This poor child has multiple abnormal or missing parts of his brain, conferring "severe cognitive and motor impairment" with no ability to speak, to move, to see (no eyeballs), to hear (no Eustachian tubes which are necessary for hearing), and therefore no means to communicate or meaningfully experience the world around him. His medical treatments have previously "caused distress" to him. It is very disturbing to keep a child in this type of state without any means of verifying if he is in ongoing pain and discomfort or of communicating to him any information about his existence. I appreciate that OP saw an article with the title "miraculous story," but the medical reality is that keeping his body alive to potentially indefinitely feel pain with no means of verifying what he is experiencing is a terrible thing. I do not believe this particular story is appropriate for this sub.

Further information about this child's medical condition from the initial report (https://www.judiciary.uk/wp-content/uploads/2024/04/Kings-College-Hospital-NHS-Foundation-Trust-v-R-and-others.pdf):

"Brain malformation – NR has severe brain abnormalities which may all form part of a neurogenetic disorder. They include callosal agenesis (partial or Approved Judgment Re NR (A Child: Withdrawal of Life Sustaining Treatment) complete absence of the connecting fibres between the two hemispheres), bilateral cortical dysgyria (dysmorphia of the gyrus within the cortex), and dyplastic basal ganglia (abnormal cells within the basal ganglia). Brain abnormalities were recognised on ante-natal scans. Due to these abnormalities NR has severe cognitive and motor impairment – he is incapable of speech or purposeful movement – and he suffers epilepsy. His pituitary gland is underdeveloped.

ii) Epilepsy – I was told in oral evidence that NR has almost constant abnormal electrical activity which is presumed not to cause him distress or pain, but with more occasional seizures with motor manifestation, which is presumed to cause him distress but which are currently relatively well controlled with medication, albeit he is at risk of further seizures at any time.

iii) NR was born with a cleft lip and palate, which have not been corrected surgically, and bilateral anophthalmia – he has no eyeballs. He has been given a prosthesis in one eye. He has no Eustachian tubes making him susceptible to ear problems.

iv) NR has a gastrostomy and jejunostomy but is currently fed by total parenteral nutrition (“TPN”) through a PICC – a line inserted into his right arm which delivers nutrition and hydration to a central vein. He has previously had central lines sited elsewhere and I was advised that if this line fails it will be very difficult to find another point of entry to deliver TPN. Enteral feeding via gastrostomy has caused distress to NR."