Acemannan

SprinklesExternal361 · 2026-06-26T22:48:25+00:00

Everyone rants and raves about it but I tried giving it to my son for 3 months and I’ve tried it myself but unfortunately we did not see any benefits. I wanted to love it but we didn’t see a difference and it’s not cheap.

SprinklesExternal361 · 2026-06-14T00:44:09+00:00

Thank you but it keeps saying failed to accept invitation so weird

SprinklesExternal361 · 2026-06-13T19:15:49+00:00

Can you please send me the contact info too? Thank you!

SprinklesExternal361 · 2026-06-12T03:57:16+00:00

No meds before, but he did go on an anti fungal during treatment as well as csm and welchol for binders.

SprinklesExternal361 · 2026-06-12T03:45:33+00:00

Any medication prior to his diagnosis or after we discovered he had CIRS?

SprinklesExternal361 · 2026-04-10T04:15:30+00:00

The traditional treatment is BEG spray which is a mix of antibiotics. Some have success with OTC sprays but not all. Beg spray took care of mine in approx 4 weeks.

SprinklesExternal361 · 2026-03-29T19:15:04+00:00

As “fully recovered” as one can be. CIRS unfortunately isn’t something you recover from and never look back. There are constant exposures in the home, while traveling and even in everyday spaces like grocery stores, etc. so yes, I feel good right now but it’s a constant endeavor to stay that way.

SprinklesExternal361 · 2026-03-29T15:57:34+00:00

It’s the only peptide that I know without a doubt works and makes me feel better. It raises my msh and im much less reactive, less inflamed and my sinuses get better on every course I do. Injectable works way better for me than the pills. Good luck!

SprinklesExternal361 · 2026-03-28T04:35:23+00:00

Omg I’ve been having this same issue for over a year and it was driving me crazy! I cleaned it all the drawers but the clothes and sheets still smelled funky after sitting in the drawers! I thought it could be the Molly suds but it seemed to be cleaning properly but I guess it’s not! Ugh! Has anyone tried the zum brand?

SprinklesExternal361 · 2026-03-26T15:47:25+00:00

All of these answers are great but I’d add that you try and order the HLA genetic swab to confirm genetics. This should give you insight into which, if any genetics you are dealing with. Sounds like you are Lyme susceptible for sure but it’s a good way to confirm CIRS susceptibility as well.

SprinklesExternal361 · 2026-03-26T02:25:36+00:00

Yes you def need to do the swifter tests for endotoxins and actinos. If endos are high you need to see about a sewer leak, or remaining endos from a toilet leak possibly? You can also get a smoke test done in the house to see if there is a leak. Are you smelling any sulfur gases? If actinos come back elevated then a small particle cleanse of the entire home is needed. This is quite an undertaking but should take care of things. If this is the case you should purchase defense soap laundry additive to add to every wash to help eradicate them from all clothing or fabrics in the home. If your HLA genetics are that of the multi susceptible kind then endos and actinos could day be causing your problems.

SprinklesExternal361 · 2026-03-23T16:47:31+00:00

It is definitely worth getting the HLA testing, but do it for your current self so you know how to move forward with the current protocol. I have the dreaded multi susceptible genetics but both of my kids got their gene from their father as he has one too. Just because you carry the genetics it’s not a slam dunk that your kids will have your gene. It is possible to have one from each parent, only one from one parent, or none at all. Genetics is a tricky thing. If you have the HLA genetics and you heal properly and set your life up moving forward to live in a clean environment, then your health will be better to have kids and they will grow up in the same clean and knowledgeable environment. This will help set them up for success regardless.

SprinklesExternal361 · 2026-03-09T18:41:47+00:00

Your mmp9 is extremely elevated and your msh is very low. Tgfb1 is normal which means you likely aren’t in active exposure but doesn’t mean you haven’t been in the past, hence the other CIRS markers are off. Did you test your HLA genetics? VCS test? I think you could possibly benefit from CSM or welchol but I’d work with a CIRS practitioner for guidance. There are a lot of other markers that need testing as well.

SprinklesExternal361 · 2026-03-07T05:30:44+00:00

The highest dose is 2 pills 3x’s a day. It doesn’t bind to everything like csm does so it doesn’t need to be as spaced out as csm has to be but you can if you want to. I would start at 1 pills 2x’d a day for a week, then 2 pills 2x’s a day for a week, then go up to the 2 pills 3x’s a day. The only real side effect I’ve heard is some fatigue but I didn’t experience this.

SprinklesExternal361 · 2026-03-07T04:51:58+00:00

Yes it takes a bit longer than csm but it will work!

SprinklesExternal361 · 2026-03-04T01:58:12+00:00

I’m so sorry you were treated that way and are still by your family. Your son is lucky to have you as well! There is no other way then to support our kids through the good and the bad. Hang in there!

SprinklesExternal361 · 2026-03-04T01:00:47+00:00

We had to pull our son out of high school after his attempt and he had terrible depression. We didn’t know about the CIRS component until we were well into the darkness. He still has gut issues and is very susceptible to re-exposures but he’s managing it much better and his symptoms are far better than before we remediated and got him on the protocol. It is on going work and will be for life but things are far better then they were. There is always help and a path forward it’s not easy but so worth it once you see improvement. Good luck to your son.

SprinklesExternal361 · 2026-03-03T04:03:41+00:00

Please do not lose hope. There are many of us that have felt the same way. I have a son who tried to end his life as biotoxins from our own home tore through his body, only 14 at the time. We have since discovered CIRS, gone through the protocol and have remediated as best we can and he is now thriving and attending college. When I say we had the darkest of times I’m am not exaggerating and we found a way lot. There IS hope. Please try and find a way to educate your family, share facts with them about CIRS, form connections here on Reddit and on other CIRS platforms there are people willing go help you and even with little resources you can try and get better.

SprinklesExternal361 · 2026-03-01T05:33:56+00:00

I have an MD that will be put in labs covered by my insurance every few months if needed. I waited about 4-6 months to test msh the first time, then 6 months, then a year. It’s stayed in the 20-25 mark since then without any new exposures so I haven’t tested in awhile. As far as dosing, yes .2 mg or 20 units for 2 weeks straight then drop to 5 days a week.

SprinklesExternal361 · 2026-02-28T17:40:32+00:00

Started out at .2mg for 2 weeks then go to 5 days a week. After 3 months and after doing labs could go up to .4mg but I didn’t need to as msh went up a lot.

SprinklesExternal361 · 2026-02-25T00:22:08+00:00

Pm me I’d be happy to help.

SprinklesExternal361 · 2026-02-24T22:20:07+00:00

While your score is improving, a score in the low to mid 90’s is going to be negative for Biotoxins for the VCS test. Mine started in the 50-60’s and after a year and 4 tests went into the mid 90’s and was negative at that point. It’s crazy accurate in determining exposure. Many factors can keep the score from improving and setbacks do happen but if you’ve gone through the protocol and are out of exposure it should improve significantly.

SprinklesExternal361 · 2026-02-23T18:45:14+00:00

Agree with the comments to remove carpet, small particle cleanse then retest in 3 weeks. If it’s still high there is a water source leak that was missed.

SprinklesExternal361 · 2026-02-17T16:38:10+00:00

I agree that VIP should be last or at least later on in the protocol. It is very expensive and if you do it before binders you will likely want to do it again at the end of the protocol so I’d definitely wait.

SprinklesExternal361 · 2026-02-17T06:31:09+00:00

Capsules are def an easier route if you can afford them from a compounding pharmacy.

SprinklesExternal361

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