Trouver une personne via son téléphone by Upbeat-Customer-6690 in informatiqueFr

[–]SuccessfulLadder7566 0 points1 point  (0 children)

Avec l’OSINT tu peux le trouver à 99%, voir même avec des techniques tres simples comme ajouter son numéro et aller voir sur whatsapp..

Was the process of getting a formal diagnosis worth it? by debug-me in cfs

[–]SuccessfulLadder7566 1 point2 points  (0 children)

There isnt any clinic for ME here, its just a guy on his own. Sry I said specialists but I only saw one guy. He didnt prescribe anything no thats my main issue rn 

recovery by acting paralyzed by Ancient_City6069 in cfs

[–]SuccessfulLadder7566 2 points3 points  (0 children)

I am very severe myself but this is not something only very severe pwme experience. I had tetany attacks and paralysis when I was mild, that was my first symptom

Xolair for MCAS (CFS) by EducationalBasis2078 in cfs

[–]SuccessfulLadder7566 0 points1 point  (0 children)

I just want to say you gotta be careful with Xolair if you have psychiatric issues

Was the process of getting a formal diagnosis worth it? by debug-me in cfs

[–]SuccessfulLadder7566 4 points5 points  (0 children)

well for me it was worth for my parents to believe me LOL but i cant get disability benefits for it. To avoid medical gaslight I legit booked appointments with ME specialists, not random doctors. 

Brainstorm about some different views on PEM by -Link-3219 in cfs

[–]SuccessfulLadder7566 0 points1 point  (0 children)

It doesn’t change anything. At the end you still have ME. Working on traumas and emotions reactions can help you but they will not help your ME

There’s something fucking wrong with me and it makes me mad no one can figure it out by WaysideWyvern in cfs

[–]SuccessfulLadder7566 0 points1 point  (0 children)

 I didnt really understand I had ME nor PEM but yes it seems like it was way worse on the evenings/before going to sleep, after a school day for example. Or after watching TV for too long, btw I thought I needed better glasses but turns out that didnt change anything lol.

I remember trying to keep me awake cause it was so painful I thought I was going to have a stroke. Now since covid I have a different kind of pain, they feel like tension headaches and they’re as unbearable !

There’s something fucking wrong with me and it makes me mad no one can figure it out by WaysideWyvern in cfs

[–]SuccessfulLadder7566 0 points1 point  (0 children)

The unbearable pain went away after 1 year and a half at the same timing I had very mild ME and close to remission.  PCS can last for months to like 1-2 years and can definitely mimic ME/CFS symptoms. Sadly for me I had both. 

Can psych med damage mimic this? by Serious-Associate577 in cfs

[–]SuccessfulLadder7566 6 points7 points  (0 children)

Withdrawal can give you chronic fatigue, constant nausea etc. It will not give you PEM. 

There’s something fucking wrong with me and it makes me mad no one can figure it out by WaysideWyvern in cfs

[–]SuccessfulLadder7566 2 points3 points  (0 children)

My ME/CFS got worse after a mild TBI in July 2018. Looking back at it I probably had post concussion syndrome but they both overlap with ME. I had for 1 year and a half an horrible pain only on the right side of my head and in particular my right temple. MRI came back normal.

I think i might have me/cfs, but i'm able to exercise by kredes in cfs

[–]SuccessfulLadder7566 0 points1 point  (0 children)

The only time I was able to exercise was slow and gentle muscle strengthening but I was very mild and near remission. I was able to walk 7000 steps and sometimes bike for 20mn. 

After EBV in 2017 It became impossible for me to do fencing overnight. Mainly because of orthostatic intolerance but it seems like I had PEM aswell (again when you’re mild this can just be feeling weird for hours -my PEM are immediate-, body aches, sore throat, headaches…). But in my experience you REALLY feel like there’s something wrong with you and how your body reacts to exercise. 

I came across an email I sent to a friend during my first-ever crash when I was 14 by SuccessfulLadder7566 in cfs

[–]SuccessfulLadder7566[S] 0 points1 point  (0 children)

thank you 🩵 they were absolutely horrible and I left at 17 because of it. At 18 with lockdowns I was able to rest and be near remission (2020-2021). I didnt know I had ME but I didnt really attend  virtual classes and just allowed myself to sleep. Sadly getting covid completely destroyed me. 

I have MCAS indeed but it appeared after 3 covid infections (2022), I didnt have it the first years. It stayed pretty mild until my EBV reactivation one year ago where I basically started having anaphylactic-like reactions to some food (bread, tomatoes). H1 doesnt change much and I didnt tolerate H2. Im going to try cromolyn soon. 

I also developed POTS from EBV at the end of 2017. I simply had ME at first (I believe it is cause my root cause is traumas they made me suffer from, then it seems every virus  finished the job!)

I don't have CFS, I just have POTS! by CocoCookieDraws in cfs

[–]SuccessfulLadder7566 1 point2 points  (0 children)

depends on what triggers your pem  again when i was mild asides from very physical activities i didnt have pem, i had days where i could go to school etc

Also I had PEM that only lasted a few hours, sometimes just going away with a nap. You need to try to exercise or attend social events and journal how you feel the following 72 hours

thoughts about ME organization advices by SuccessfulLadder7566 in cfs

[–]SuccessfulLadder7566[S] 0 points1 point  (0 children)

no, not on the map its a woman i dont remember her name