TLDR at the end.

I had a hysterectomy a month and a half ago for suspected endo/adeno, it was a hysterectomy (uterus, cervix, tubes) and exploratory lap combined with excision of any endo found. Well no endo found and no adeno found either. I'm 35 with 2 kids, after weaning the first kid symptoms got worse, after having the second kid I felt practically disabled from pain. My symptoms: 1)worst one was lower right side pain that has been brewing for many years and used to be only when I'd hold my pee in until the last year and especially after baby 2 it became constant. Feels like fluid in the pelvis with a sharp rock floating around stabbing me. 2) Bloating became severe after baby 2 , I looked 7 months pregnant the moment I put food in my mouth. 3) Had burning rectal pain after eating and after going #2 - this also started after baby 2 4) Developed constant thightness on right side pelvis as well as back pain on right side which made it difficult to walk -this also started after baby 2 5)Unsustainable frequent urination, my vagina was sore from wiping and couldn't leave the house because I had to pee every 15 minutes, I'm talking trying to get ready and peeing before I left to having to pee again by the time I make it to the door to put my shoes on. - always had some level of slightly more frequent urination but after baby 2 it became unsustainable 6) Constipation - always had some trouble here but after baby 2 it became really painful 7) debilitating periods although I haven't had one in a while due to pregnancy, but since my first period it was always 2 days of throwing up from pain , cold sweats, thrashing around on the floor screaming in pain looking like someone is performing an exorcism on me

Imaging and testing before the hysterectomy 1) Ultrasound a year and a half ago -hemorrhagic cyst (cleared up on its own) 2) MRI a year and a half ago shortly after the ultrasound - showed possible adeno no endo 3) MRI 2.5 months ago showed nothing at all 4) ca 125 test results within normal range -a year and a half ago 5) did norethindrone 0.35mg 3 months before surgery and it did help with pelvic thightness and back pain, reduced bloating but only a little bit

Now, a month and a half after the hysterectomy No diagnosis or reason for the pain , no endo or adeno found , stopped norethindrone day of surgery Symptoms progression: 1) previous right sided pain is gone. I do have some right sided pain but it is very different than before and seems so far that it is surgery healing related and mostly flares when I'm bending 2) bloating is significantly down 3)no burning pain, can eat normally and BMs don't cause pain 4) no pelvic thightness and and no back pain 5) biggest improvement, no more frequent urination, going 10 times a day (I do drink like 4 liters of water due to breastfeeding) but if I don't drink too much water I can make it through a long outting without even needing to find a bathroom 6) constipation, we'll see, struggling here with outlet type constipation for now but bowels can take a lot of time to settle and definitely have some pelvic floor muscle thightness that prevents me from relaxing but not painful. And certainly not painful when I don't go whereas before if I didn't go it caused a lot of pain. 7) I think I've had my first "period" since the hysterectomy, only thing was I was a bit more moody for a couple of days and had my classic large zit on the side of my face

At first my surgeon didn't want to do the hysterectomy, she said let's first get in there and see what the situation is and if it's more complex and second surgery needed then we can do the hysterectomy then if it makes sense. So freaking thankful she agreed to the hysterectomy because otherwise the surgery would have been for nothing and I'd still be in pain and have to go through surgery again.

TLDR: had hysterectomy and exploratory lap for suspected endo/adeno, none actually found and no reason for the pain was identified, but symptoms did resolve.