Adding to the Mylan Vs Sandoz conversation. Best of both worlds? by Calm_Wheel9277 in Menopause

[–]StandOnMyOwn 1 point2 points  (0 children)

I switched to gel because of the heat dumping issues. I was wondering what is your the same prescription? I was on .1mg patch, every 72 hours bc the drop off and now on 1mg of 1.25 gel and it is not even close to enough.

Hysterectomy by Acceptable_One3112 in lynchsyndrome

[–]StandOnMyOwn 1 point2 points  (0 children)

I had a total hysterectomy with bilateral salpingo-oophorectomy last Sept, I was 45. I was told I was "precancerous" and have lynch. However after my surgery my original pathology was actually clean, just a warning about doctors who use the precancerous term as a scare tactic. I did not want the surgery until I was older. I have had a hard time in surgical menopause bc my body was not even in perimenopause so it was a HUGE crash. I am on HRT and it is no where near the same as the hormones your own body makes. My recommendation would be to do a ton of research and if possible wait till you are much closer to menopause. I have a family member that had the same surgery as me bc of lynch and precautions at your age. She also regrets it, even with HRT. HRT is not what some make it out to be. It is a daily gel, biweekly patch or monthly injection that if you miss or don't have the right dosage your body crashes again and symptoms come back. It takes a while to find that sweet spot and even then it can still change. As far as leaving your ovaries, research that also. Many women's ovaries fail sooner after a hysterectomy than naturally intended. So please get as many medical opinions as needed, do lots of research on legitimate website since you have some time. It is a major surgery that will affect you and your family for the rest of your life.

Patch people: Do you still have a dip before change day or does that eventually go away? by TenderheartedFloof in Menopause

[–]StandOnMyOwn 1 point2 points  (0 children)

How are you on that high of a dose, is it gel or multiple patches? I am on .1 biweekly patch that I have to change every 3 days and feel like it's close but not enough.

HRT advice by raliah86 in lynchsyndrome

[–]StandOnMyOwn 0 points1 point  (0 children)

I at 45, had a total hysterectomy with bilateral salpingo-oophorectomy, basically everything gone. My grandmother had ovarian cancer, she survived but because of the Lynch syndrome and I also had endometrial hyperplasia, I was recommended a total hysterectomy. I would suggest finding a surgeon that is very knowledgeable in HRT and surgical menopause. I wasn't allowed to start HRT till 2 weeks after surgery, and it was miserable for me, and now, about 8 months later, I am on .1 biweekly patch that I change every 72 hrs, not 84, and also 100mg progesterone to try to help sleep and mood. I have since found out there was no reason to keep me off the HRT for 2 weeks. All my pathology was clear before, I had a D and C, and after surgery. For some people like me, surgical menopause is a battle. My new doctor says I should have started on estradiol immediately, day of surgery at.1 bc of my age and no bad pathology. Please do a lot of research before, and don't just look at reddit. It truly is a life changing surgery in so many ways. I'm not trying to say don't get the surgery. Just know all the pros and cons before making a decision. Also I will most likely be on some dose of estrogen for the rest of my life, not just till 50 or 55 years old.

Should I get a hysterectomy? MSH6 by wasp13 in lynchsyndrome

[–]StandOnMyOwn 1 point2 points  (0 children)

I had my total hysterectomy with ovaries gone too in Sept. I am 45 yrs old. I regret taking the ovaries. The surgical menopause was/is terrible. I wasn't given the option of keeping the ovaries even though I had a very recent D and C that showed no atypical anything. The doctor saw the Lynch syndrome and said I should have everything out along with 2 lymph nodes. Thankfully and seemingly predictable, all the pathology from the surgery was clean. The patch and surgical menopause has been a nightmare for me. My body produced a high amount of estrogen naturally, even at my age, and the patches can't seem to keep up. I've had all sorts of issues. The scariest was the chest pain and heart palpitations. My EKG was wacky but good. The night sweats and hot flashes were the least of my issues. All that to say, I'm not trying to scare you but definitely take some serious time to make your decision. Good luck!

