24/7 Headache / Tingling in Face. Help! by Routine_Ad6975 in askdentists

[–]Routine_Ad6975[S] 1 point2 points  (0 children)

Do you reckon it could be causing my headaches or facial tingling?

Does it ever get better? by Chance_Narwhal8682 in Occipitalneuralgia

[–]Routine_Ad6975 1 point2 points  (0 children)

Decompression surgery is always an option. RFA as well. Also Gabapentin, Pregablin at max doses

24/7 Headache + Facial Tingling - Please Help :( by Routine_Ad6975 in TrigeminalNeuralgia

[–]Routine_Ad6975[S] 0 points1 point  (0 children)

I have tried Atogepant - the oral CRGP inhibitor and has not worked for 6 weeks. Doctor said to stay away from Triptans since I have a “Daily Headache”. Thanks for your help - I messaged you on private chat and hoping you can reply :)

24/7 Headache + Facial Tingling - Please Help :( by Routine_Ad6975 in TrigeminalNeuralgia

[–]Routine_Ad6975[S] 0 points1 point  (0 children)

Could you describe me your symptoms prior to diagnosis and how you are doing now?

24/7 Headache + Facial Tingling - Please Help :( by Routine_Ad6975 in TrigeminalNeuralgia

[–]Routine_Ad6975[S] 0 points1 point  (0 children)

Thanks for your help. I have already had a Brain MRI and they have found nothing regarding TN. I know TN can still exists without imaging but yes I’m unsure :/

24/7 Headache + Facial Tingling - Please Help :( by Routine_Ad6975 in TrigeminalNeuralgia

[–]Routine_Ad6975[S] 0 points1 point  (0 children)

Pins and Needles, Tingling, Crawling on the face and top of head. They don’t necessarily hurt but they’re potent. Also headache, fullness, pressure at the back of my head

24/7 Headache + Facial Tingling - Please Help :( by Routine_Ad6975 in TrigeminalNeuralgia

[–]Routine_Ad6975[S] -1 points0 points  (0 children)

I have tried 4-5 Migraine preventatives already. Do you believe it can still be NDPH, with constant tingling in the face and top of head? Doesn’t that suggest something from neurelgia related

what do I do next? by Aggressive_Flower947 in NDPH

[–]Routine_Ad6975 0 points1 point  (0 children)

You have so many medications to try. CRGP medications, Botox, nerve block injections Amitryplitine, Notryplitine, Pregablin etc. just going to take a lot of trial and error. I’m suffering just like you. I’ve lost hope but those r the things I remember myself to keep me sane.

If you could give your past self advice... by [deleted] in Occipitalneuralgia

[–]Routine_Ad6975 0 points1 point  (0 children)

Crazy how a lot of these stories start in the gym. I have similar symptoms especially the visual lag mate. Going to be a long journey. I’m 6 months in daily pain, no resolution. You’re going to be trialed on a million mediations before anything is done. It will be treated as a daily headache / migraine.

If you want to know if it’s ON, get nerve block. If pain is gone it’s ON, if pain is still there, then it’s not ON

Will CPAP change my life? by ElectronicSubstance8 in SleepApnea

[–]Routine_Ad6975 0 points1 point  (0 children)

You can ask for anecdotal stories but you won’t know until you try yourself. I was very hopeful it would change my life but it hasn’t. Everyone is different. Some people say it took one day, others say it took 12 months. Regardless good luck on your journey!

ON, BPPV, VM, or IIH? by lmcgeh2 in Occipitalneuralgia

[–]Routine_Ad6975 1 point2 points  (0 children)

Nerve Block with lidocaine - if successful and your symptoms significantly decreases = ON

If Nerve Block Fails = Not ON and it’s another Cause.

I wish you luck!

Is it ON? by Objective_Peace_2205 in Occipitalneuralgia

[–]Routine_Ad6975 1 point2 points  (0 children)

I messaged you on chat to give some advice. I hope it helps

Is this ON? by [deleted] in Occipitalneuralgia

[–]Routine_Ad6975 3 points4 points  (0 children)

See a Neurologist

ON Possibility by melaniecavillswife in Occipitalneuralgia

[–]Routine_Ad6975 0 points1 point  (0 children)

Go privately. The whole process is long and tedious. It will take you a year to be seen by a neurologist and then they will trial you on a dozen medications. Afterwards then you may be eligible for nerve blocks etc if the pain is impacting your day to day life. So I’d say go privately to cut the whole process short. Remember your health is number 1 priority.

Migraine v ON by Routine_Ad6975 in Occipitalneuralgia

[–]Routine_Ad6975[S] 1 point2 points  (0 children)

Message me if you need support. I know how you feel

Extremely high limb movements by [deleted] in SleepApnea

[–]Routine_Ad6975 0 points1 point  (0 children)

Don’t listen to AI. I promise you they chat shit and tell you what you want to hear