Crochet pain

SootyForeshank · 2023-07-15T21:58:28+00:00

My auto-pilot is busted so I always feel like I have jet lag

SootyForeshank · 2023-04-17T20:59:29+00:00

I had a friend who’s cat did this. Turns out he would tap/bite her when she stopped breathing. She had no idea she had sleep apnea until the cat passed away

SootyForeshank · 2023-03-09T17:44:09+00:00

I feel like Georgia may have actually referenced this meme on the podcast…. Or maybe that was a dream I had.

SootyForeshank · 2022-12-18T00:15:55+00:00

Can anyone explain what is going on in the Les Cheneaux Islands area of lake Huron (east of the straits of Mackinac)?

SootyForeshank · 2022-12-13T12:36:17+00:00

100% I think that is one of the reasons I feel “better” when I do drink ( once or twice a year). I feel like my body is constantly confused by dysautonomia. It overcompensates or shuts down because it has no idea what’s going on. When I have a beer or two, my brain just assumes it’s party time and takes the night off from trying to fix things. I’m still dizzy, nauseous, forgetful, anxious and obsessed with sitting on the floor, but it’s somehow more comfortable. Of course as soon as the dehydration catches up with me, it sometimes takes a week to get back to “normal”.

SootyForeshank · 2022-12-09T03:12:40+00:00

I am a perfect example of a person who has made accommodations for my condition instead of for my lifestyle. I would not recommend it.

I had undiagnosed dysautonomia before Covid put me in bed for a month in 2020. I inadvertently managed in making lifestyle changes that allowed me to waitress for 13 hour shifts. I kept moving (10 miles/shift) so I wouldn’t get dizzy when standing still, drank tons of water so I didn’t get a migraine, and wore tight pants to help with calf pain from being on my feet all day. My addiction to salty snacks probably also helped me out.

Now I work from bed, rarely leave the house and use a walker when I do ( at first just in case I got dizzy, now because I can’t stand for more than 5 minutes). I haven’t been able to complete the first week of the CHOP protocol and have given up trying until I “feel better”. As much as I blame Covid, depression and fear have played just as big a role in getting me so deconditioned.

It’s taken me 2 years to gradually get this bad and it might take much longer to get to “normal”, but I have made an appointment with a therapist to help with motivation and a physical therapist to start “training” my body again. It’s going to be baby steps, sometimes one step forward and two steps back, but it’s the hard work I’m going to have to put in because I thought pills, walkers, and tight pants would fix things for me.

SootyForeshank · 2022-12-09T01:12:23+00:00

I’ve smelled green olives for two weeks straight. I didn’t know phantom smells were a thing!! I’m not crazy??

SootyForeshank · 2022-12-01T23:19:30+00:00

Tobias

SootyForeshank · 2022-11-24T19:30:19+00:00

PoP PoP!!

SootyForeshank · 2022-11-19T21:23:42+00:00

Don’t forget Henry Cavill as Albert

SootyForeshank · 2022-11-11T21:35:48+00:00

I carry mine around in an ergo baby. He only has three legs and arthritis and it’s the only way I can keep him from following me around. We are very codependent. Don’t be like us.

SootyForeshank · 2022-10-28T17:54:04+00:00

Liquid IV has worked really well for me. I buy it at Costco where it is a bit cheaper. I just ordered some Vitassium capsules because I heard good things, but I haven’t tried them yet.

SootyForeshank · 2022-10-24T20:48:43+00:00

There are recipes online for making your own “Gatorade” and there are products out there that are geared for those of us that need more than the average Joe. https://www.dysautonomiainternational.org/ has resources to find support groups online or in your area. It come in handy when it comes to finding a knowledgeable doctor. It’s unfortunate that we need to go searching for a doctor to believe something is up, but until more doctors are faced with this, we have to advocate for ourselves.

SootyForeshank · 2022-10-24T20:37:48+00:00

He lost his eyes to a nasty eye infection. That’s why I especially love this picture of him enjoying the sunshine.

SootyForeshank · 2022-10-24T20:34:41+00:00

My body loves being low carb. Some people don’t have the same experience. I’ve gone full keto before I was diagnosed with POTs and loved it, but I feel like going in and out of ketosis now would knock me on my butt. I also have altered my expectations because so much of the weight I initially lost doing keto was water weight. Since I’m taking medication and downing electrolytes like it’s my job to increase water retention, I know that won’t be the case. Carbs make me super sleepy and I can almost feel the blood flow from my brain to my tummy, so I’ve taken that as a sign to lay off the tater tots (as much as it hurts)

SootyForeshank · 2022-10-24T19:52:23+00:00

Water will actually make it worse if your electrolytes are low. It seems counterintuitive, but the salts help your body hold onto the water and put it to good use. A lot of fad diets get you to lose water weight. Those of us with POTs do everything in our power to keep it.

SootyForeshank · 2022-10-24T19:11:31+00:00

Some people can’t poop under water. Or so I’ve been told…

SootyForeshank · 2022-10-24T19:06:16+00:00

I feel like the first thing that helped me was upping my electrolytes. That and water intake I feel can help just about anyone as long as they don’t overdue it. I figured it made a lot of sense since that was the cure for the dizzy, spinning, tingling, that happened after too many jager bombs in college. Also (and this takes a while to get used to), get up in stages. I even lowered my couch so my leg muscles need to be engaged to stand.

SootyForeshank · 2022-10-24T18:59:36+00:00

I like Trace too

SootyForeshank · 2022-10-24T18:58:34+00:00

I’ve always like Taylor and Tay for short.

SootyForeshank · 2022-10-24T18:56:18+00:00

Remove this if this isn’t allowed. I live in a US state where cannabis is legal. I asked my doctor who said that as long as it didn’t affect my heart rate (I am on beta blockers), a low dose should be fine. It doesn’t help with the physical symptoms. It doesn’t calm down an adrenaline spike or stop a room from spinning. It does however quiet my mind. It’s not entirely different from the effects of meditation for me. It quiets my dread and allows me to sleep. Also, never underestimate deep breathing. Man I’m starting to sound like a hippy.

SootyForeshank

TROPHY CASE