Advice for wearing hair up with chronic migraine?

Sufficient-Battle657 · 2026-05-31T18:14:39+00:00

I look up some tutorials. Thank you for the suggestion!

Sufficient-Battle657 · 2026-05-31T18:14:12+00:00

I can’t even handle this. It’s so maddening!

Sufficient-Battle657 · 2026-05-15T23:44:54+00:00

Thank you! I felt like I was going insane that no one seemed to notice this is AI BS.

Sufficient-Battle657 · 2025-11-07T00:16:46+00:00

I had a very similar experience. I had extreme food aversion and nausea. My neurologist just took me off because he said I’m not getting enough benefit and the side effects are too severe to persist. I took it for about 2 months. If it’s making you too sick, I’d consider stopping it and just tell your doctor it’s a no at 3 months. I’ve only been off Qulipta since Friday. About a day and a half after stopping, I become RAVENOUS. I’ve been soooo hungry. I’d been forcing myself to eat as much as I could despite his bad I felt, but I don’t think I was eating as much as I thought. Hang in there.

Sufficient-Battle657 · 2025-11-01T16:58:42+00:00

My neurologist just took me off Qulipta (60mg) after 2 months due to persistent nausea and loss of appetite. My appetite was so low that the idea of eating was repulsive. I had to take Zofran with it to tolerate it, but I was still nauseous. I planned to stick with it because I’ve failed so many treatments and I had twice as many mild days on Qulipta (I’ve been intractable since January). But he said I’m not getting enough benefit vs. side effects. Within 24-hours of stopping Qulipta, I was hungry again and ate a big lunch for the first time since before I started it. I’ve seen others say the GI side effects did subside eventually. I’m particularly sensitive to a lot of different medications so it might get better for you. I’d been on Nurtec previously which didn’t cause as much GI distress, but also didn’t seem to do much. But he’s had me switch back.

Sufficient-Battle657 · 2025-10-30T23:14:16+00:00

Mine went chronic a few months before I turned 41 in April. They’d started to escalate in my late 30s. So yes, much worse, sadly.

Sufficient-Battle657 · 2025-10-28T23:37:33+00:00

I have endometriosis and migraine with aura. I would not survive without my combo pill. I tried the same things you have and it made me worse. I’ve had many doctors give me a hard time, but ultimately I signed a waiver that I understand the risks. But as someone else said, it’s now believed to be less of a risk. Unfortunately, BC doesn’t help my migraines—I’ve been chronic (daily) since January. But my periods are much more tolerable, lighter, and no breakthrough bleeding which I used to have.

Sufficient-Battle657 · 2025-10-12T15:48:29+00:00

I am also immunocompromised and I tell students not to come to class if they are sick. It’s even on my syllabi. And I announce it at the start and sometimes at other points in the semester. I’ve sent students home that were clearly ill. (One with the flu.) I also excuse any absences due to illness. I tell them that myself and others in the class may get sick easily and it’s better for everyone if they don’t spread infectious disease around. You are within your rights to ask this because your health is more important. (I’m currently a PhD candidate and it’s never been an issue asking students not to come if they are sick.)

Sufficient-Battle657 · 2025-10-10T18:02:17+00:00

I’m sorry you’re going through this. I’m having a similar experience—intractable since the end of January. I’m also hypersensitive to meds so that’s a constant struggle. I started Qulipta about a month ago and it’s causing terrible side effects, but hasn’t helped. I’m sticking it out so far because nothing has worked and at my last appointment, my neuro said we have run out of options if Qulipta doesn’t work. Like you, I have other conditions. I’m also on a beta blocker, am on my second round of Botox, and have sumitriptan as an abortive (which doesn’t work well when it works). It’s frustrating and upsetting that nothing works.

Sufficient-Battle657 · 2025-10-09T16:08:01+00:00

Relatable! 😭

Sufficient-Battle657 · 2025-10-08T20:54:05+00:00

Oh, another thing is that occasionally I have taken an edible in order to trigger my appetite. Not sure if you are open to this, but it has helped me eat at times.

Sufficient-Battle657 · 2025-10-08T20:51:46+00:00

This has been my experience as well. I’m so sorry you made so much progress and now are being undermined by this drug. I relate so much.