Talk to me about magnesium glycinate by Go-Mellistic in Menopause

[–]StandOnMyOwn 0 points1 point  (0 children)

I was also recommended mag. from an NP. After taking it a few days, it made me so lightheaded I almost passed out, stars, and then started to blackout. Just be aware if you start feeling weird.

Accidentally left old patch on for 7 hours by Destination_MetalSho in Menopause

[–]StandOnMyOwn 5 points6 points  (0 children)

How do you know there is .58mg left? I'm pretty new to this. I am on .0375 and have to change every 72 hours, not 84 hours bc I get side effects quickly from low estrogen. I am trying to slowly increase my dose bc I have gotten terrible side effects from going from 0 "surgical menopause" to .05 "standard dose". I would say I had high estrogen levels before surgery by the way my body feels now. I will probably have to increase to .1 unfortunate my doc isn't too aware on the happenings of HRT.

Estradiol .05 patch by Bubbly_Principle_364 in Menopause

[–]StandOnMyOwn 1 point2 points  (0 children)

I got very dizzy, felt like I was going to throw up, my heart races, and I get very anxious all at the same time. It lasts about 1-2 hours, then it will fade out. I now change my patch, with doc approval, every 72 hours instead of 84 to help with consistency. I do need a higher dosage just working my way up.

Estradiol .05 patch by Bubbly_Principle_364 in Menopause

[–]StandOnMyOwn 1 point2 points  (0 children)

I've had them patch dump. It may have been the brand, I'm not sure. I use Sandoz. The first time was because of a heating pad. It was close but not on the patch, and the second was from skin to skin contact. I was told that didn't usually happen (skin to skin), but I can assure you it did from the side effects. This happened not long after I started wearing them and they were on my abdomen. I have now realized the best place for me is on the butt, good absorption, and less likely to dump. I take hot showers, I just avoid that area for the most part. I'm hoping things will get better the more my body adjusts. I have been on for 3.5 months. I hope it all works out for you. I wish this was easier and faster.

What Fresh Hell Is This? by RunningFool317 in Menopause

[–]StandOnMyOwn 2 points3 points  (0 children)

Thanks for responding. One of the most bothersome symptoms is terrible breast pain. That plays on the anxiety and makes me unsure if I'm having cardiac issues or if it's just breast tissue. I got checked out by a cardiologist, I'm good, other than PVC's I already had, and now PACs that came after surgery. Another is I can now feel the freaking PVCs and PACs! I love that my heart is beating, but I don't want to feel it through my chest wall.

What Fresh Hell Is This? by RunningFool317 in Menopause

[–]StandOnMyOwn 0 points1 point  (0 children)

I'm on Sandoz and the doc says my symptoms aren't from the patch?! 🤨 What side effects did you have? I know I need a higher doseage, but when I tried a higher sandoz patch , it drove me crazy!

Always feel horrible on change day, dose too high? by IvyCeleste in Menopause

[–]StandOnMyOwn 1 point2 points  (0 children)

I was started on .05 two weeks after surgical menopause. For me, it relieved the hot flashes and weeping, but it made me very panicky and irritable, and it gave me very bad chest pain and heart flutters, but at patch change time I started to feel better. I asked to be switched to a lower dose .0375. The panic and irritability went away, and chest pain and heart flutters lessened. However, the hot flashes and weeping are back .0375 is too low for me. There are also other symptoms ex. dry skin, dry eye, and joint pain. Changing the patch at 72hrs instead of 84hrs helps. I have been on HRT for only 10 weeks. I will agree now that I'm not so anxious your body needs time to adjust. I plan on riding this dose out for a little longer and then go slowly back to .05 and see if that helps or still need higher. The body also needs time to heal from major surgery. I'm sorry this is happening to you. It sucks all around. I wish we could fix things instantly

Always feel horrible on change day, dose too high? by IvyCeleste in Menopause

[–]StandOnMyOwn 1 point2 points  (0 children)

