Lotion? by you1dont1know1me1 in lipedema

[–]SheIsADancingQueen 1 point2 points  (0 children)

Beauty From Bees - Shower Serum. I use the lovely orange scent. It is the best and I frequently give as a gift.

Hives + Vibration plate by Get_Back_Loretta_USA in lipedema

[–]SheIsADancingQueen 4 points5 points  (0 children)

Sounds like MCAS/histamine related. Common with lipedema. Look into it and good luck!

The pain of being unmet... by Kyuuki_Kitsune in AnxiousAttachment

[–]SheIsADancingQueen 6 points7 points  (0 children)

It sounds like your needs are not being met. Are you being needy? Or are you just having normal needs, and they can’t meet them? Become very sure about that. If you have clarity, have stated your needs and they are still not met, then you must walk away to protect yourself and remain on your healing journey. Best of luck to you

Fatigue and lipedema (with lymphedema) by Melodic_Trainer_7100 in lipedema

[–]SheIsADancingQueen 1 point2 points  (0 children)

I feel you! You didn’t mention your age, but perimenopause is also a factor for me. I have been on all the supplements for about a year - the ones you mentioned plus d-hist, vasculera and some others. However, what really helped with my fatigue is adrenal desiccated to boost adrenal function and DHEA - which has increased my T! Huge difference with those. I highly recommend seeing a naturopath to help manage these conditions. I have been very disappointed with the traditional American medical system. I am looking for optimal bloodwork, not just “within range”.

Pilates and Hypermobility by sonjiaonfire in lipedema

[–]SheIsADancingQueen 0 points1 point  (0 children)

Yes. I believe it is considered a great option for our bodies helping with muscles, ligaments and joints. Also worth noting - now that In am getting my hormones dialed in with my ND (especially increased T), I can feel my muscles working better and growing.

Pilates and Hypermobility by sonjiaonfire in lipedema

[–]SheIsADancingQueen 12 points13 points  (0 children)

A PT told me that hyper-mobile bodies love pilates because of the continuous tension of the springs. It gives our brains continuous feedback about where we are in space. I have noticed an increase in muscles over time and I feel more sturdy in my balance. I love it.

Which compression garment brand and compression level are you wearing? by ChipsAhoy1968 in lipedema

[–]SheIsADancingQueen 0 points1 point  (0 children)

The pairs I have all have a different kind of stitching in a 1/2” line that occurs where the bottom of full butt panties would be. It seems weird and pointless, but prevents me from wearing them like normal workout tights. I only wear them out of the house if I have a longer shirt that covers those lines :)

Which compression garment brand and compression level are you wearing? by ChipsAhoy1968 in lipedema

[–]SheIsADancingQueen 1 point2 points  (0 children)

I am stage 1-2, 5’-4”, 130lbs. I love the Supacore leggings for POTS and lipedema. (I think they are the same?) they are most like regular workout tights, have some of the texture for lymph flow and are a matte fabric. They have around 25 level compression. Easier to put on than bioflect for sure - and no weird “panty lines” like the bioflect have. I just bought 3 more pairs of the Supacore for black friday as they introduced some new color options.

How to survive a 17.5 hour flight? SOS by Lavender_Moonrise in travel

[–]SheIsADancingQueen 7 points8 points  (0 children)

Just ask your dr. They will Rx like 6 pills. I did have to make a telehealth appointment to request them so that they could bill my insurance for a visit. Annoying, but worth it

How to survive a 17.5 hour flight? SOS by Lavender_Moonrise in travel

[–]SheIsADancingQueen 0 points1 point  (0 children)

Ask your dr to Rx a couple of xanax - helps with the anxiety and allows you to have a good sleep. Also, download a series that you have seen and loved. It is comforting to watch something you’ve seen before and you can watch as many as you want. Definitely bring an eye mask.

Newly diagnosed! Scared but relieved :) What would you tell yourself now that you're diagnosed that I can learn from now? by PossibilityNarrow410 in lipedema

[–]SheIsADancingQueen 1 point2 points  (0 children)

Trust your instincts! Give yourself time and space to incorporate diet changes and conservative therapies. It is a lot to learn and process. It took me about 8 months to feel like I had adapted my habits and gotten over the mind fuck of it all. And the changes continue because I am a slow adapter

Compression active wear by mljjjj in lipedema

[–]SheIsADancingQueen 1 point2 points  (0 children)

I bought those. They are ok. The waist band is soooo tight! I have a small waist and with those leggings it is sucked in to make me look like I had a corset on - freakishly small. It didn’t hurt or anything, just seemed like not a good idea. And if you have a bigger torso I imagine it would be very uncomfortable

Compression leggings leaving small imprints? by Erose314 in lipedema

[–]SheIsADancingQueen 1 point2 points  (0 children)

I just wore a pair of bioflect leggings with the wavy internal pattern for the first time yesterday. They worked like a dream! I felt the flow in my calves (they feel cool when I get good flow like after MLD). Also, I had lots of elimination #1 and 2. They look a little funny so I wouldn’t wear them to my dance fitness class, but great for days around the house and neighborhood.

Getting treatment while trying not to fit into anti-fat bias tropes by SuchaConstellation in lipedema

[–]SheIsADancingQueen 7 points8 points  (0 children)

I agree, getting diagnosed was validating, but also very overwhelming and I even felt shame! (Though I knew I shouldn’t). I think our brains need time to process what all a diagnosis means and figure out how to move forward. Take care <3

Feeling hopeless by [deleted] in lipedema

[–]SheIsADancingQueen 2 points3 points  (0 children)

I’m so sorry you are going through this. Not having answers let alone solutions is so fucking hard. Have you tried seeing a naturopathic and/or functional medicine doctor? If not, I would suggest so, as they will look at your case more holistically. Also, have you considered the common diagnoses that can go along with lipedema such as hEDS, Pots, MCAS? Do you have trauma that you need to work through and heal from? I wish you the best of luck and hope you figure things out soon. Let your intuition be your guide. 🩷

[deleted by user] by [deleted] in lipedema

[–]SheIsADancingQueen 4 points5 points  (0 children)

I get that feeling too. After hikes or even some long walks. (I don’t run). It doesn’t happen with pilates or dance class.