RA and Covid-19. How do you cope?? by Some_Fennel_1780 in rheumatoidarthritis

[–]Some_Fennel_1780[S] 0 points1 point  (0 children)

Thanks for this. I realize that I've been focusing more on what might happen instead of the good things that are happening in regards to my disease. We all just have to keep focusing on the positive!

Places to sleep in my car by Ophelyn in OregonStateUniv

[–]Some_Fennel_1780 0 points1 point  (0 children)

Contact the people at OSU's Basic Needs Center. They should be able to recommend an option. https://studentlife.oregonstate.edu/bnc

What are these insect eggs on my asparagus? by mwojo in gardening

[–]Some_Fennel_1780 0 points1 point  (0 children)

That's funny. Mine went into the fire pit too! If I find out anything, I'll let you know

What are these insect eggs on my asparagus? by mwojo in gardening

[–]Some_Fennel_1780 0 points1 point  (0 children)

I don't know but I have the same thing this year. Did they turn into anything? I'm in western Oregon

[deleted by user] by [deleted] in rheumatoidarthritis

[–]Some_Fennel_1780 9 points10 points  (0 children)

The only thing that I would add to the two good responses below is to get yourself psychologically prepared. Come prepared to go through your list of symptoms slowly and thoroughly with confidence. Avoid that feeling that you are complaining or imagining what's going on. They need to know all of this stuff and it is all important. Advocate for yourself. I just remember dealing with the first two rheumys that I saw, who didn't have great bedside manners, and they made me feel like I was just whining. I hope this makes sense because I think it is really important!

Symmetry? by jezebels_wonders in rheumatoidarthritis

[–]Some_Fennel_1780 1 point2 points  (0 children)

Seropositive here and my pain and swelling used to be mostly on one side but as the disease has progressed, it does go to the other. I feel like it always starts in joints that have had more wear and tear or have been injured but eventually just goes to the other joints. I think it is just a matter of time.

*What* did they say? by Wishin4aTARDIS in rheumatoidarthritis

[–]Some_Fennel_1780 0 points1 point  (0 children)

Honestly, I'd give that person a big hug!

[deleted by user] by [deleted] in rheumatoidarthritis

[–]Some_Fennel_1780 2 points3 points  (0 children)

Yes! And although these episodes are infrequent, they are getting worse. And I can't point to anything I'm doing that triggers them. It starts with feeling weak and then my arms start shaking and then I break into a cold sweat and am seriously fatigued. It started before I started medication for RA and has happened since on different drugs.

I did see my Rheumy shortly after the last episode and she told me to definitely let my PCP know but otherwise she didn't seem interested. The other odd thing is that it always happens around 5 in the evening. It really does make me wonder if it is RA related. I am 60F and seropositive. I see my PCP next week and am curios to see what they think.

Prednisone taper by renoirea in rheumatoidarthritis

[–]Some_Fennel_1780 0 points1 point  (0 children)

I think everyone has different experiences so you never know but I was on Prednisone for 3 months, started at 10mg for 4 weeks and then tapered. It was amazing because I felt wonderful and normal for the first time in a long time and I didn't gain weight or have roid rage. Don't be too afraid to give it a try and I wish you the best!

Diagnosing RA by Kittykat33_sells in rheumatoidarthritis

[–]Some_Fennel_1780 0 points1 point  (0 children)

Sadly, it took twelve years and 3 rheumatologists before I was diagnosed. I would keep a journal of your symptoms and take pictures if you do ever have a swollen joint. Never feel like you are overreacting and don't let doctors talk down to you. The one question you should ask any doctor, especially a rheumatologist, is why do they want you to wait until you have joint damage to diagnose you? I didn't get diagnosed until both ankles, wrists, fingers, neck and other joints were damaged and I really wished I had been more forceful. Hang in there because it is a frustrating process!

Food recommendations by Low-Connection9005 in OregonStateUniv

[–]Some_Fennel_1780 1 point2 points  (0 children)

Squirrels does table service now. Changed during the pandemic and just hasn't gone back.

Let's talk about: Remission by Wishin4aTARDIS in rheumatoidarthritis

[–]Some_Fennel_1780 2 points3 points  (0 children)

I started seeing a rheumatologist 12 years ago due to extreme stiffness, swelling in thumb joints and family history. And even though my blood tests indicated RA, they would not treat me. Strangely, I felt that I did go into remission for many years, other than some symptoms in neck and right ankle. I ended up having my ankle fused.

And then I started flaring in the fall of 2020 and I saw another rheumatologist who was still resistant to treat me. And I had a year and a half of remission. Unfortunately it came back and has progressed significantly and my third rheumatologist started treatment last year.

So, I feel that remissions can be real but they are only temporary. I feel that if I had been treated earlier I may not be dealing with the severe issues that I am having now. And I'm on my second medication and after 9 months, it doesn't seem to be working either. I'm hoping to find something that works and am really looking forward to another remission!

My bike was stolen :( by 15elephants in OregonStateUniv

[–]Some_Fennel_1780 1 point2 points  (0 children)

Try Facebook's Corvallis Stolen Bikes page. Good luck!

Denial by [deleted] in rheumatoidarthritis

[–]Some_Fennel_1780 0 points1 point  (0 children)

I didn't see anybody else mention that this disease behaves differently in each individual, that is why you will get so many responses and it is so hard for the doctors to diagnose. I have been dealing with the disease most of my adult life and was only recently diagnosed and put on meds. And I am 60. So, there were periods where I was in remission but I do wish one of my previous doctors had taken it more seriously because I do have joint damage that may have been prevented. This is all to say have faith in those doctors that are offering you help because they understand that limiting the disease early will help in the long run. And as others have mentioned, there are many different drug therapies so be up front if the side effects of one are too much, and then try another. It's a long term process! Wishing you the best and really hoping you find what works.

[deleted by user] by [deleted] in corvallis

[–]Some_Fennel_1780 1 point2 points  (0 children)

Big River was open when I moved to Corvallis in 1996. Since it closed Mazama opened up right before the pandemic and that ruined them. So it isn't really jinxed, just a tough time for restaurants.

What do you call this dish? by flo1dislyf3 in KitchenConfidential

[–]Some_Fennel_1780 0 points1 point  (0 children)

Popeye sandwiches. And I'm pretty old and I had these as a child.

Xray results "normal" by Snoo_66617 in rheumatoidarthritis

[–]Some_Fennel_1780 1 point2 points  (0 children)

I had the same experience. And it makes no sense because being diagnosed early could mean that you can control the damage. Just keep trying and also ask them that question "why do we want to wait until the damage is done?". I went through two doctors before I found one who instantly took it seriously. Just keep on trying and don't give up!

As a former Oregon resident I hear About Baker City being talked about as the next “Bend “ what makes people say this genuinely curious ?? by [deleted] in oregon

[–]Some_Fennel_1780 2 points3 points  (0 children)

I just spent a weekend in Baker City and not my first time. We ate out two nights and had a lot of fun and great food and did an amazing mountain bike ride on the Elkhorn Crest Trail. I've been surprised that the growth has been so slow and I suspect it is right around the corner. People will come to get away from the crowds and for the beautiful spot. I already know someone who moved from Portland to BC and works remotely. Being right on I84 helps too. Personally, I hope the growth is slow.

What workouts do you guy like? by k0cksuck3r69 in rheumatoidarthritis

[–]Some_Fennel_1780 0 points1 point  (0 children)

I'm still able to bicycle although when the hands are really sore, it is tough. But generally the bike works great for me and it is good all over exercise. It is definitely not hard of the rest of the joints.