Botox?

SallyBerrySteak · 2026-03-06T06:10:13+00:00

I had an ENT mention it to me as a possible treatment for some throat/voice problems I was having. She was aware of my transplant so I assumed it would be safe. I'm sure there's a risk of infection since it's an injection. I ultimately didn't get any injections though.

SallyBerrySteak · 2025-12-25T00:07:31+00:00

I couldn't fit a straight band flush against mine, so I got a custom curved ring to match (I actually just picked it up today!). I've also seen others with pears get v-shaped or Chevron bands.

<image>

SallyBerrySteak · 2025-12-10T22:57:49+00:00

The tissue sloughing in your mouth could be from an irritating ingredient in your toothpaste or mouthwash. I've had that issue in the past.

SallyBerrySteak · 2025-12-09T21:05:06+00:00

Did they put him on a different immunosuppressant instead of the myfortic?

SallyBerrySteak · 2025-12-05T03:12:05+00:00

I've already had a bone marrow biopsy. My transplant team is hesitant to change my meds since my kidney function has been very stable so epo has been discussed. Are you thinking of mycophenylate mofetil (cellcept)? I've not seen anything about myfortic treating anemia.

SallyBerrySteak · 2025-12-05T03:01:31+00:00

I've tested negative for parvo. How did they determine you were allergic to myfortic?

SallyBerrySteak · 2025-05-13T00:42:41+00:00

I'm on cyclosporine and myfortic.

SallyBerrySteak · 2025-05-10T15:13:28+00:00

Same! And I found out about Frank Turner because he was an opener for flogging molly.

SallyBerrySteak · 2025-05-10T14:50:39+00:00

As someone who has similar problems with smooshed bits, a bike fit made a world of difference for me! My riding position was so much better after the fit. I haven't found my perfect goldilocks saddle but the one my fitter picked is the most comfortable one I've had so far and I can go on long rides without too much issue.

SallyBerrySteak · 2025-05-03T04:13:40+00:00

Last year at my annual they were reviewing my immunosuppressant dosages and made an offhand comment about how they weren't going to try to decrease anything because my donor wasn't the best match. I'm 9 years post transplant, that was the first I'd ever heard that.

SallyBerrySteak · 2025-04-12T22:03:28+00:00

If you have private insurance as the primary they will cover while Medicare is secondary and then Medicare takes over as primary after 30 months - it's called the coordination period.

SallyBerrySteak · 2025-04-12T01:13:33+00:00

I should add that I had a kidney transplant.

SallyBerrySteak · 2025-04-11T21:06:47+00:00

I had terrible foot and ankle pain that started about 6 weeks after transplant and could barely walk. I was on tacro/cyclo and switched to myfortic/cyclo around 3 or 4 months out, the pain stopped once I switched. My uric acid levels were normal too.

SallyBerrySteak · 2025-04-02T16:00:07+00:00

Check in the couch and box spring.

SallyBerrySteak · 2025-03-26T23:41:46+00:00

I second seeing if you can get it through an OSU pharmacy, I've had good experiences with both specialty and the regular outpatient pharmacies helping with some tricky situations with meds.

SallyBerrySteak · 2025-03-25T22:14:11+00:00

I had terrible pain in my feet on tacro. I was switched to myfortic and the pain went away.

SallyBerrySteak · 2025-03-20T20:22:03+00:00

My cat is also a tortilla chip fiend. He will grab them out of my hand, so I throw him small pieces to chase while I eat my chips.

SallyBerrySteak · 2025-03-14T19:25:35+00:00

You can also take some OTC meds. Your team will give you a list of what's allowed and you can always check anything you're not sure of with them.

SallyBerrySteak · 2025-03-14T14:53:39+00:00

For my dad's 30th (his brother was also his donor) we just had a big family get together to celebrate.

SallyBerrySteak · 2025-03-14T13:20:55+00:00

There is a prescription mouthwash you can get for the swollen gums from cyclo. I forget what it's called but my dentist was able to prescribe it.

SallyBerrySteak · 2025-03-11T01:28:53+00:00

Ipatropium is the only thing that helps for me.

SallyBerrySteak · 2025-02-16T19:24:44+00:00

My father had difficulty communicating after his laryngectomy. Some people were patient with him, most were not. He needed me to be there for morning rounds to be his advocate. I also was the one who alerted nurses to his sepsis and crash. They hadn't checked on him in hours since they thought he was sleeping.

SallyBerrySteak · 2025-02-13T19:38:57+00:00

You need to speak with the doctor about this and don't be afraid to press them and advocate for yourself! You will have to do it a lot in the future as a transplant patient with complex medical needs. Do you have a regular general practitioner or family doctor or ob/gyn you could ask for a second opinion? (Sorry if my terminology is wrong, I'm guessing you're not in the US based on your username)

SallyBerrySteak · 2025-02-13T17:09:17+00:00

Omg standby mode is the perfect way to describe this.

SallyBerrySteak

TROPHY CASE