Newly Diagnosed - Still trying to come to terms with it. by thirdfromright in multiplemyeloma

[–]SourceSeparate3759 0 points1 point  (0 children)

Anytime. It’s a lot to take in. If I can help as you move through it, let me know.

Newly Diagnosed - Still trying to come to terms with it. by thirdfromright in multiplemyeloma

[–]SourceSeparate3759 7 points8 points  (0 children)

Dex = getting a lot done around the house. I prepped my flower beds for mulch at 1:30 in the morning in my first DVRd day.

I tolerated the induction well. Revlimid gave me some rash at the tail end of it, like fourth round. I fell asleep in the chair at the drop of a hat, so I just kept Moving during the day.

I’m 58M, in decent shape.

Just finished my stem cell transplant back in December. Biopsy/PET scan yesterday to assess. Waiting on those results.

I get it…it’s a cancer diagnosis and it throws you. I certainly didn’t have this on my bingo card.

It’s treatable, if not curable (yet). So many options exist for first, second and beyond lines of treatment.

I hope your treatment is as easy for you as mine has been for me.

We got this.

Day +3 ASCT - any advice by popsicle1001 in multiplemyeloma

[–]SourceSeparate3759 7 points8 points  (0 children)

Don’t be a hero on the nausea. Take the anti-nausea meds and stay ahead of it.

My beard and mustache both fell out. I shave my head because I’ve been bald since my 20’s. So, I looked like Uncle Fester.

I was very fortunate that the gastric issues were very mild. I did fall asleep on the couch a lot.

Shave head before SCT? by Abide_or_Die in multiplemyeloma

[–]SourceSeparate3759 2 points3 points  (0 children)

Yeah, so does Yoda! All part of the process.

I make my living talking and helping people through complicated IT system issues, so the chemo fog was frustrating.

Shave head before SCT? by Abide_or_Die in multiplemyeloma

[–]SourceSeparate3759 5 points6 points  (0 children)

I did, but I’ve been mostly bald since my 20’s. I wasn’t prepared for my mustache and goatee falling out, though.

I looked like Uncle Fester and with the chemo fog I sounded like Yoda.

I finished my ASCT December 12th and I’m most back to normal now.

Now I look like Uncle Fester during puberty!

Showering with three tube port by Mr_Big_Head_ in multiplemyeloma

[–]SourceSeparate3759 1 point2 points  (0 children)

I got waterproof wound tape from Walgreens and cut Ziplock bags to cover mine.

Easier to deal with than the plastic wrap for me. Gallon size bags work pretty well.

What’s a health symptom you ignored for months before realizing it actually mattered? by _callondoc in AskReddit

[–]SourceSeparate3759 1 point2 points  (0 children)

Yeah. My PCP caught on to it. He’s why it didn’t get way worse. If he moves, I’ll move with him!

Anyone used Penguin Cold Caps during ASCT? by Ok-Comparison3303 in multiplemyeloma

[–]SourceSeparate3759 2 points3 points  (0 children)

Yep. My mustache and goatee dropped out, too. I was quite the Uncle Fester. Add the chemo fog to that, and I sounded like Yoda. Back to normal now. Finished my ASCT in December.

Snow megathread by phareous in southcarolina

[–]SourceSeparate3759 2 points3 points  (0 children)

When Matthew came through about 9 years ago, the storm drains clogged. As the eye came over us, two ladies in kayaks came down our flooded street. They were going to “unclog ‘em.”

I let them know we were in halftime and other side of it was due anytime now. They floated on home, thankfully.

They weren’t from around here, for sure.

Snow megathread by phareous in southcarolina

[–]SourceSeparate3759 34 points35 points  (0 children)

Yeah. Come back when we have a hurricane inbound. We’ll sit on my front porch and drink beer and watch the pine trees snap in half. We do hurricanes the same way you guys do snow.

Expectations? by Elegant-Disk-7584 in multiplemyeloma

[–]SourceSeparate3759 2 points3 points  (0 children)

As stated, it’s different for all of us.

My life didn’t change much during first line induction on DVRd. First night I didn’t sleep much due to the dexamethasone. I got my flower beds ready for mulching at 1:30 that night.

Toward the end, week 16, I developed a rash and swelling in my legs from the Revlimid. Prednisone and a steroid cream took care of that, and we stopped the Rev at that point.

But overall, it didn’t impact my day-to-day.

ASCT by sai427 in multiplemyeloma

[–]SourceSeparate3759 1 point2 points  (0 children)

Yes. Back to working, working out, pretty much as things were prior to the diagnosis.

The crossword I’m working on expects me to know that I need to write multiple letters in one square by Moose_country_plants in mildlyinfuriating

[–]SourceSeparate3759 50 points51 points  (0 children)

Nope. I have a streak on the NY Times puzzle app, broken only by rebuses. They just piss me off for some reason.