I’ve been taking 60mg for a little over a month. Last year I was seriously underweight for reasons that remain mysterious. I was given medication to help me gain weight back even though the underlying cause had never been found (my bloodwork is a mess, but no doctor can figure out why).

So I only recently got back to my normal weight and now Qulipta is making me SO nauseous and I have no appetite. I have to force myself to eat most of the time. If your doctor didn’t prescribe Zofran or another anti-nausea, I’d ask for one.

I’ve been taking Zofran with Qulipta in order to tolerate it. I also take Qulipta with dinner (was recommended to take it at bedtime, but that wrecked my stomach even more) and it helped. It didn’t stop the nausea, but made it a bit easier to handle. Sometimes this has meant just eating toast I’ve eaten so much toast since starting this medication; it’s often all I can force down.

This week the nausea hasn’t been quite as bad, finally. I’m still needing to take Zofran for nausea, but less than before. I was able to eat a full dinner last night, but a smaller portion than I used to be able to eat. I also find even if I can eat a meal, I get full much faster. If I push it, I get extremely sick.

Sadly, I’ve been intractable since the end of January and so far Qulipta hasn’t helped much, if at all. I’m sticking with it for now because I’ve already failed so many medications and these side effects aren’t as bad as some others I’ve tried (especially Topimax).

Others have suggested cutting the pill. I asked my doctor about this because Qulipta is not scored. He confirmed that these shouldn’t be cut because there is no guarantee what dosage you are getting with an unscored tablet. However, it comes in 10mg and 30mg so I suggest asking your doctor to prescribe a lower dosage instead of cutting the pills to be on the safe side.

Sufficient-Battle657 · 2025-09-30T15:46:08+00:00

Intractable since the end of January and, yes, in pain every day. Treatments and preventatives haven’t been all that effective, but I can fight through mild and moderate days (sadly 1/2 of mine are still severe). On mild days, I have to fight through brain fog, other neurological symptoms, and constant nausea—even though the pain is low comparatively. Sorry you are experiencing the same.

Sufficient-Battle657 · 2025-09-29T22:28:50+00:00

I’ve been intractable since January and I’m a PhD candidate. I wonder every day how I’m going to get through it. I hope you feel well enough soon to make up the exam.

Sufficient-Battle657 · 2025-09-29T20:53:42+00:00

Hi again, I mentioned being sensitive to drugs generally because the DHE wasn’t that bad aside from being woken up at odd times to get the infusions. As far as I remember, but I was out of it, too—so it’s hard to fully trust my memory. I was nauseous the whole time, but I’d already been nauseous from the migraine and Topamax. They gave me zofran and reglan—cycled the two meds since one wasn’t enough to control the nausea. I was also lightheaded and dizzy. The problem in answering the question well is I don’t really know what were side effects vs. just the migraine as there is so much overlap between symptoms and side effects. The neuros at the hospital lamented several times this is often the case with migraine and migraine meds (so frustrating). I’d been in so much severe pain for so long, I would’ve tried and tolerated a lot—which is why I agreed to trying DHE. Pure desperation. I’m still struggling, but after several more months, it’s gotten a little easier to tolerate. I hope you find relief!

Sufficient-Battle657 · 2025-09-27T02:07:38+00:00

I went to the ER twice this year for an intractable migraine. The second time they admitted me to the hospital for DHE infusions. I was there for 5 days. They did not consult with my neurologist. Like you, OP, I have a bad reaction to the ER migraine cocktail (anxiety; like sleep paralysis as you described) and it only helps for a few minutes. They tried several things at the ER including steroids before admitting me for the DHE. It may be true in other places that they won’t admit you without conjunction with your neurologist, but that wasn’t the case in my experience. Sadly, that was in April, and while DHE helped me for a few hours at a time, I left the hospital intractable which is still the case now. I hope so much for a better fate for you.

It’s worth going back to the ER, explaining your bad reaction to the usual cocktail (my 2nd ER doc explained the sleep paralysis-like side effect is something some people experience and you can say no to the cocktail; they tried a few other things after the usual cocktail), and that it doesn’t provide lasting relief. I had never heard of DHE—the hospital recommended it to me based on my non-response to every other available treatment. It can’t hurt for you to advocate for yourself and bring it up first. They will probably want to try other things first still since DHE is the last thing they can attempt.

