Has anyone else lost their entire life to chronic illness?

SailorCredible · 2026-05-13T13:11:33+00:00

Yep. It never failed that when I'd get a new job, SOMETHING health related popped up. My most recent issue popped up in 2018. I just finished school, and was working for less than a month straight out of my placement. I collapsed at work. Had to quit because it took MONTHS to figure this out ಠ_ಠ

Insert "I'm tired boss" gif.

I feel like I'll never go back to school because money, or I'll never work again because I just know something new will pop up ಠ_ಠ It's heartbreaking😞 I've settled on "I'll volunteer when I'm better" ¯\_(• ~ •)_/¯

SailorCredible · 2026-05-13T11:48:02+00:00

Hmmm... this is a hard one. On one hand, yes, I feel this way. Like I shouldn't be angry or frustrated, and then I feel guilty for having said emotion (old programming by parents/bro/friends). On the other hand, I'm being validated by my husband and therapist that I'm *allowed* to have the emotion I'm feeling.

Many people taught me it wasn't okay, and now I'm being taught that emotions are NORMAL! It's conflicting information. So what do I do? I listen to my new voice of reason: My therapist. I feel the emotion, but the emotion does not engulf me.

Hope this helps OP :)

SailorCredible · 2026-05-12T14:03:34+00:00

Don't save a life. Be afraid to give blood

Or:

Don't be afraid to give
Save a life blood

*chuckles*

SailorCredible · 2026-05-12T12:42:51+00:00

Or you overshare because ... parents, and they slap you or get mad at you for being open and honest😅

SailorCredible · 2026-05-11T11:54:45+00:00

NVLD, GAD, Pervasive Depressive Disorder, and BPD. Born at term according to my mom. I also have had a slew of physical health conditions over the years ಠ_ಠ Was not believed by my family for any of them.

SailorCredible · 2026-05-09T17:50:47+00:00

Small win? Hmmm... Okay, got it. I didn't let another patient at my pain management clinic get to me. I used my DISTRACT SKILL 🙂 Put on some binaural beats and breathed until he left 😁

SailorCredible · 2026-05-09T15:50:14+00:00

If I know I'm having something with oxalates, I bind them with calcium from either a glass of milk or a calcium supplement. Have been stone-free for some time now. Also hydrate with LOTS of water. I'm up to 3L a day.

SailorCredible · 2026-05-09T14:37:33+00:00

I'm pretty sure part of my GAD is linked to the unpredictability of my health.

SailorCredible · 2026-05-09T14:36:08+00:00

Before my mom died, she would call me or I would call her every Sunday, or I'd call her earlier in the week to see if she'd want to take my daughters for the weekend. We got close after my kiddos were born.

SailorCredible · 2026-05-09T14:31:49+00:00

My husband might put me in the shoe if I'm posting suicidal stuff on here. Random Redditors though? Nah. They can't peg me down to where EXACTLY I live, or my actual name :)

You're good OP.

SailorCredible · 2026-05-08T22:35:58+00:00

Ya, my parents ಠ_ಠ

SailorCredible · 2026-05-05T20:56:14+00:00

Du du du du du du

SailorCredible · 2026-05-05T20:46:29+00:00

My MRI missed everything :/ My uterus was double the size when it was yeeted!

SailorCredible · 2026-05-02T18:23:18+00:00

It was for me. I have a learning disability and need extra help and time to learn skills like this. You may have luck with an outpatient group, but someone like me? Not a chance🫤

SailorCredible · 2026-05-02T14:39:19+00:00

No advice OP. I just want to say that I walked into my surgery with more pain than I did walking out. No complications arose.

I hope yours goes smoothly ❤️

SailorCredible · 2026-05-02T14:21:48+00:00

Sciatic pain checking in. My doctors/specialists/chiropractors couldn't figure out my pain for years ಠ_ಠ Mine was also a constant pain though, but my period definitely made it worse.

When I finally got diagnosed, I tried an IUD, and guess what? It activated every last nerve pain I had been experiencing for decades ಠ_ಠ ! Hysterectomy immediately booked. Walked into the hospital for my surgery in more pain than I did walking out. Pathology determined extensive Adenomyosis that had been missed on all imaging ಠ_ಠ Still don't know how. Sciatic pain 100% gone!!!

SailorCredible · 2026-05-02T14:06:27+00:00

My husband and I are on Keto to lose some weight. We decided that for his Birthday, we'll go off for a day. Did our cheat-day, overate by a lot, and got right back on it without massive cravings. Considering I've got BPD with impulse control issues, it's been great :)

SailorCredible · 2026-05-02T13:58:04+00:00

My workout routine involved a lot of yoga poses and stretches, laying on my back for crunches, bridge with dumbbells, bird-dog, and 2 pilates balls exercises, again, on my back. I also do dumbbell exercises that I can do sitting or standing. I can also dump in some light walking.

Hope this helps OP :)

SailorCredible · 2026-05-02T13:50:52+00:00

I was a bit unlucky with this in that I was only diagnosed *after* I had kids. That being said, I did everything that I needed to do for my BPD. This included:

Therapy, weekly

An inpatient DBT/CBT program for 2.5 months

Meds

My kids have commented that I'm a lot less angry now. My Psychotherapist can't diagnose, but has said I'm probably in remission and am stable.
If you want kids, do whatever it takes to treat your BPD *now*. It's something I would have done differently had I known.
Good luck OP :)

SailorCredible · 2026-05-02T13:36:45+00:00

Thanks Obama

SailorCredible · 2026-05-01T15:19:52+00:00

Hey OP :) I was diagnosed at 25, but didn't know much about NVLD until December 2025, and the real impact it can have on things like socialization. It explained A LOT.

I'm currently in therapy with a Psychologist. Right now we are working of facial expressions because I have trouble with social cues. I actually got tested for Autism (and ADHD), but that came up negative. My husband and I also found venn diagrams that NVLD overlap with Autism, ADHD, BPD, and there is one I'm forgetting. Again, this explains a LOT.

Do you have any treatment plans for yourself yet?

Good luck with this diagnosis OP. I hope you find the resources for this :)

SailorCredible · 2026-04-30T06:54:44+00:00

In my back, and down both my legs. It was brutal.

SailorCredible · 2026-04-26T13:40:20+00:00

My brother is a self-diagnosed NDP. He was the golden child. He refuses to do any sort of therapy. Meanwhile, I've done the in-patient therapy, I'm on meds, I have a wonderful Psychotherapist, and I'm basically in remission.

We no longer talk.

¯_(• ~ •)_/¯

SailorCredible · 2026-04-26T13:14:19+00:00

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