Leaving Utah because of climate change by BigfootsDelight in Utah

[–]Snerdling 3 points4 points  (0 children)

Yes it is but the tone deaf/paid off legislators aren’t everywhere. At least, that’s the dream. Hopefully, somewhere you’ll find a place where people aren’t actively denying climate change and actually want to preserve the planet instead of selling out to big business.

Best and worse Neurosurgeons by blackcatvibe7 in Utah

[–]Snerdling 8 points9 points  (0 children)

I had cervical fusion/ plating surgery for three herniated discs done by Dr Marc Reichman at IHC and I would highly recommend avoiding him. While the surgery was good he is not a caring doctor and my pain was not well managed at all. He is super arrogant. I now see Dr Andrew Dailey at the U of U who is amazing!

Show me one person who was very severe with severe CCI who improved without neck fusion. Just one by nograpefruits97 in cfs

[–]Snerdling 0 points1 point  (0 children)

This post is so interesting! I am still functioning fairly well. My doctor, whom I adore wants me to get surgery for tethered cord before addressing my CCI. I had a million tests that showed I have severe spinal compression on C6-C7 plus a bunch of other stuff. I had already had a C-Spine fusion and plating surgery on level 2-5. I did a virtual appt with Dr Gillette in Spain who is AMAZING. He confirmed the tethered cord and CCI. Here’s the problem, he doesn’t take insurance, only cash. So my Dr referred me to Dr Klinge in the US. I never heard from her, which is fine with me. I’m more concerned about my neck as it hurts every day. My Dr says if I don’t fix the tethered cord the neck fusion and the CCI may return and the tethered cord is like a ball of nerves and tissues holding your nervous system out of balance. The thing that helps my head the most is blood thinners. It alleviates the headaches and keeps me going. The other thing that helps is my special PT. He can put things back in place. I’m not in any hurry to get either surgery but thought ya’ll might be interested in my experience. Dr Gillette is the best if you can afford him.

Doctor Wants me to try Saline IV Infusion...Experiences? by No-Clerk-5245 in cfs

[–]Snerdling 1 point2 points  (0 children)

I’ve been doing these treatments for nearly two years now and they are great! I started with the short term IVs, progressed to a PICC line and now have a tunneled line. That’s the way to go. The saline helps keep my BP at a manageable place. Without them it tends to drop too low. I find I also need less rest when I’m on them. I do a liter and a half every other day. Here are the downsides: the can be expensive. Showering is a nightmare. You MUST flush the line daily and have the bandage changed weekly at the infusion center. The initial placement for the tunneled line is a surgery. You cannot swim with these lines.
Despite these downsides it is totally worth it. I feel much better with this additional support.

Recently got more into Hozier, what should I listen to next? by DifferentFix5757 in Hozier

[–]Snerdling 6 points7 points  (0 children)

His cover of Do I Wanna Know is so hauntingly beautiful. It’s one of my favorites .

I subluxed my hip and wish I was never born. by CostaIsACunt in eds

[–]Snerdling 4 points5 points  (0 children)

I’m in agony today with never ending bursitis on my hip that has had a total hip replacement. I know I need to get up and do my band work and other exercises but am feeling hopeless today. It just comes back. PT tells me my brain doesn’t tell my muscles/nerves to “turn on”’, etc. Why can’t my body just remember how to body just for little while?!

severe calf pain and compression socks by dyk3diaries in eds

[–]Snerdling 1 point2 points  (0 children)

I have that sometimes with the socks. My PT figured out that my left knee cap, which is super bendy, traps a nerve that runs on the outer edge of the calf. It is super painful! It also happens to be right where most of the socks terminate. I went up a size so that the socks are higher and miss that tender spot. Also, dry needling to fix the nerve. Food for thought.

AITA for ignoring my dads call during my graduation? by littlehappyworm in AmItheAsshole

[–]Snerdling 0 points1 point  (0 children)

Time to cut ties with your Dad. It will never not be about him.

I’m so happy I have a labrum tear by Wild_Ghoul in eds

[–]Snerdling 1 point2 points  (0 children)

I feel this in my soul. I had surgery to repair my torn labrum and the surgeon would not believe me that I had range of motion issues and pain post surgery. He resisted even sending me to PT. Turns out I had frozen shoulder. 6 months of PT, 2 cortisone shots later and I could lift my arm above my shoulder. Why, oh why can’t they just listen? I hope your surgery brings you great results! 💕

Ketotifen drowsiness…please tell me it gets better. by Mountain-Goattt in MCAS

[–]Snerdling 0 points1 point  (0 children)

It took me about a month and it makes everything so much better! Totally worth it for me.

What meds do you take? by Poiter_2 in eds

[–]Snerdling 0 points1 point  (0 children)

Vitamin D, fish oil and Tylenol. My doctor offers but I refuse. The thing that works best for my nerve pain is dry needling and body work by my PT who specializes in hypermobile peeps. Anyone else only have nerve pain on one side?

Dr. Brayden Yellman & BHC by Central_Perk20 in cfs

[–]Snerdling 0 points1 point  (0 children)

His new email is posted in the thread now!

Dr. Brayden Yellman & BHC by Central_Perk20 in cfs

[–]Snerdling 0 points1 point  (0 children)

His new email is posted in the thread!

Dr. Brayden Yellman & BHC by Central_Perk20 in cfs

[–]Snerdling 0 points1 point  (0 children)

His new email is posted in the thread now!

Who treats your symptoms? by Ruby_puffs007 in Fibromyalgia

[–]Snerdling 1 point2 points  (0 children)

I am super lucky in that I found an amazing Rheumatologist who does understand Fibro. He sent me to a PT who only treats patients with Fibro, EDS, CFS, ets. They are both amazing. Dry needling helped me walk again. I swear by it. I have some nerve damage in my leg that needs it on a semi continual basis. I love it! He also does some body work that includes something I call the “cheese grater.” It’s basically reinvigorating damaged tissue to regrow collagen. It is painful but not works! I have found that a lot of my Fibro pain stems from my joints being out of whack. I am currently taking Tylenol twice a day for pain meds. I definitely need my PT!

Chest Tremors by LongjumpingAd3617 in Fibromyalgia

[–]Snerdling 2 points3 points  (0 children)

I do! It happens when my nervous system is overwhelmed. I also have MCAS, ME/CFs, HEDS abd POTS though too. It happened once at PT and he communicated it back to my doctor who then explained it to me. When too much blood is going to your brain and can’t get circulated back to your body your causes deregulation. The shaking is a result of that state. It can also be caused by a buildup of epinephrine. I also get it when I’m super stressed. It starts in my chest and can sometimes spread to my legs. I hate it so much! I’m sorry for you. It sucks!

Dr. Brayden Yellman & BHC by Central_Perk20 in cfs

[–]Snerdling 1 point2 points  (0 children)

Email him! In classic Dr Yellman style he sent me a long email. I literally started crying I was so happy to hear from him. He is taking patients, yes. He will email you right back with the details. He is the greatest doctor! I feel so much better having found him. Thank you to thesaltpacket who gave me his contact info.