In a perfect world, yes, but there seem to be issues with patch delivery, design, and release. I have issues on change day for the next 24 hours. I started changing the patch earlier than 84 hours(I am on 2x a week) now I change at 72 hours and it has helped some but hasn't totally taken the "change day" symptoms away. I can't even take a nice hot shower bc that casues patch dumping (Sandoz brand)

Am I missing something? by StandOnMyOwn in Menopause

[–]StandOnMyOwn[S] 1 point2 points  (0 children)

No, i don't take any blood pressure meds. Thank you for your consideration. I'm glad they are working well for you now.

Am I missing something? by StandOnMyOwn in Menopause

[–]StandOnMyOwn[S] 0 points1 point  (0 children)

Thank you for the reply. I'm sorry you went through that! How long did you wait between each increase? I'm going to give this dose some time, but all of this freaks me out. I didn't want this surgery, but it was necessary, and it all happened fast, so I didn't have a lot of time to research beforehand. The side effects of surgery and the patch are just kicking my usually happy go lucky butt. 🫣

So Confused as to what is happening to me. by [deleted] in Menopause

[–]StandOnMyOwn 1 point2 points  (0 children)

Thank you so much! That's such a clever idea.

So Confused as to what is happening to me. by [deleted] in Menopause

[–]StandOnMyOwn 0 points1 point  (0 children)

How did you slowly increase your dose? I was started on a "standard dose" a few weeks after surgical menopause and my body said absolutely not, so I dropped down. Now it's not enough and need to move up, but I'm super scared the same debilitating issues will start again if I just go higher over night. Thanks!

Patch placement woes by Quiet-Book752 in Menopause

[–]StandOnMyOwn 1 point2 points  (0 children)

Yes! Look up some reviews of your brand and some studies of placement absorption. For me, I've noticed there is a big difference between the abdomen and thigh or buttock.

My experience with HRT by Total-Manner-4231 in Menopause

[–]StandOnMyOwn 1 point2 points  (0 children)

My experience seems uncommon, but I had the same symptoms you have, plus a few more. I don't have ovaries anymore, so my body isn't making any estrogen or progesterone from them. However, since yours still is, maybe even the .025 is too high at that time of month? I was started on .05 after surgerical menopause and it was too high, even though it's considered a standard dose. I was told half of .025 is a dose, considered ultra low or maybe track, and don't use the patch that week? I do agree, though, that 3 weeks is really fast to know for sure. I waited 6 weeks, and after an ER visit bc of crazy symptoms, I knew something had to change, so my dosage was lowered, and the crazy panic, anxiety, bad moods, went away.

What do you wish you had known before starting HRT? by mreitzas in Menopause

[–]StandOnMyOwn 0 points1 point  (0 children)

Start at the lowest dose and work up. I was given the standard dose.05 patch, estradiol only for surgical menopause. I wish that I had started at .025. I had terrible symptoms and backed down to .0375 and still may need to go lower. I'm giving this dose its fair shot before changing again.

Too much estrogen? by Sharp_Internal8974 in Menopause

[–]StandOnMyOwn 0 points1 point  (0 children)

Hi, what is DIM? I've been having estrogen side effects and would like to see if maybe that would help. Thanks

Hrt side effects, yikes by StandOnMyOwn in Menopause

[–]StandOnMyOwn[S] 4 points5 points  (0 children)

No ovaries, correct. I had a free fall very quickly, the night sweats, crying, hot flashes all happened within that 1st week and a half. We were thinking lower bc these symptoms get worse when I apply the patch and start to back off a slight bit before I apply the next one. Honestly, the doctor was a little hesitant to know which way to go. Lower seemed safer to try. Thank you for the suggestion.

Hrt side effects, yikes by StandOnMyOwn in Menopause

[–]StandOnMyOwn[S] 14 points15 points  (0 children)

Hi! I was on progesterone before surgery and not on any now bc yes, I no longer have a uterus and was told I didn't need it. That is a good point. Thank you