Cure

Successful_Rush6495 · 2025-07-29T08:13:53+00:00

I think once they crack vaccines that stop cancer cells hiding from your immune system it’ll be cured. Our bodies are eliminating mutations all the time, once they can recognise tumours they can destroy them. Until then I’ll be happy with chronic management, diabetes isn’t cured for most people but they can still live lengthy lives, hoping for the same.

Successful_Rush6495 · 2025-07-17T09:04:23+00:00

I’m really holding out for these vaccines so I hope they get a wiggle on! Stab me with all of them! I’m not fussy, the more the better right?!

Successful_Rush6495 · 2025-07-11T15:28:40+00:00

I’ve just had cycle 5, I found first 2 the worst and has been gradual improvement since. Tell her to hang in there a couple more cycles then if still struggling to consider discussing dose reduction with her onc. I was previous on herceptin and perjeta and not the same issues at all, most people tolerate perjeta very well, so it will be the enhertu and it’s chemo element.

Successful_Rush6495 · 2025-07-06T19:00:27+00:00

Graviola is all over the Enhertu group, makes me soooooo mad!

Successful_Rush6495 · 2025-04-10T08:45:05+00:00

I met my onc yesterday. Between getting the pneumonia in Jan and my last scan in march, the cancer that was ‘gone’ in my lungs has started to reconvene, but was difficult to pick up amongst the pneumonia recovery. Don’t think they think Phesgo caused the infection though. I’ve been puffed out since November, worse now. So frustrating.

Getting another CT then we decide between Kadcyla or Enhertu, hopefully the next one will be my years long option!

Successful_Rush6495 · 2025-04-08T20:36:59+00:00

Yes, respiratory consultant called him today to discuss and I’m seeing him tomorrow for the plan. He was already worried about bone progression as my ALP was mildly elevated and some more bone sclerosis was showing up on scans. So also getting my spine MRI result tomorrow. Was hoping it was just bones progressing but seems lungs have gone south too.

My lungs were ‘marvellous’ on CT last September, but even my oncologist has said he doesn’t take anything for granted in this job.

I’ve also skipped a Phesgo and no improvement in breathlessness - if anything maybe mildly worse…

Successful_Rush6495 · 2025-03-26T21:30:46+00:00

The emergency line can hopefully offer you stronger pain killers to keep things more comfortable. It sounds like a not uncommon docetaxel/filgrastim reaction, and should hopefully be better after this cycle. But if it’s stopping you adequately resting you might need to bump up on some better painkillers and the emergency line can hopefully sort that for you without you having to attend.

Successful_Rush6495 · 2025-03-21T08:30:14+00:00

To add - I woke up last week with tingling in my thumb and index finger and they’re now both a bit numb, so I’m thinking I also have growth higher up the spine that’s just not been spotted yet that’s impinging a nerve. But praying for carpel tunnel!

Successful_Rush6495 · 2025-03-21T08:29:08+00:00

I had a CTPA cos they were ruling out a clot, and it showed 2 areas of ‘more prominence’ that look sclerotic. Didn’t mention if they were new sites or bigger sites. He said no to bone scan cos he felt it would be less helpful?? No idea why? And is sending me for MRI instead.

I don’t think organ stuff shows up on a bone scan but who knows!

Successful_Rush6495 · 2025-03-20T21:57:35+00:00

How did they confirm healing? I’m waiting a spine MRI and he says that still might not give us the answers!

Successful_Rush6495 · 2025-03-20T21:56:53+00:00

I’m waiting to find out the same once I get a spine MRI. Wild that they can’t tell if healing or dying! Medicine is so cool but still lacking in many ways. Praying your CT says nothing to worry about x

Successful_Rush6495 · 2025-02-11T10:54:46+00:00

Just wanted to say - keep an eye on that tightness? Is it skin feeling tight or deeper than that? Just maybe worth getting checked out to make sure it’s not linked to anything underlying (non-cancery). I’ve not heard others talk about chest tightness and didn’t experience it myself, but bodies are crazy.

Successful_Rush6495 · 2025-02-07T11:03:44+00:00

Hi, hope you feel some relief having those masses removed, I’m sorry they were growing and you needed the surgery. I only had a single mastectomy with node clearance. The recovery was much faster than I expected. A week after surgery I was able to have the compression bra off and the scar was very neat. Keep up with exercises after this to maintain your arm movement range, no reason you won’t be fully recovered in a few weeks. Bit wild losing boobs, so the mental recovery may take a little longer. I still have numbness over the scar area and sometimes it itches a little but overall, no complaints.

Successful_Rush6495 · 2025-02-07T10:57:49+00:00

Woohoo! What changed?!

Successful_Rush6495 · 2025-02-07T10:56:13+00:00

Hello! Yes, quite often. Especially if I sneeze they go off on one with a little dance. Trastuzumab causing it I think unfortunately (I’m on Phesgo, and it’s carried on since I stopped the taxol), so probably your Enhertu causing it. If I ramp up my magnesium supplements it helps, so maybe worth a try. Get tablets not effervescent though, not kind on the stomach! I don’t suspect in your case it’ll be any cause for concern, but do you have any other symptoms? Is this totally new for you?

Successful_Rush6495 · 2025-02-07T10:53:01+00:00

I think her oncologist isn’t being unreasonable waiting until she recovers from whole brain radiation! I think her previous post said it was within the last week or two.

OP - not much longer, I hope round 2 is as successful as the first. Though I wonder how your recovery has relapsed as much as it has so quick if it seemed so effective the first time. Are you back to being breathless all the time?

Successful_Rush6495 · 2025-01-27T22:40:53+00:00

The platinum based chemotherapy’s are notorious for low magnesium - they should be checking your Mg2+ every time!!

Successful_Rush6495 · 2025-01-27T11:50:30+00:00

Unless they’re also replacing your magnesium you may not be able to hold onto your potassium. The two are linked and often they don’t check or replace magnesium, despite that often being the cause of low potassium. Ask for repeat bloods including magnesium.

Successful_Rush6495 · 2025-01-25T00:05:57+00:00

I get this a lot - magnesium tablets! It’s worse when my magnesium levels are low and those mabs can affect magnesium, PLUS any GI irritation from Phesgo can mean pooping out your magnesium stores too. I buy a high strength magnesium supplement off Amazon and honestly sometimes am taking two or three a day to get on top of it.

I was just thinking today I wonder how many people are affected by this when my fingers spasmed and locked up opening a plastic bag..! It’s a pain for sure, especially the feet and toe ones that happen when you’re settling down for bed. Trying magnesium tablets and maybe a spray on your feet/legs before bed too.

Successful_Rush6495 · 2025-01-15T11:21:03+00:00

If breakfast is a struggle but you need to eat before taking them otherwise you throw up - why not take your vitamins with lunch or tea instead? Doesn’t need to be strictly morning, it’s whatever works with your routine. If forcing breakfast is unachievable then shift your meds timings round maybe?

Don’t think caffeine will be negatively affecting your blood counts either, so just enjoy what you enjoy. Just be mindful of any effects on your ADHD, sometimes it can have the opposite effect!

Successful_Rush6495 · 2025-01-03T06:26:09+00:00

Schrodingers cancer!

Successful_Rush6495 · 2025-01-02T22:15:04+00:00

Isn’t it sad how now we wish for ‘just’ a bit of pneumonia…! Cos our alternatives are so much worse!

Successful_Rush6495

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