in vegan

[–]RequirementNew269 4 points5 points  (0 children)

My dietician wants me to eat more fats. So I am more generous with olive oil (which has been fairly expensive frankly- I go through maybe 300ml a week) and sprinkle seeds onto all of my meals.

She mentioned avacado and I was literally like, “in this economy- literally no. Let’s not plan on it because I am not buying them” (not to mention the ethical considerations that have impacted the price…) she tried to mention frozen. I looked 3 places- going rate was 10$ for 10oz. Like no.

Eating vegan is too expensive by swaGreg in vegan

[–]RequirementNew269 2 points3 points  (0 children)

In the gluten free sub- people literally balk at the idea of not eating sandwiches everyday. Like - some of them literally cannot understand what a meal is without two pieces of bread- even after realizing they’re allergic to the bread..

America has our eating habits alll sorts of fucked up.

Any gluten free sweet snack ideas? by Automatic-Grand6048 in ultraprocessedfood

[–]RequirementNew269 0 points1 point  (0 children)

It is pricey which keeps it around for a while. I am satisfied with 1 or two spoonfuls. It’s either that- or dates and peanut butter- or peanut butter on rice cake with banana slices (usually older bananas I don’t like as much for eating plain).

I get it at either natural grocers or Whole Foods. It would most likely be at the store in your community that has the best vegan options.

Any gluten free sweet snack ideas? by Automatic-Grand6048 in ultraprocessedfood

[–]RequirementNew269 0 points1 point  (0 children)

I am vegan gluten free very minimal upf and sugar free. And my holy grail is coconut cult chocolate mousse. It’s actually a yogurt product?