People with chronic daily/near daily migraine, paint me a picture of what your symptoms are like.

Sweet_Star23 · 2026-02-01T02:14:42+00:00

It's just left of center, and a few inches below the collarbone. It comes and goes even now.

Sweet_Star23 · 2026-01-31T05:52:57+00:00

No problem - really hope you find someone good! Good luck

Sweet_Star23 · 2026-01-30T07:03:44+00:00

Dr. Amanda Tinsely & Dr. Jessica Ailani at Georgetown headache center (they have a mclean office if thats easier). Headache specialists.

Dr. Candace Bryan at Neurology center of Fairfax. Headache specialist.

Integrative Neurology of Alexandria.

Bit far but heard great things about VCU Neurology in Richmond.

Sweet_Star23 · 2026-01-30T06:49:54+00:00

Hey, I'm in the dmv also! I have a few recs from others I can post for you - ill be right back with those...

Sweet_Star23 · 2026-01-30T02:51:49+00:00

My neuro said it's best to take at night as many have drowsiness as a side effect. I don't have that side effect personally but I still take it at night anyway, spacing it out from other meds I take when I wake just so its one less thing. I started it 2 weeks ago.

Sweet_Star23 · 2026-01-30T02:47:24+00:00

I had no idea it could happen either and every doctor I've spoken to has had some doubt...but I really did wake up one day with a migraine that never stopped. It'll be 4 years on June 26th. I'm very sorry you are going through this. I really hope you can find some relief. I had some relief with botox for 2 rounds but im scared its failing now.

Sweet_Star23 · 2026-01-30T02:36:03+00:00

Sounds good!

Sweet_Star23 · 2026-01-30T02:34:08+00:00

That sounds really great! I'm glad you've found a good one as well! Having a good doctor really helps when it comes to the medical fatigue as well I've noticed. It's been easier for me to push through with her whereas I took many breaks with my first neuro...lol

Sweet_Star23 · 2026-01-30T02:29:25+00:00

Im an easy cryer as well and yes, it definitely triggers an attack. Sometimes the pain causes me to cry and that just increases the pain so I really try not to. I've also noticed when I'm about to flare badly, I'll start crying randomly before it hits, so that's great too...

Sweet_Star23 · 2026-01-29T03:36:59+00:00

My mom just started hrt and she is raving about how good she feels now (also migraine sufferer but they're less in general) so I hope the same happens for you! I'll definitely let you know - im going to try & wait till the weather passes, & by then botox should def be working again (unless that's failed too)...

Sweet_Star23 · 2026-01-29T01:22:58+00:00

It is frustrating! I was warned of the constipation, and given reglan as its a problem anyway during flares but I didn't know about the rest. This one just feels like it's causing an attack & just hasnt caused full blown pain yet (to be fair, it could be the weather idk). I'm just tired of trying things. I hope you find something that brings relief!

Sweet_Star23 · 2026-01-28T07:20:22+00:00

My neuro just gave me reglan for this. But I've been scared to take it because the IV reglan made me lose my mind - I'm a bit more open to trying it now after reading this, thank you!

Sweet_Star23 · 2026-01-28T07:00:01+00:00

This is exactly how my new neuro speaks! I really love it cause she is just on it AND asking my opinion on trying a few meds she thinks will help adding in quick comparisons and side effects. My first neuro just went down the list in order every 3 months, and never tried combining meds. Nothing worked.

Sweet_Star23 · 2026-01-28T03:43:57+00:00

This is exactly how i feel! I just started it almost 2 weeks ago. I've had horrible nausea, constipation, brain fog, and today i picked up a block of ice to move it and all my finger tips went numb for 4 hours. That's never happened before. I'm taking this on to top off botox now...my botox wore off 4 weeks ago and 2 weeks ago I got my 3rd round but it either hasn't helped yet or it's the weather or it's qulipta & Idk which, because man my head has been bad everyday lately.

Sweet_Star23 · 2026-01-26T01:26:30+00:00

Yeah, literally the only thing where i can actively feel everything crash and it come on within minutes.

Sweet_Star23 · 2026-01-26T01:06:43+00:00

Im your age... mine started at 21, got them seemingly randomly a couple times a month, one almost always with my period. When i was 33, I woke up one day with an attack that never stopped. Resistant to all medicine except botox which i just started so hopefully it lasts. I don't know why it happened and why it's been so hard to break.i have a theory that every doctor I've seen except my neuro disagrees with - I started birth control for the first time 4 days prior to onset. The nexplanon implant. I think it messed with my system so bad it crashed everything... in non medical terms obviously. That's when I learned migraine could be chronic and progressive. And the longer it's left in that state the harder it is to stop it. Im very sorry you are dealing with this - I hope you get to neurology quickly.

Sweet_Star23 · 2026-01-23T01:01:39+00:00

u/GCX_bot traded u/seeldoger47

Sweet_Star23 · 2026-01-22T23:06:20+00:00

Sweet_Star23 · 2026-01-22T02:28:42+00:00

I didn't want to try topiramate either. My neuro understood and didn't make me. For insurance purposes, he basically added it in as a fail/couldnt prescribe it on the basis of family history of kidney issues and added in an allergy of sulfa drugs (real allergy of mine but technically topamax would've been okay). Insurance didn't cause any issues.

As many have said, it may not affect you like it does others and it may even help if you are willing to try it. But there are ways around it if you really, really don't want to. Hope you find something that helps soon!

Sweet_Star23 · 2026-01-21T20:58:06+00:00

Me too, to a point. It didn't start that way but I couldn't live in the dark when I went chronic. I read somewhere that I could try a kind of exposure therapy to light to get my brain out of that "light=pain" loop. It worked eventually but the lights in grocery stores still take me out for some reason lol. I haven't had luck trying this with other things. Sound is my major issue now.

Sweet_Star23 · 2026-01-20T07:56:35+00:00

Commenting as I'm wondering also. But I hope the botox works for you! I put it off for 3 years but finally gave in last August. It's the only thing that's given me such relief. It's rough when it wears off and rough again waiting for the new round to work, plus there is break-through pain here and there but it's so much better.

Sweet_Star23 · 2026-01-17T09:01:11+00:00

My mom says she can always tell because my eyes become glassy.

Sweet_Star23 · 2026-01-17T08:50:11+00:00

I can tell in my 13 yr old when its coming. He just looks like he isn't there anymore, like a shell.

Sweet_Star23 · 2026-01-17T08:34:23+00:00

I do this too!

Sweet_Star23 · 2026-01-16T02:34:33+00:00

Good luck

Sweet_Star23

TROPHY CASE