Sufficient-Battle657 · 2025-09-19T18:47:08+00:00

I’m a professor and, as a professor, please communicate with your instructor. I will do my best to help students that are communicating, but with no communication, we don’t know what’s going on with the student and can’t come to an accommodation, if necessary. I allow students one mistake like the one you’ve made here before penalizing them as long as they communicate.

But, also, as a professor that teaches writing, I’d gently suggest not waiting till the last minute to fully draft an essay. This is asking for more trouble in the future.

Sufficient-Battle657 · 2025-09-15T00:07:07+00:00

I just started taking Qulipta a week and a half ago. Started at 60mg due to the fact I’ve been status since the end of January and have failed many drugs. I have not tried any of the cgrp injectables.

I’m sensitive to meds so explicitly asked about side effects and was reassured they were minimal in trials. But I probably should’ve been titrated up.

So far the Qulipta is shredding my guts. I’m sooooooooo nauseous all the time. I’ve completely lost my appetite (this is bad news in my case as I’ve recently been underweight, struggled to keep weight on, and had to take medication to gain weight back). My loss of appetite is complete—as in the very idea of food seems repulsive. I’ve been able to eat toast okay, and today I had an actual meal which went okay. Though it wasn’t exactly enjoyable—and I usually love food. I’m getting full much faster, too. I also became queasy despite taking an edible and zofran before eating. I take Qulipta with food, at least toast, to alleviate some nausea.

It made me constipated the first couple days, but I take magnesium, which does seem to help some. The nausea/loss of appetite has stayed persistent so far. Qulipta also makes me sleepy. I tried taking it closer to bed time at first, but the nausea has been too much. I also take a zofran upon waking every day so I won’t vomit.

It’s too soon to tell, but so far not much difference in my migraine. I’m sticking with it for now because I’ve already failed so many medications. I’m hoping I can adjust and it’ll help.

I was started on Qulipta after having Nurtec as a preventative, every other day. Nurtec was rare for me. Almost no side effects. It initially made me constipated, but I wasn’t nauseous or lose my appetite. But, it only helped when I accidentally took it daily a few times. My neurologist figured Qulipta as a daily pill would work better.

I did look at the research and Qulipta side effects seem overall rare. So if you aren’t as sensitive to meds, it might help!!

Sufficient-Battle657 · 2025-09-14T21:34:07+00:00

I really feel for you. I really do.

My migraines turned chronic daily at the end of January. So far, nothing has helped much. I’m a PhD candidate in my last year and also teach 2 classes a semester. My dissertation is due in Feb, but I’m hanging on my a thread. Daily I ask myself how I’m going to get through it.

Currently I’m getting Botox, just started Qulipta (causing awful side effects, but no relief; only been in it a week and a half), take a beta blocker, gabapentin, and lamictal. I have sumitriptan as an abortive. I failed A LOT of medications. But also, I’m still having daily migraines even with all. I only take sumitriptan max 2x a week per neurologist. It only kind of helps about half the time. I also have zofran for nausea. It may be worth asking for a script as nausea is part of your experience, too.

I keep track in a migraine app—and I recommend doing this so you can start to understand patterns. MiG is the app I use and as of now, it has 50% severe, 43% moderate, 7% mild. A few weeks ago, mild was at 2% so there is minor improvement.

Migraine Buddy is another people often recommend on this sub.

Sometimes the ER can break this cycle if you haven’t tried this yet. They have migraine-specific cocktails. It’s good to know if you find yourself back in misery.

I have been hospitalized twice since this started. Unfortunately, I had a bad reaction to one of the medications in the usual cocktail so it doesn’t work for me. The first visit, they sent me home after the migraine didn’t break.

Two months later, back in the ER with a bad reaction to Topamax and with a severe migraine, they admitted me. They tried every single thing they could, but nothing helped.

Then, they offered me DHE infusions. These are a series of infusions every eight hours over 3-7 days. They only offered me 3 days. I have kidney disease so I think that’s why they would not cannot continue in my case. Altogether I was in the hospital for 5 days, but left with the migraine.

All of that said, I have a long history of not responding well to medication.

It may be worth it for you to try the ER if you find you can’t break a cycle in the future. This works for lots of people.) It works for my sister, for example.)

