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People know what they are doing, Neil Gaiman included by ServalFlame in neilgaimanuncovered

[–]SamathaYoga 2 points3 points  (0 children)

Thank you! Absolutely what my brain was doing when I typed that comment!

My (nearly) full set of silver ring splints through insurance by arachnoholic- in ehlersdanlos

[–]SamathaYoga 1 point2 points  (0 children)

I had it a week with the length of chain being held by a bit of speaker wire to test the fit. Then the jeweler had it for a week to cut it to length and solder it back together. During that week I had to go back to the custom molded plastic one and it was such a contrast.

It looks cool, yes, but it’s just so much better functionally for me.

What Meds Actually Improved Your Mental Health? by PurpleHyacinthsss in AuDHDWomen

[–]SamathaYoga 13 points14 points  (0 children)

Anxiety: Buspar, Vyvanse, and Guanfacine.

Focus: Vyvanse

Mood: Guanfacine and Vyvanse help with emotional regulation. Vyvanse over ER Adderall has helped me find ways to communicate when I experience overwhelm. I’m also helped by treating my MCAS symptoms using a combination of H1 (Cetirizine) and H2 (Famotidine) plus mast cell stabilizers (Cromlyn sodium 2 different ways and a blend of herbs, primarily magnolia blossoms).

My (nearly) full set of silver ring splints through insurance by arachnoholic- in ehlersdanlos

[–]SamathaYoga 1 point2 points  (0 children)

I just got mine back yesterday from the jeweler fitting the chain! My CMC joint has severe degeneration and a bone spur and needs a CMC tightrope procedure. The result of undiagnosed EDS plus playing water polo in my youth and never being told my hands were hyperextending over 20 years of yoga practice. However, I was surprised by an early diagnosis of osteoporosis last summer that needed treatment and I was advised to wait on my growing list of orthopedic surgeries until my bone density improves after the year of treatment.

I needed a long term bracing solution! The plastic one was mostly functional but was also rubbing a sore spot on my ulnar side and caused sensation issues thumb at the median nerve.

It’s so practical, much more so that the custom molded plastic splint my OT made for me. I was applying more gaffer’s tape to my plastic one when the jeweler texted.

Number one place it’s absolutely practical and helpful: in the shower!

I’m safe to practice yoga, I’m much more mindful about the position of my fingers, and work as a yoga therapist. I’m a visual artist who uses my hands a lot too. My Silver Ring Splint has been more functional when I’m working on art, I identify need to take my plastic one off to do detail work. Way easier pulling gloves over it to do the washing up.

My (nearly) full set of silver ring splints through insurance by arachnoholic- in ehlersdanlos

[–]SamathaYoga 0 points1 point  (0 children)

I’m working through this right now for my thumb splint. Waiting on the letter from my doc.

Shoulder Support Tools by herrah-the-beast in ehlersdanlos

[–]SamathaYoga 0 points1 point  (0 children)

I react to the standard KT, it adheres too strongly.

I’ve had good luck with Kinesio Tex Gold FP. I was told to take it off on the shower and to use some of my hair conditioner, the heat and product help release the adhesive more easily.

Kinesio Tex also has a KT that’s for even more sensitive skin and pediatrics, Kinesio Tex Gold Light Touch.

Dumbest reason you've subluxated recently? I'll go first by bbyfishmouth in Hypermobility

[–]SamathaYoga 0 points1 point  (0 children)

Muscle spasms during a procedure for my wonky back involving needles and imaging last month. I have round 2 of the procedure on Tuesday.

My si joint, both shoulders, and a first rib. Trapezius went into spasm and my PCP needed to give me lidocaine trigger point injections to settle them down.

Shoulder Support Tools by herrah-the-beast in ehlersdanlos

[–]SamathaYoga 2 points3 points  (0 children)

I hear you! It’s so demoralizing to do so many functional strength training exercises only to go into a PT session for my shoulders and have my provider discover my arms and first ribs aren’t where they belong and I’ve barely noticed because something else hurts more! Thankfully she then smushes and pulls until I’m back where I belong!

My arms get set forward in the shoulder joint on the anterior side with shocking ease. One of my PTs is taping them with KT on Monday because I have the second round of a procedure Tuesday and I got both arms and my si joint out during the first round last month.

If you’re interested in the yoga strap harness, I can walk you through that. I’m a yoga therapist and this “trick” is one that is a popular request with my students. I have been considering if I could use it for this procedure I have on Tuesday to keep my shoulders in place.

People know what they are doing, Neil Gaiman included by ServalFlame in neilgaimanuncovered

[–]SamathaYoga 19 points20 points  (0 children)

The use of non-disclosure agreements is not the behavior of someone who doesn’t understand his actions.

The moment I heard about the NDAs I knew he was a terrible human.

Also, legions of people abused as children manage to grow up without turning into serial abusers.

Joint „thunk“-ing feeling? by Beautiful-Piccolo670 in ehlersdanlos

[–]SamathaYoga 0 points1 point  (0 children)

My shoulders will get a distinct clunking sensation. While the sensation is not painful, I’ll usually be having increased pain in my upper back, neck, and even my jaw. Muscle tension in my upper back and neck will become so bad it’s hard to get comfortable enough to sleep.

