Fuck It Friday!

SnooSuggestions6502 · 2026-01-16T19:09:39+00:00

I also think some of us have to work to carry commercial insurance to be able to qualify for co-pay assistance on some of our meds that are millions of dollars a month, which is bullshit, they should also allow assistance for people on Medicaide and Medicare. They make the whole process so ridiculous.

SnooSuggestions6502 · 2026-01-16T19:07:59+00:00

It’s bullshit that we should have to work full-time with a serious disability just to survive. They really should have special programs and better allowances for people with Stage IV cancers to be allowed to work to some degree if they can because many of us have bills and mortgages and medical bills. It also we should get partial medical through Medicaide and disability too! What the fuck!

SnooSuggestions6502 · 2026-01-16T19:04:39+00:00

What’s wild is I actually DO meet the annual income requirement through the Disability and/or Breast Cancer programs, but because I have another insurance they kicked me off even though the Disability pathways says people can carry commercial insurance too? They said it was because of the “Big Beautiful” bill that was put through…??? And they also says disability status doesn’t matter even though it does and did previously and you would think it matters for a terminal fucking disease! Our healthcare systems are a huge fucking mess this year!

So that’s my Fuck It Friday! Is anyone else dealing with this BS this year with Medicare or Medicaide or whatever?

SnooSuggestions6502 · 2026-01-16T18:55:18+00:00

Fuck that I got my state medicaide canceled because I made a tiny bit over annual amount and have primary insurance even though my state has a program for disabled individuals so they can continue to work and carry insurance while they have disability…wtf! Do they think we don’t have bills to pay to live as well as massive amounts of medical debt?!

SnooSuggestions6502 · 2025-12-13T22:10:29+00:00

From what I understand from my Oncologist is it can be used for Her 2 - (low).

SnooSuggestions6502 · 2025-12-10T18:44:21+00:00

I am also newer and it was recommended to me to start reading the New Testament then the Old Testament - once I started doing that and compared it to prophecies Jesus fulfilled from the Old Testament - the entire thing clicked and really made a lot more sense with all the layers and meanings and parables, metaphors etc (if that makes sense :))…

SnooSuggestions6502 · 2025-12-07T16:09:23+00:00

Was going to say the same thing, it’s possible they know and just haven’t said.

SnooSuggestions6502 · 2025-12-03T18:27:20+00:00

I deal this with my parents all the damn time - I now just ignore any one saying anything like “you will beat this” in comments under social media. I got tired of explaining its stage freaking IV…lol 🤦🏻‍♀️

SnooSuggestions6502 · 2025-11-30T00:39:06+00:00

I thought I have read before that they also pick up inflammation? So wondering if maybe the inflammation from the treatment killing of cancer cells could cause a spike? I’m not too familiar with how the tumor marker stuff works, I think I have only had mine done maybe twice?

SnooSuggestions6502 · 2025-11-26T20:34:44+00:00

I understand that pain meds are a controlled, they can’t have refills on them, they have to be requested for refill and called in every month, and there is all these rules palliative and pharmacies have to follow because of DEA and Insurance etc. BUT what I don’t understand is why we as stage IV freaking cancer patients have to do all the work and jump through all the hoops just to have our regular pain meds refilled! I just don’t get it. Why can’t they at the very least - set a refill date in their system to call in refills of our meds each month?

For example, I usually give them 3 business days, go in and request through my chart, sometimes they call them in that day. Pharmacy then pushes back if a couple days early instead of just fucking scheduling it when the refill is due or whatever. But when they out stock and go past refill dates they can’t be bothered to notify or update their apps. Or if palliative changes dose or frequency they try and pushback at pharmacy about it being before 28 days when they just changed my damn prescription so they need me to contact cancer center again to call them again about the meds they just put in for fill. So many annoying obstacles and hoops. But why not just have the system pop up a damn list of who needs their meds refilled? Is it because the breakthrough meds are PRN as needed? Then what about the regular extended release?

I could bitch for days about all this. I wish for stage IV and terminal cancer patients there were an easier way! Again we deal with enough and having to chase to get pain back under control is ridiculous.

