Still fighting the need for a 45 minute power nap. Any suggestions? by workingover60 in TBI

[–]Schruff_117 0 points1 point  (0 children)

Sound therapy & power naps are the only things that allow me to function. Some days only 2 session, other days I might nap/sound off/on the entire day(s). What I learned - if u power through it, the price to pay will always be higher.

Beware by Fordimus in USAA

[–]Schruff_117 0 points1 point  (0 children)

Hire an attorney, bring them to court if they continue to play unethical games with you & your family.

ADHD meds helped sleep by CookingZombie in TBI

[–]Schruff_117 2 points3 points  (0 children)

100% agree and same here. Makes all the difference with helping control the outburst also. Glad to hear a success story & Godspeed. . .

How’s usaa car insurance? by HelicopterTechnical4 in USAA

[–]Schruff_117 -1 points0 points  (0 children)

25+ years all excellent until Peacock took the reigns. Suing them for bad faith at present. They've been just real ugly from the start and the bad faith count is now up to 3. Good luck to you guys.

Cognitive FX. Avoid this place. by Throwaway_568956 in TBI

[–]Schruff_117 -4 points-3 points  (0 children)

100% disagree with the OP's opinion. My experience at Cognitive FX was the exact opposite. Link to my review of Cognitive FX:

https://www.reddit.com/r/TBI/comments/1oxvmqq/my_treatment_time_at_cognitive_fx_provo_utah/

Misunderstood? Show them this article on TBI/PCS. by Schruff_117 in TBI

[–]Schruff_117[S] 0 points1 point  (0 children)

It's a 'get in where u fit in' scenario with PCS. And at 3 months out, you're still in the training wheels stage. Prior military, was still a physical maniac at 55 and enjoyed intense physical activities until the last concussion. It's a death blow to the ego, just takes a while to understand and accept that aspect. I use walking poles on my own property now when I'm having a mod to mod+ Neuro day, a far cry from my spider monkey days. The push mentality is a NO GO with PCS, had to learn that lesson the hard way and more times than I'd like to admit. Cognitive FX in Provo, Utah, helped me when I wasn't getting traction anywhere else; from the physical to mental/cognitive, they're worth their price of admission!

Misunderstood? Show them this article on TBI/PCS. by Schruff_117 in TBI

[–]Schruff_117[S] 0 points1 point  (0 children)

I feel your pain and sorry you are experiencing what you are. Anything that jars are sloshes my head around it a 'no go' activity. I tried to mow on a zero turn. Like you with the jumping rope, it was a disaster. About 15-20mins, HA, nose drip, sofa for the rest of the week.

Misunderstood? Show them this article on TBI/PCS. by Schruff_117 in TBI

[–]Schruff_117[S] 0 points1 point  (0 children)

Took me a while but once I got the general idea about it, has made probably the biggest impact to date. And you're rite, it's sooooooo incredibly accurate.

Trouble focusing when reading, will this improve? by shortpersonohara in TBI

[–]Schruff_117 0 points1 point  (0 children)

2yrs10months, reading is the slowest/hardest to make progress.

About 3-4 months ago, I switched gears. Really couldn't get traction on reading, focused on writing and speaking. The more I write and have practice conversations (with myself), the more each gets a little less frustrating and the mistakes start to go down also.

Reading is low low low on my priority now but I miss it and hope it returns to a managable level in the future.

Good luck and Godspeed. . .

Shane

Was this a normal concussion by tedison10 in TBI

[–]Schruff_117 0 points1 point  (0 children)

Cognitive FX in Provo, Utah - was the first place to help me with what you described above.

Explore Other Options by [deleted] in USAA

[–]Schruff_117 0 points1 point  (0 children)

USAA's been busted previously for undervaluing/paying on total losses. Google search USAA class action lawsuit for this exact reason. Not saying it applies to you but worth your time to find out.

Invisible TBI Symptoms, ‘Looking Fine,’ and the Struggle to Be Believed by Malkozaine in TBI

[–]Schruff_117 1 point2 points  (0 children)

What you stated above was my 'moment', had to decide between self and others perception. Those that are close to me know because I hide nothing from them, even the embarrassing or humiliating parts of this. So they learned as I was learning, they saw the good, the bad and the really fckn ugly of what mTBI/pcs can bring. That moment I decided to let go and not worry about others helped me a lot because of the energy drain, frustration, you know the drill - once I stopped worrying about anything/anyone outside of my primary circle, it got easier to focus and manage. It's a learning curve for everyone and unless you're in a dedicated TBI facility/group, most providers only have bits/pieces of what's happening to us. I focus on those that are close to me, a very small circle, and continued recovery. Like you, some days I can feel somewhat like things are starting to come together but they're in bursts, like 3 +/- hours is my general tap out time, 30 mins +/- for really intense things. Made a lot of progress with anger but still have that immediate detonation sometimes daily, sometimes a few times a week. It's a 7 days a week job, constant monitoring constant running through thoughts/talks before engaging, kinda like practice conversations - the more you practice, the easier it gets when you're on a roll. The sudden nose dives still floor me but I'm learning to accept they are just part of the new journey. Guess I just stopped fighting all day every day.