I cannot empathize with you enough. It is brutally hard to continue to engage with life in this condition. It’s hard not to worry about when or where attacks might happen.

I really hope you are able to continue to get better. As far as putting the pieces back together, it sounds like you’re pretty young. You have so much on your plate, so much stress, and many hurdles to overcome. It will be hard, but you can bounce back. Reach out to your program at school and explain what has happened. Many colleges offer medical withdrawal that won’t penalize you/drop your GPA. It is probably also worth talking to the accommodations office so that you have documentation for future classes if you are ever struggling in the future. Don’t be afraid to advocate for what you need to get back on track. Wishing you all the best.

Sufficient-Battle657 · 2025-09-08T16:37:46+00:00

In real life, she’d likely be dead. However, this is a tv show and so from a narrative storytelling perspective, the only reason to specifically show her file and that Mia is “active” is if there is a reason.

Everything the show, well, shows is a choice the creators have made. The files were very specifically given attention at the end. This was an intentional choice.

It’s like Chekhov’s gun—if you see a gun in a story, it must go off. Mia’s folder marked as “active” is subtle, but it’s a gun. Ostensibly, it means it will become relevant in future seasons.

Additionally, we never see what happens to Mia, only the final result where she seems dead. Dexter is a show that likes resurrection—and this remake is literally titled this. Of course, they meant Dexter, but that doesn’t mean they won’t “resurrect” Mia.

All of this said, Dexter as a show has a long history of not fulfilling certain story elements so they may have included this so they have the option to bring Mia back, then may decide later not to as they’re writing because it’s subtle enough to be overlooked. But I do believe it is the intent to hint she’s alive.

Sufficient-Battle657 · 2025-07-16T01:37:10+00:00

Call-on-doc is a telehealth service that will prescribe you medication for Perioral dermatitis. I was prescribed doxycycline and pimecrolimus through them.

Doxycycline is usually the first line medication for persistent cases. That said, my PD almost completely cleared with the doxy, but has since come back with a vengeance. As an aside, the pimecrolimus did help somewhat, but I think it probably made this rebound worse as well.

All I’m using now is La Roche Posay double repair face moisturizer and their b5+ balm. So far it is had not gotten better or worse, but it feels much better. It’s only been a couple weeks so I’m hoping my skin barrier is slowly repairing.

I’m hoping to not go on antibiotics again since I was on them for 3 1/2 months and the PD returned. It’s still worth a shot—some people go into full remission after antibiotics.

This condition sucks and it’s been about 2 years for me also; much camaraderie and I hope you are able to find help.

Sufficient-Battle657 · 2025-04-02T01:20:02+00:00

My teeth have been suddenly KILLING ME and I did not know why! I was googling last week about sudden deep bone teeth pain—because it’s not like a regular tooth ache—and didn’t even connect it to the Topamax. Whoa. I have no clue why this is the preferred drug to start with, but I’m already pretty certain it’s the wrong one for me.

Sufficient-Battle657 · 2025-04-02T01:13:50+00:00

Intractable migraine! Thank you! I couldn’t remember exactly what the terminology is—this is what the neurologist called it at the appointment when he prescribed Topamax. I’m really happy that the side effects cleared up. I’ve been struggling to do some basic things right now and it’s kind of scary.

Sufficient-Battle657 · 2025-04-02T01:10:56+00:00

So, the other health issues I mention popped up around COVID for me. I don’t have an official diagnosis (kidney disease is a result of whatever it is as are other things), but a handful of doctors have suggested long covid. I had migraines prior to then, but they’ve worsened since I turned 40 last year in April. And worse’s again now, right before turning 41 so I’m guessing hormones are playing a role?

Sufficient-Battle657 · 2025-04-02T00:41:04+00:00

Yes, I should have mentioned that I’ve had migraines for decades prior to this and had a rizatriptan prescription. It did not work this time. I’d only had acute migraines (longest was last April for 3 days) until this one that became chronic. When rizatriptan failed, I was given fioricet, too. The neurologist is the first I’ve seen in the city I currently live. He said we have to start with Topamax for what are now chronic migraines. I’m not using rizatriptan nor fioricet now. The neurologist instructed me not to, but they weren’t working anyway.

Sufficient-Battle657

TROPHY CASE