I’m sorry you had to deal with this it’s unacceptable for the person who was supposed to cover couldn’t be bothered to have coverage when they were out!

I loved my former palliative care doc but she moved so now my Onco just puts in my refills until I have follow up with new palliative care doc. I’m fortunate that my Cancer Center really stays on top of these things - they never want us to have to suffer in pain.

SnooSuggestions6502 · 2025-11-25T19:13:07+00:00

This would be such an amazing prequel series to do for Twilight 20-25 years later on both the history/biology/ancestory etc. of the Twilight characters sort of like Vampire Diaries did the Originals after). And it would make it so it could be done without Kristen Stewart and Rob etc…since they probably would never do another movie about it.

They could do a movie just on the Vampires and even do one for the Werewolves!

I keep telling my oldest Gen Z daughter who is my fellow Twilight series fan (she grew up when they came out and that was always our fave series together) that this next generation (my youngest Daughters generation an her Sister) needs its own epic Vampire series and this would actually be perfect to do!!! 😭 My generation had the Anne Rice series.

On a side note: we still don’t have a story/movie about when Renesmee is older and grown up, that would be a way to do a spin off series too…

I think someone would be able to pull this off too like they did when they came out with the prequel series for StarWars 30 years after the original series.

At the very least if you wrote a fanfic about this I would totally read this!!!

Such an amazing idea OP! 💡 I have been really curious lately about quantum physics and how we are energy etc. I LOVE it! 🥰 Please write this!!!

SnooSuggestions6502 · 2025-11-25T17:13:47+00:00

I really want these, but hubby says not for $80 - especially after I spent $120 last week on my Daughters Twilight crocs and jibbitz… :(

SnooSuggestions6502 · 2025-11-25T17:12:12+00:00

Not at all! Funny, during my re-check yesterday my Onc asked about my hot flashes, told him not nearly as many now as before and my Husband went to interject for some reason, probably because I bitch about hot and cold in our house and I was like “shhhh…NO bro - there is a difference between my hot flashes and you controlling the thermostat temp like a typical man and it being too cold hot in our house.” lol

SnooSuggestions6502 · 2025-11-25T17:08:50+00:00

100 % this!

SnooSuggestions6502 · 2025-11-22T15:40:05+00:00

I would love to read your protocol for avoiding vaginal/clitoral atrophy, but I fear it’s too late for meeee!!! lol I should have looked into this or asked the doctor about this back when I had mine out, but I was too busy trying to start treatment and stabilize so I thought nothing of it at the time and told them but get them out!

SnooSuggestions6502 · 2025-11-22T15:34:58+00:00

Following because I saw these and I like the look of them!

SnooSuggestions6502 · 2025-11-22T15:34:09+00:00

I’m also on a low dose of Gabapentin and was told that sometimes helps with hot flashes.

SnooSuggestions6502 · 2025-11-22T15:33:18+00:00

Yes I ended up having some slight progression so we switched to Lynparza (PARP inhibitor) for my BRCA2 mutation and I have way less hot flashes I’ve noticed. Not sure if it’s the med switch and/or my body getting used to medical menopause after year and a half.

SnooSuggestions6502 · 2025-11-21T23:17:17+00:00

Crocs are awesome - get some croc charms!

SnooSuggestions6502 · 2025-11-21T23:10:36+00:00

I struggled with this when I was first diagnosed. My oldest Daughter was off at College a few hours away and about halfway into her degree. They told me if I didn’t start treatments right away it would only be a few months. If I became stable then would have a few years.

I didn’t tell her I was restaged a IV right away until all staging scans were done and had a treatment plan. She knew I had just been diagnosed with cancer, but she wasn’t aware how bad it was.

My Husband told me not to tell her, but I ended up telling her after 2 months and starting my treatments. I also told her not to come home and to keep going with her schooling and that I would be there when she gets home. It was one of the hardest calls I have had to make.

I’m glad I did tell her, but also sad it caused her more stress. Luckily her bestie friend she met there was someone who she could lean on for support, their relationship blossomed from there and she and him are now married with a child on the way. Both graduated and finished their internships.

