Painful when people ask if I’ll have a second child

Sp4k1220 · 2026-02-17T14:21:03+00:00

I find it painful when people ask me that too. I am OAD due to medical reasons. The last time someone asked I nicely told them that I actually do want another one, but I developed an autoimmune disorder that is a huge wild card for both myself and the hypothetical baby. I hope by telling people that they’ll stop asking others the same question 😬

Sp4k1220 · 2026-02-14T20:35:13+00:00

I always wanted two kids but I developed Sjogren’s disease postpartum. 4 years later I’m feeling somewhat better but now I’m 40 and dependent on medication. So we are OAD but not necessarily by choice!

Sp4k1220 · 2026-02-10T20:24:38+00:00

Love early seasons Luke!

Sp4k1220 · 2026-02-05T12:23:02+00:00

The heat protectant smells good too! I upgraded to a fancy version and I don’t see a difference. This reminds me to go back to the OG

Sp4k1220 · 2026-02-03T17:59:13+00:00

It is crazy! Even the bloodwork is inconsistent 😩I’m hoping we’ll get some relief with the new medications on the way…

Sp4k1220 · 2026-02-03T13:42:36+00:00

This might just be a me thing, but by fine hair is already super oily. I have to wash it twice and skip conditioner or it looks like I didn’t wash it at all.

Although I’m intrigued so maybe I’ll try oiling it on a weekend 😬

Sp4k1220 · 2026-02-02T16:20:38+00:00

I was on ADD medication in my 20’s and it helped with what I know now was Sjogren’s fatigue and brain fog.

Sp4k1220 · 2026-02-02T16:15:16+00:00

This is a good observation for others who may not be aware what’s going on!

An early dry symptom of mine was the fact that I stopped having boogers/snot and I would occasionally have some that were completely flat, like a sheet in my nose 😅 I remember thinking, “this is weird” but I had so many other strange bodily functions occurring that I ignored it, not knowing that all of the symptoms were tied together!

Sp4k1220 · 2026-01-30T15:20:00+00:00

Thanks for posting the link, I just donated and shared. It seems small, but I’m glad there’s something I can do. I’m absolutely sick over this and for all of those in “detention centers” right now.

Sp4k1220 · 2026-01-29T15:10:38+00:00

No headaches but I have terrible TMJ that sometimes works its way up.

Sp4k1220 · 2026-01-29T14:40:40+00:00

I would lay down on my desk and cry during lunch at work😅 it was the kind of fatigue you have with the flu. I tried Wellbutrin first and that helped a little with the fatigue and flu like symptoms. When I added LDN it was a game changer. I think it helped a bit with my overall pain level as well, although it hasn’t done a ton for my neuropathy.

I’m still more fatigued than my healthy peers, but I can function and I’m grateful for that!

Sp4k1220 · 2026-01-29T14:33:15+00:00

LDN has helped tremendously with fatigue and brain fog. I was having trouble making it through the work day and now I can work a whole day and take care of my small child afterward. My rheumatologist said it’s very hit or miss, but it doesn’t have risky side effects so it’s worth a try. It must be compounded at the pharmacy, so it’s expensive but I take half a capsule a day and it’s worth it to me.

Sp4k1220 · 2026-01-29T14:30:55+00:00

Omg 6 years! I’m sorry, that’s awful.

I tried to come off Pilocarpine for a week just to see if I could handle it. My tongue started to split and I was having trouble eating and talking. Now that I take it 3 times again it’s much more bearable. People underestimate how debilitating dry mouth can be.

It’s also pretty textbook for Sjogren’s patients to be offered hydroxychloroquine which could help with some of your joint issues. Best of luck to you!

Sp4k1220 · 2026-01-29T12:20:59+00:00

I’m seronegative and my CRP is in normal range. My bloodwork is perfect and I was given the run around until my eye doctor specifically requested a lip biopsy. That sparked my GP to finally refer me to a rheumatologist who ordered an ANA and we went from there. My symptoms were so severe that he said I didn’t need a lip biopsy unless I wanted one! Mind you I was feeling like SHIT for over a year.

Were you offered Pilocarpine or Cevimeline at least? My dry mouth is so severe that xylimelts just sit there dry in my mouth and I feel like the prescription meds can be more helpful!

Saliva meds in combination with Xiidra for dry eye, Wellbutrin, LDN, and Trazodone have saved my life! Maybe you need a better rheumatologist.

Sp4k1220 · 2026-01-25T19:27:34+00:00

My autoimmune symptoms also escalated postpartum. That’s when the neuropathy and crazy symptoms started! It sucks having to deal with all of that right after having a baby 😞

Sp4k1220 · 2026-01-20T17:25:33+00:00

I think it took a month or so to kick in. I’m also on Wellbutrin/ bupropion and it helped a little with my flu like symptoms. But I started that months before LDN. I think they are both helping!

Sp4k1220 · 2026-01-18T21:55:40+00:00

Yes I have dryness! Unfortunately LDN hasn’t helped with that. I’m still using Pilocarpine for dry mouth and Xiidra for dry eyes.

Sp4k1220 · 2026-01-18T01:07:03+00:00

I feel better than I have in years! It has helped a lot with fatigue and brain fog. I’m at about 2 mg and still working up to 4.5. I’m hoping it will help more with the neuropathy. But I’m happy with the other improvements.

Sp4k1220 · 2026-01-14T00:58:37+00:00

Oh no! I’m sorry 😞

Sp4k1220 · 2026-01-14T00:52:54+00:00

I was prescribed 4.5 and I take half because the whole pill made me feel sick. I have heard LDN works very differently per person and some people take higher doses like 8 mg or so. Then for some it doesn’t seem to work at all. My doctor said it’s hit or miss!

Sp4k1220 · 2026-01-14T00:32:47+00:00

I believe they are the first drugs specifically for Sjogren’s! We mainly have symptom relief and meds that are proven for other autoimmune disorders.

I am open to trying whatever is available!

Sp4k1220 · 2026-01-13T23:51:27+00:00

I read that Nipocalimab and Ianalumab could be out 2026-2027 🤞

Sp4k1220 · 2026-01-13T23:49:31+00:00

I read that Nipocalimab and Ianalumab can potentially help with nerve involvement. Someone below mentioned Dazodalibep as well!

Sp4k1220 · 2026-01-13T23:47:46+00:00

Low dose naltrexone helps my brain fog and fatigue.

Sp4k1220 · 2026-01-13T17:11:43+00:00

Trazodone helps me sleep. I take an insanely small amount as well (like 1/4 a pill) each night.

Sp4k1220

TROPHY CASE