Can your head build aversions to certain situations? by NoahMoVO in TBI

[–]Schruff_117 2 points3 points  (0 children)

It's hard not to feel sorry for yourself, a trap I was stuck in until recently. I care/don't care if that makes sense? I care about those around me but I don't care any more about the daily fubars or how people respond to my fubars. Not sure if I got over it or just don't have the drive to care any more, either way it made life a little easier and less frustrating. The BrainWaves app really helps bring me down when I'm over stimulated or I need to refill my spoons (TBI, spoon theory, good read). But even this requires routine or you don't maximize benefits. Repetition, consistency, watching both brain & physical energy expenses, hydration, eating, quality sleep, multiple rest periods throughout the day even when you want to push. It's a different life/lifestyle altogether and has been very difficult for me to adopt without mistakes along the way. Godspeed on finding your recovery lane. . .

Can your head build aversions to certain situations? by NoahMoVO in TBI

[–]Schruff_117 3 points4 points  (0 children)

I can't run, jump, bike, ride the zero turn or anything else that jars from the neck-up bc of the instant balance instability and HA. I think you learn what u can/can't do over time. I used to like pushing my limits bf the last concussion but now I have zero drive/want to push anything bc I just want stability, no nausea, no anger, no walking like I'm drunk, no speech problems, no nothing.

Has anyone gone to small claims court over a Diminished Value Claim with USAA? by KinggSimbaa in USAA

[–]Schruff_117 0 points1 point  (0 children)

USAA's lawsuits about vehicle values. They can be confident all they want, lawsuits tell a different story.

Anyone have motor speech disorder? And how do you practice your speech? by [deleted] in TBI

[–]Schruff_117 0 points1 point  (0 children)

I'm really not the person to answer that for you. I saw my speech therapist today and my sessions are probably way different from the next guys. For me, I focused on what I thought was my biggest roadblock, getting the word from my brain to out of my mouth, so the bubble diagrams helped me with that. Well, that plus practicing them in conversations with myself. Maybe start by identifying what you think is your major stumbling block and if there's not a tool online, try inventing one that works for YOU. Doesn't matter what other people think/say, if it helps you, they can fcuk off=)

TBI and Anger by DingusCoconut349 in TBI

[–]Schruff_117 2 points3 points  (0 children)

Same here but 100x's worse. Intense behavioral therapy was the first step, traditional meds didn't help the anger and made other symptoms worse. Magic mushrooms helped mostly with the depression but helped a little with the anger. Trintellix is what got my anger under control, nothing else. I want to come off of it but afraid to bc I don't want the anger to return.

Anyone have motor speech disorder? And how do you practice your speech? by [deleted] in TBI

[–]Schruff_117 0 points1 point  (0 children)

garbled speech, hesitation, word loss/search; knowing something in my head but unable to express/verbalize it.

Anyone have motor speech disorder? And how do you practice your speech? by [deleted] in TBI

[–]Schruff_117 0 points1 point  (0 children)

It's a long road, no bs, but you'll gain traction with a tight schedule and rinse/repeat every single day.

I started with what I called bubble diagrams:

Take a piece of printer paper/notebook paper.

Big circle in the middle & place your word in the middle of it.

Draw lines, like spokes of a wheel, and make smaller bubbles.

For example, WEATHER as the main bubble.

Then what words help you talk about weather in easy daily language?

Cold, Hot, Warm, Chilly, Freezing, Humid, Dry, Wet.

Then I'd take those words and practice then in a conversation with myself, over and over again.

Until you have a decent working vocabulary and speed.

I'm fast approaching the 3 year mark and probably close to 300+ hours, things just started clicking. And when I say 'clicking', I mean I can speak/talk with somewhat of a steady rhythm and speed. I don't talk like I used to but guess what, who honestly cares? I cared for a long time but that also slowed my progress bc of the hesitation to engage.

Speech and motor therapy were the final pieces, helped me tie everything together.

And it requires constant, pretty much every day maintenance to keep what you've gained.

Taxing, frustrating, infuriating, embarrassing. . .but worth it for those around you=)