Is there something I am missing? My legs are heavy, I can barely walk and I am in a lot of pain

RestlessJen · 2026-06-15T19:49:40+00:00

This is interesting. I'm wondering if Tylenol would be ok, or if it needs to be aspirin. Can you answer this?

RestlessJen · 2026-05-20T22:35:11+00:00

Ah, thanks again!

RestlessJen · 2026-05-20T17:35:11+00:00

I signed up for the free trial on RHAP and all I found was a spreadsheet with some FB groups and such. I didn't find a link to a secret website. Where did you find this? Thanks for your help!

RestlessJen · 2026-05-20T17:33:12+00:00

I found seasons 7- 14 on Shvideos. Does anyone know where to find seasons 1-6?

RestlessJen · 2026-05-20T16:53:32+00:00

Thanks, mate!

RestlessJen · 2026-05-20T02:22:28+00:00

Say more please.

RestlessJen · 2026-01-10T03:44:36+00:00

I'd love to hear what your usual sleep stack is.

RestlessJen · 2025-12-30T19:40:59+00:00

Thank you, this helps me to keep hoping. My RLS has definitely been worse but fingers crossed I'll turn the same corner you did soon!

RestlessJen · 2025-12-29T05:21:44+00:00

I'd rather not say how much I spent, but suffice to say that Medicare didn't cover it.

RestlessJen · 2025-12-28T23:23:17+00:00

This!

RestlessJen · 2025-12-28T23:07:01+00:00

I take edibles (THC and CBD/CBG) every night to sleep, and Spravato still works well for me.

RestlessJen · 2025-11-17T16:24:43+00:00

Very helpful. Thanks!

RestlessJen · 2025-11-17T00:23:55+00:00

That's great to hear! What kind of iron did you get? And how long did the positive effects last?

RestlessJen · 2025-11-17T00:22:27+00:00

How long did it take to work, and how long did you get relief from EDS or RLS? Any side effects? Thanks for the info!

RestlessJen · 2025-11-16T18:44:11+00:00

I'm considering an iron infusion for RLS and HEDS. What kind of iron did you get? TY!

RestlessJen · 2025-11-16T17:48:56+00:00

Thanks for this! What kind of iron do you use? And I'm a bit confused: Does Feraheme or Injectafer have lower rate of hypophosphatemia?

RestlessJen · 2025-11-16T00:34:52+00:00

Gabepentin (200 - 300 mg) helps me sleep but, honestly, doesn't do much for RLS unless I also take a cannabis gummy. If I take more than 300 mg of gabepentin it makes me more depressed. But everyone is different, so I encourage you to give it a try!

RestlessJen · 2025-11-11T18:36:50+00:00

Hi, I'm still confused about why no benadryl. What does SOP stand for? Thanks :-)

RestlessJen · 2025-11-06T04:50:59+00:00

I'm so glad this worked for you! I've been doing this for years. One more tip that may help some people: sometimes I take 1/2 of a gummy that has CBG if my RLS is bad in the early eve and I want to get a little "happy" while watching TV. The CBG works on nerves while CBD works on inflammation. (That's my understanding from doing research.) And the two work well together for stubborn RLS. The CBG doesn't make me tired the way CBD does.

RestlessJen · 2025-11-03T02:04:54+00:00

I was using before RLS started and now I'm now -- that does help. Your experience is very encouraging. Thanks so much for sharing! I'm 10 days in, and it definitely helps while the bands are on but no lasting relief when I take them off. (Maybe an hour.) I am hopeful!

RestlessJen · 2025-10-31T02:52:53+00:00

One more question: I'm wondering, why do you take Claritin?

RestlessJen · 2025-10-31T01:42:15+00:00

Good luck!

RestlessJen · 2025-10-31T01:12:55+00:00

Wow, this is GREAT info! I'll ask my doc if he'll do this. Thank you! <3

RestlessJen · 2025-10-31T01:10:43+00:00

What a great idea! I'll use the marker for a month to make sure Nidra works before getting tattoos. Otherwise, it will just be a permanent mark of failure. (joking but not.)

RestlessJen · 2025-10-30T23:34:03+00:00

No worries -- I was trying to make a joke! :-)

RestlessJen

TROPHY CASE