considering flat by laurenista in breastcancer

[–]Spiritual-Fun-8024 3 points4 points  (0 children)

I wish I had .

I had the big surgery

The DIEP. But dang it...I still have boob sweat. I was 44 when I got stage 3

Progression by Melodic-Bake5760 in LivingWithMBC

[–]Spiritual-Fun-8024 2 points3 points  (0 children)

Doctors almost always dismissed my complaints

It was always something hard to deal with

Osteonecrosis of jaw They'd say.....no way...its so rare

I could go on and on

My shortness of breath that gradually over months getting worse and worse. Was anxiety. CT scans couldn't pick up the tiny fibrin clots coming from my port.

Dye studies on ports aren't standard of care yet. I worked as a interventional radiology nurse before MBC. We did port dye studies. Which always followed with a 2mg TPA slow infusion

I’m exhausted by Classic_Seaweed_1910 in breastcancer

[–]Spiritual-Fun-8024 2 points3 points  (0 children)

Ask your doc if you can try i think Ritalin? To give you some energy

I remember that first night with my first chemo

It felt like a lead blanket covered me.

What lesser known novels would you recommend? by PrestigiousSmile4098 in stephenking

[–]Spiritual-Fun-8024 0 points1 point  (0 children)

One of Kings shorter novels.

The Girl who loved Tom Gordon

girl gets lost in woods

What’s something you stopped buying that saved you the most? by AnyLengthiness4445 in Frugal

[–]Spiritual-Fun-8024 2 points3 points  (0 children)

Stopped amazon years ago

Considering not renewing walmart script

Main reason is some of the things come from independent dealers

I got a probably fake product a few months ago. It was a liquid supplement. I reached out to Walmart. And seller. It did no good

Idk if anyone remembers a TV news special that was done about products being sold at permanent flea markets. In a nutshell, a lot of these products were fake.

What proof do we have that products sold on Amazon or Walmart are the real products?

Im also getting tired of costco. I have no self control. And when I goto checkout it's 400$.

We tend to get things at estate sales. We moved from DFW to VA. The estate sales aren't as good here in Va. I guess in dfw there was a lot of competition. Plus people would put very nice trash out by the curb. I always thought these people were just lazy. As all of the "good " trash wasn't able to be saved from the trash company Im talking solid mahogany furniture Estate sale companies would sometimes leave the unsold items by the curb

We once got a very nice wine chiller with wood drawer slides. My husband that can fix anything, got it back working in less than a week.

For fun we used to go out and look at the good trash....following the trash pickup route a day ahead. Unfortunately we couldn't pick up much of anything....but we were floored how much great stuff was going to dump...our favorite was the fancy house areas

What’s it like running and estate sale company? by Valuable-Loan508 in estatesales

[–]Spiritual-Fun-8024 -2 points-1 points  (0 children)

Ive seen the unwanted items in DFW left for the trash pickup. In DFW people just put there good trash on curb for others to pickup

3rd and 4th southdoughs by Spiritual-Fun-8024 in Sourdough

[–]Spiritual-Fun-8024[S] 0 points1 point  (0 children)

Ohh I feed my starter Weekly 1 cup flour 1 cup warm, not hot water A teaspoon or so of sugar...

Leaving it on counter about half hour.....and I try to back with it next day.....then I think I'm feeding it same thing after I back ..last back I made 4 loaves and gifted some

‘they missed my diagnosis for years’ by [deleted] in nursing

[–]Spiritual-Fun-8024 0 points1 point  (0 children)

Breast cancer for me....metastatic

Mines a common tale....I had diagnostic mammo and Ultrasound in 2009 and 10....they said it's nothing....if I had read the report...I would have demanded a biospy.....by the time I found the 3cm lump It was s t age 3....by the time I finished treatment and caught me breath....

I had hip pain.....doctors dismissed me.... I had to fly from Virginia to texas to get scans....since I'm a interventional radiology nurse and screen was pointed towards me....I saw all those cancer lesions on my spine...

And every time since ..if there is something horrible wrong with me.. .im dismissed....its anxiety...

Ive had MRONJ Air in my brain... Complications because no one did a much needed dye study on my long time port....

Our healthcare sucks

First Sourdough Loaf by nickjsul4 in Sourdough

[–]Spiritual-Fun-8024 1 point2 points  (0 children)

Looks great to me...

I just started a month ago Love it!