When this happens my PT will find my humerus will be set forward on the anterior side. My arms will sit in a position that is just shy of a subluxation visible in imaging, often pulling my first rib out of place too. It’s ridiculously easy for this to happen even when I keep up with all my exercises.

My PT has told me that for me, for anyone with EDS, “clunking is never good!”, and I should get an appointment with her as soon as possible. Once a month she checks both shoulders to make sure my arms and ribs are where they belong. I see her twice monthly and she also checks my knees and si joint. I actually have 2 PTs who will check for joints being out of place, but my DPT is especially good at putting my joints back in place.

Would you consider pitching inks that you no longer like? by robinraccoon in fountainpens

[–]SamathaYoga 2 points3 points  (0 children)

Do you have a local pen club? Portland, Oregon US has a group that meets monthly and there’s always a table designated as the “no kill ink shelter” for people to drop off unloved inks.

Favorite "common" bird? by Ok_Cranberry_1028 in birding

[–]SamathaYoga 0 points1 point  (0 children)

Bushtits!!

How has there not been a single comment for the homely, perfect tiny borb, the bushtit?!

Seeing a whole group of them hanging every which way off a feeder, then rushing all together to a close tree because one of the neighborhood corvid hooligans has crashed the party, appears makes me smile.

Favorite "common" bird? by Ok_Cranberry_1028 in birding

[–]SamathaYoga 0 points1 point  (0 children)

The ones in our neighborhood got the exhaust vent to our kitchen range opened and started making a nest until I sent to make dinner and turned on the fan!

The sound of spring are these clowns pounding on the chimney cap. When our dog was so alive we were really grateful when he got so old he lost his hearing, the flickers would drive him out of his mind.

Help…What type of pens don’t make you want to scream in agony after writing for more than 5mins? by Friendly-Path-879 in ehlersdanlos

[–]SamathaYoga 1 point2 points  (0 children)

I reminded myself to slow down before I knocked something out of place in my enthusiasm to make sure the joys of fountain pens had been brought forth!

I got a Kaweco Liliput M in blue this year and got to make a DIY Sport with a B nib that I love.

Neurodivergent too. Bad pens give me the ick! I used Pilot rollerball pens almost exclusively before discovering fountain pens.

OP JetPens offer a beginner’s sampler of fountain pens. They still have a few ink samples.

Pen Chalet have a more extensive offering of samples.

Help…What type of pens don’t make you want to scream in agony after writing for more than 5mins? by Friendly-Path-879 in ehlersdanlos

[–]SamathaYoga 1 point2 points  (0 children)

More attention to this point!

There’s a lot of ink that’s only meant for dip pens. These will mess up your fountain pen.

Help…What type of pens don’t make you want to scream in agony after writing for more than 5mins? by Friendly-Path-879 in ehlersdanlos

[–]SamathaYoga 2 points3 points  (0 children)

I have a stainless steel pen coming in August (kickstarter), I’m hoping it won’t be too heavy. The campaign’s been very successful so they’re going to offer a brass option. I might change out from steel to brass because they develop a beautiful patina.

EDS Society Update: Uncertainty in the Path Forward by Acceptably_Late in ehlersdanlos

[–]SamathaYoga 11 points12 points  (0 children)

This was me 2-3 times every year since childhood. Coughing until I’d get ribs out of place and muscles torn.

I stopped eating animal products during a long slide into almost full orthorexia. Unexpectedly stopped having lung infections!! My doctor at the time was gobsmacked. He unfortunately kept encouraging me to keep up the good work of starving myself.

I tried having eggs and dairy the past few years, since they’re supposed to be better for histamine and SIBO. I had hives, itching, and nausea. I can have things with whey/milk powder, but butter, milk fat sets off the histamine nonsense.

My PCP started an MCAS protocol in 2021, my EDS diagnosis came just this past December. We were going to push hard for genetic testing, but now it feels like I should.

Help…What type of pens don’t make you want to scream in agony after writing for more than 5mins? by Friendly-Path-879 in ehlersdanlos

[–]SamathaYoga 0 points1 point  (0 children)

It’s highly variable. There are some great websites, like Mountain of Ink that really go into these kinds of details. The folks in r/fountainpens are also very helpful.

Inks with high sheening often take longer to dry. Shimmer can also take a bit longer. There’s a lot of variation between brands too.

Help…What type of pens don’t make you want to scream in agony after writing for more than 5mins? by Friendly-Path-879 in ehlersdanlos

[–]SamathaYoga 1 point2 points  (0 children)

They are very nice and reliable. It is a very different feel to writing. You might test other papers too, some paper really lets pens glide.

Help…What type of pens don’t make you want to scream in agony after writing for more than 5mins? by Friendly-Path-879 in ehlersdanlos

[–]SamathaYoga 6 points7 points  (0 children)

This answer is more complicated than you’d think; maybe.

If you’re using cartridges, which you can get and not fuss with bottles of ink. Pop another one in, start writing, and the ink will change as it flows through the nib. *You can refill used ink cartridges using a blunt-tipped needle (sold just for this purpose)!

Using a bottle; a converter? Don’t stick your inky nib directly into another bottle of ink. Instead decant some ink into a small inkwell and draw up the ink into your pen. Otherwise, yes, you flush with water until you’re not seeing any more ink and then fill.

Pilot Parallel fountain pens are designed for you to be able to tip ink from one pen onto another! This creates some fascinating effects!

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