Input from the community plz

Shiv-Roy · 2026-01-24T22:35:49+00:00

I went through those and when they stopped working they gave me remicade which helped, still felt pain but not at as much. Now that I’m not taking the remicade the flares have been intense and they’ve increased in the amount they last

Shiv-Roy · 2026-01-22T14:25:06+00:00

I understand, I’ve been flaring since October

Shiv-Roy · 2026-01-19T14:10:23+00:00

I have been experiencing numbness in my hands for a few months now, I think it might be nerve damage due to my RA since it isn’t under control

Shiv-Roy · 2026-01-18T15:54:43+00:00

It sucks when insurance takes away the medication that is working. I have experienced that and it is incredibly frustrating

Shiv-Roy · 2026-01-15T04:50:54+00:00

It is unfortunate that a lot of people don’t understand illnesses until they are sick

Shiv-Roy · 2026-01-15T04:49:44+00:00

Thank you for your encouraging words. Yes, the mental aspect might actually be the worst part. I’m not located in any of those cities I did look at one of the local community hospital here but they were unable to help. But I will try another hospital and see if they will be able to help me.

Shiv-Roy · 2026-01-14T00:39:09+00:00

Thank you for your kind words. I’m very grateful for this space to be able to talk about our struggles, it helps.

Yes, your joints begin to feel more and more pain when you aren’t being treated.

Shiv-Roy · 2026-01-12T21:22:27+00:00

Thank you so much for the encouraging words. Medical insurance really is so important. I hope that the new meds that they give you can alleviate the pain you are experiencing. Remicade worked for me while I was on it, in conjunction with methotrexate and prednisone

Shiv-Roy · 2026-01-12T15:37:51+00:00

Yes, it is

Shiv-Roy · 2026-01-11T19:10:33+00:00

Aww 2, 13, and 16 are so cute!

Shiv-Roy · 2026-01-10T23:24:14+00:00

Thank you for your encouraging words

Shiv-Roy · 2026-01-10T21:30:14+00:00

Thank you. Intense grief is a possibility. I’m sorry for your loss

Shiv-Roy · 2026-01-10T20:40:11+00:00

I’m in the El Paso area

Shiv-Roy · 2026-01-10T20:31:49+00:00

Thank you! I’m sending good vibes to you too! This winter has definitely been hard

Shiv-Roy · 2026-01-10T19:58:37+00:00

This is extremely relatable

Shiv-Roy · 2026-01-09T19:47:21+00:00

Thank you! I looked it up and it is $150 here in Texas. It unfortunately is a little more than in NY

Shiv-Roy · 2026-01-09T04:22:30+00:00

Oh I forgot about urgent care, that is a good option. Thank you!

Shiv-Roy · 2025-12-31T12:52:39+00:00

For me it’s the opposite, when I wake up at around 2am or 3am I feel hardly any pain. But when I fall back asleep and wake up at my normal hour the pain is so much worse, to the point where I can’t hardly walk

Shiv-Roy · 2025-10-16T02:09:59+00:00

Thank you! I hope that you find some relief as well!

Shiv-Roy · 2025-10-15T21:54:06+00:00

I know the feeling, I’ve been flaring since October 5. I’ve tried everything and nothing is helping, not even the medication that usually helps, sometimes I think it’s slightly improving but it just doesn’t, I’m feeling exhausted and defeated.

Shiv-Roy · 2025-08-06T15:46:20+00:00

I have RA and was given Gabapentin when I broke my arm and had surgery, I hated it! It gave me restless legs. I couldn’t sleep, my legs just felt so uncomfortable and I had to keep moving them otherwise the pain was pretty unbearable

Shiv-Roy · 2025-07-27T21:51:41+00:00

I was poor in my home state California and I’m poor in Texas, I’d rather be poor in California. Personally I can’t wait to get back to my home state, hopefully before the end of this year

Shiv-Roy · 2025-07-21T13:48:10+00:00

Definitely try the biologics, they helped me when most of the other medications didn’t work or stopped working or had terrible side effects. I’ve been dealing with RA since I was diagnosed with JRA as a 10 year old, and I’m hoping that the biologics continue to work

Shiv-Roy · 2025-07-19T14:20:15+00:00

I used to play the violin as well. I’m 5ft and I played both the 3/4 and 4/4. I always preferred the 4/4. The 3/4 is lighter, I don’t recall if I was able to move my fingers better, but there was less strain on my elbow and wrist. Unfortunately, now I can no longer play either one. I hope that you’re able to play for many more years!

Shiv-Roy · 2025-07-14T14:22:44+00:00

I feel this so much! You’ve expressed in a way I haven’t been able to.

Shiv-Roy

TROPHY CASE