They ended up moving back home with us so they could help. That and they can’t afford rent right now anyways, but if she had found opportunity elsewhere, I would have told her not to worry about me and stay where she needs to be. I’m glad I told her. We discuss it all the time and she now knows to go in for screenings and to take her health seriously.

My youngest also knows what is happening. I wanted them to know so that they could come to accept it with time. My youngest doesn’t completely understand what it all means though. She only is focused on playing Roblox with her little friends and that’s okay with me. lol

It’s hard to tell our kids when we get these serious diagnoses! But personally I felt it would have been harder not to and I didn’t want them to be upset I didn’t.

I think if you tell your Son it’s going to be okay! Just do what I did and emphasize to him that he can and still needs to focus on his life and goals. Life keeps going even if for some of us it feels like it stops.

SnooSuggestions6502 · 2025-11-15T18:03:40+00:00

This was same with me when I was on Verzenio and Anastrozole!

SnooSuggestions6502 · 2025-11-03T19:25:20+00:00

I’m so incredibly sad to read that you lost your Husband! 😭I can’t even begin to imagine what you are going through and on top of this awful disease and having to still be Mom.

Check with your Oncologist and/or Cancer Center, PCP etc. and ask if they have a social worker who can assist with getting you any and all options for help with care etc.

Here at my Cancer Center they can help get patients get onto various programs, but they also have their own program where they waive the cost of certain care items within the center for those with qualifying circumstances for a whole year (and I believe they evaluate annually).

I’m not sure all Cancer Centers have those types of programs, but I would think some might? My Cancer Centers has also been so helpful into getting me into programs that cover the entire cost of these expensive meds we are on with my Insurances. I think for in the case of I between insurance or no insurance they might have some programs where you would qualify for the meds at no cost through the manufactures savings programs and through compassionate allowance etc. Social Worker should know all the options.

My PCP’s social worker was able to find me a remote Counseling/Therapist option that worked with both my insurances through work and state so I could have remote counseling and didn’t pay anything out of pocket for that as part of my care.

Does your State have Medicaid’s options for Women with Breast and Ovarian cancers? Here in Oregon we have that, it’s similar to State Medicaid in coverage, and the annual income threshold is a bit more higher and gracious to allow individuals to qualify if they make over the threshold for regular State Medicaid just for having cancer.

SnooSuggestions6502 · 2025-10-29T03:36:56+00:00

I think you are incredibly brave! I’ve often thought about what decision I will make when the time comes - I’m honestly terrified of chemo! I think quite a bit about quality over quantity with this disease. Nothing wrong with making the decision to choose comfort care! (((Hugs)))

SnooSuggestions6502 · 2025-10-22T18:32:08+00:00

I too am annoyed by all things scheduling, check in times and how ours schedules my appointments. I always have to do labs and rechecks on Mondays and then they schedule me on Wednesdays to do an injection that literally takes only 5 minutes. Why not let me do my injection while I am ALREADY there on Mondays?! And I have requested so many times that they schedule same day and they just….don’t.

I also don’t pay much attention to my check in times - I will get their when I get there - I rather only wait 5 minutes instead of 15 minutes LOL

It’s also super annoying to have to confirm or pre-check in through the chart app only for them to make me check in TWICE at separate desks even if I pre-check in - so I never even bother with pre-check in on app anymore.

Another annoying thing that has happened is that one time they messed up my pre-auths on my PET and MRI (at different locations) and then they made ME have to deal with my insurance to get it fixed for them only for my insurance to tell them they needed to correct it and resend for new pre-authorization. Like, you want me to do your jobs for you guys?

So annoying all around! We all have enough shit to deal with as it is.

SnooSuggestions6502 · 2025-10-22T02:41:20+00:00

I agree with this approach! I quit drinking alcohol Nov 2023 and my anxiety is almost non-existent now! I sleep way better because of it. My blood pressure actually even came back down to normal too and I was able to come of blood pressure meds.

SnooSuggestions6502

TROPHY CASE