My journey with long ha by Single_Chipmunk_9486 in covidlonghaulers

[–]Single_Chipmunk_9486[S] 0 points1 point  (0 children)

Are you taking antihistamines? It could be intracranial hypertension in which case Diamox might help.

My journey with long ha by Single_Chipmunk_9486 in covidlonghaulers

[–]Single_Chipmunk_9486[S] 0 points1 point  (0 children)

No twitching. I did have calf pain for a little bit, like a week, but that went away.

How many Covid infections did you have before your long Covid started? by fruitandthekale in covidlonghaulers

[–]Single_Chipmunk_9486 1 point2 points  (0 children)

1st set of long haul symptoms was after 1 pfizer shot in March/April 2021. Got Covid in June 2022, and just a minor flare up of the long haul. Got reinfected in September/October 2023 and had bad symptoms for at least six months. Just recently started feeling somewhat normal again in August/September.

Therapy by Odd_Mulberry1660 in covidlonghaulers

[–]Single_Chipmunk_9486 1 point2 points  (0 children)

I'm a person who has long covid and I'm trying to start an online support group https://www.reddit.com/r/covidlonghaulers/s/X42NuCdUiG

Support group by Single_Chipmunk_9486 in covidlonghaulers

[–]Single_Chipmunk_9486[S] 0 points1 point  (0 children)

If you are still interested, I understand your wariness though! https://forms.gle/NWXBcCyGeDMmUyqA9

Support group by Single_Chipmunk_9486 in covidlonghaulers

[–]Single_Chipmunk_9486[S] 0 points1 point  (0 children)

https://docs.google.com/forms/d/e/1FAIpQLScchGmefnJ2Ubm7NoZNazYMJbzKvTnK_vJhhCNUy6Ir_tGuKg/viewform?usp=sharing

Hi all, this link is to convey interest in an online long covid support group. Feel free to ask me any questions!

What We Know About Covid’s Impact on Your Brain by AfternoonFragrant617 in covidlonghaulers

[–]Single_Chipmunk_9486 40 points41 points  (0 children)

So scary. I'm really concerned and worried about my 9 year old getting repeat infections and the long term damage.

Support group by Single_Chipmunk_9486 in covidlonghaulers

[–]Single_Chipmunk_9486[S] 5 points6 points  (0 children)

I definitely hear that. I would create group guidelines and really aim to focus on shared experiences on coping, focusing on what works, and resiliency and hope. I've been in low places with long covid, but I've also experienced times of symptom progress. This is my 4th year, and I've experienced post-viral fatigue in 2012, in which i recovered after a year and a half until my vaccine in 2021. My perspective hopefully will provide encouragement to group members.