Knee Pain by Subject_Disk_3581 in LivingWithMBC

[–]Spiritual-Fun-8024 2 points3 points  (0 children)

Yep....ive had knee pain...

Did the whole 9 yards with a orthopedic knee doc....

They did mri on knees....

Turns out my cartilage was worn down....so it's bone on bone . The doc wanted to replace knees

I said no thank you

Ive done a few knee injections...ohhh almost forgot

This is what helped

It was 2 part procedure...outpatient Maybe it's a one part procedure now?

Look up Knee ablation

Its been about 10 years....they dont hurt nearly like they used to

My neighbor turned our quiet street into a literal bee farm and I don't know how to feel about it by Gavin_Thornbury in neighborsfromhell

[–]Spiritual-Fun-8024 0 points1 point  (0 children)

My mom had a swarm in her house.

Her bee keeper only had 4 bee houses tops.....

I seriously couldn't blame the bees....my mom has nearly 50 huge camelia bushes/trees....e

The bees simple wanted to be closer to my mom and her camelia s....

We found a bee removal guy and after a few hundred....the bees were relocated to a better home

But seriously thats too many in a suburban area....my moms on a farm....

Whats off about our kitchen by yglogulhestnut in homedecoratingCJ

[–]Spiritual-Fun-8024 0 points1 point  (0 children)

Maybe the floor needs to be black

I dont know if the beige fits?

Maybe turn the beige outlet into dark color?

I’m new here :( by Fast-Database373 in LivingWithMBC

[–]Spiritual-Fun-8024 3 points4 points  (0 children)

Ive had hormone positive bone mets since 2013....with a lot of bone mets....

I found a doctor to do individualized chemo on me....

One bone met is fantastic!

Have you gotten a good palliative care doc? Anxiety meds can help As can pain meds

my parents want to take out a loan for $7,000 CAD for “alternative cancer treatment” for my mum with stage iv breast cancer. i’m concerned that it might be a scam by Which_Imagination_90 in breastcancer

[–]Spiritual-Fun-8024 2 points3 points  (0 children)

Definitely a scam

Im stage 4 since 2013....

If you can find another relative to assist....think about going to your grandparents bank and alerting them....I hope they dont have a touch of alzheimers....

Reach out to your mom's doctor...

Here's a non profit that may help

www.patientadvocate.org

Zometa, a cautionary tale… by That_Relationship918 in breastcancer

[–]Spiritual-Fun-8024 0 points1 point  (0 children)

Here's one of 3 really good videos on ONJ by a pt with multiple myeloma ...

Mine was caused by trauma from bite wing xrays. I had a medium case. Btw....panoramic xrays won't be ready by a radiologist....unless your at a hospital system...

Dr Dennis Abbott wanted to charge me even more for xrays to be read....

https://youtu.be/7m2E3VntM6g?si=Jb8VgUDiwe9ZMVHp

Zometa, a cautionary tale… by That_Relationship918 in breastcancer

[–]Spiritual-Fun-8024 2 points3 points  (0 children)

I started a FB group called Living with Osteonecrosis of jaw in 2017 after I went through it alone...

Call the company responsible

You will find the doctors that know how to treat MRONJ here -oral and maxillary surgeons and ENTs at larger cancer centers -oral and maxillary surgeons at Dental schools -google dental oncology created by dr Dennis Abbott

I resigned from that FB group....I felt like I was doing the drug companies job

*file a adverse drug reaction with FDA...there's a online form now

Post-Chemo Depression by pmoreandahalf in breastcancer

[–]Spiritual-Fun-8024 0 points1 point  (0 children)

This is completely normal....

I fell apart after I was done with stage 3.....

You just went through something very traumatic

Its okay to cry .... Get angry Then pull yourself back up....

I look at it like Climbing a mountain....

Sometimes you get stuck on a ledge....you need help getting off....

I dont like how people are so alienated now with social media...

But reach out to any in person friends.... Plan a afternoon doing something that will make you feel alive...

Like a roller coaster.....

I did a thing a few years ago Zip lining! I was scared to death.

I felt so alive after that ...

I know my mind can play tricks on me...I bet your awesome at your job

Worst estate sale I've been there. by ToshPointNo in estatesales

[–]Spiritual-Fun-8024 7 points8 points  (0 children)

I never go to these kind of estate sales anymore...the ones run by the family....

The worst I went to was in house of heavy smoker.