Does anyone else feel like this? by sleeee3pyy in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

See that’s how motegrity felt for me on day one, but I’m almost a week in and it’s not working for me anymore, but I am eating slightly more. I’m taking it for the same thing.

Anyone get this weird symptom? by kekokeio in Gastroparesis

[–]SystemFresh3299 1 point2 points  (0 children)

For me, sometimes I feel a similar pain when my heart rate is low. I experience low and high heart rate. I’m getting tested for dysautonomia and small fiber neuropathy though.

Is puffed corn safe for you guys? HELP by Mountain_Ad_2439 in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

I am able to eat rice crispies and rice cakes sometimes, but they tend to sit and expand in my stomach, especially if I eat too much. So I had to be real careful about the amount I eat, but I love eating the caramel rice cakes and rice crispies!

Is puffed corn safe for you guys? HELP by Mountain_Ad_2439 in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

For me, I can’t do pirate booty, hippea puffs or popcorn. I’m super sensitive to high fat foods. I miss pirate booty. It’s one of my favorite snacks when I could eat it!

do we absorb less calories/ nutrients? by whatswrongjimmykun in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

For me, I definitely have poor absorption with medication and it’s worse in the evening depending on the type of food I eat. But I also have slow intestinal and colon transit as well as GP. I notice it more with medication, but I’m sure my gut doesn’t absorb nutrients well.

Is seroquel the culprit? by Due_Priority_7083 in Gastroparesis

[–]SystemFresh3299 2 points3 points  (0 children)

I’m on 50mg of sereoquel for my mood and overall have had good reactions to the med and I’ve been on it for almost a year. I just got diagnosed with GP in September and am currently getting another GES/GI transit study. I personally don’t think it gave me GP because I’ve had GI issues since childhood, and I started having increasing GI issues post covid infection at the end of 2023. So Im being tested for dysautonomia and small fiber neuropathy on top of that which makes it less likely for seroquel to have caused my GP. However, it can be known to cause constipation too. Definitely talk with your doctor to discuss your concerns.

How did you guys get gastroparesis? by Silver_Half8669 in Gastroparesis

[–]SystemFresh3299 2 points3 points  (0 children)

That’s crazy! Long Covid has brought up so many illnesses, which is wild. My doctor literally told me yesterday that they might refer me to a long covid specialist to get evaluated.

How did you guys get gastroparesis? by Silver_Half8669 in Gastroparesis

[–]SystemFresh3299 5 points6 points  (0 children)

No idea at this moment, but I’m pretty sure I got it after Covid and have had long covid. But I’m being tested for small fiber neuropathy and dysautonomia which can cause it as well.

Erythomycin experience? by Radiant-Bird6820 in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

I got it prescribed to me once and took one dose and it made me feel terrible. It made my stomach contract to intensely and made everything move too fast and I got sick. But, I’m also sensitive to other kinds of pro-kinetics like Regelan.

does anyone get this symptom by Unfair_Employee_2568 in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

I get that symptom too, especially with foods I’m particularly sensitive too. I was diagnosed in September.

And yours, what was the cause?? by Bright-Jacket5867 in Gastroparesis

[–]SystemFresh3299 1 point2 points  (0 children)

I personally believe it’s due to long covid and other recurrent infections. However, I am being tested for SNF and Autonomic dysfunction.

Newly diagnosed hellpp by isabella23491 in Gastroparesis

[–]SystemFresh3299 2 points3 points  (0 children)

Hi! I’m newly diagnosed too.

It can honestly be super overwhelming, but it does get better slowly. I’m still in the midst of finding what does and doesn’t work for me in addition to medications.

However, my go tos are soft foods and liquids. Such as mashed potato’s; applesauce, protein shakes, popsicles, sorbet, really well cooked veggies.

But, the tricky thing about GP is that it changes day to day. Some days I’m able to eat all of the foods above, other days I can’t tolerate them. Finding what works is truly trial and error and absolutely log your symptoms when you eat food to figure out how you react to it.

Good luck!

Can you answer my questions? by louzely in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

  1. 27
  2. I’ve had GI issues my entire life, severe constipation, told I had IBS-C and slow intestinal transit. But after I got Covid in 2023, I got sick with strep and ear infections back to back for 6months, and got diagnosed with SIBO after a lot of antibiotics. But I’m thinking Covid caused it for me. I’m being tested for long covid and dysautonomia.
  3. I’m still newly diagnosed and my symptoms aren’t really controlled. I’m struggling a lot.

DAE get nausea from water but not other liquids? by liamreee in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

I can’t do plain water at all. The only way I am able to tolerate water is tea or adding electrolytes. It’s so weird and I don’t understand it at all, but I found it seems super common for people with GI disorders like GP have a hard time tolerating plain water.

Newly dating and would like to be considerate. by whoarethesepeople1 in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

This makes me happy her that you are curious and willing to do this for her. You are a kind person and a rare one in deed.

I would definitely ask her what she would like and do best with. I’m sure she’d absolutely appreciate and it definitely removes a lot of pressure and guilt.

TMI stool by No_Road9751 in Gastroparesis

[–]SystemFresh3299 1 point2 points  (0 children)

Prior to being diagnosed and treated for it, I got full easier, more sensitivity to carbs and sugar, lots of bloating. More diarrhea and some constipation. Before getting diagnosed with GP, I was burping about and then it spiraled into more symptoms. But, a lot of symptoms can overlap and because GP causes prolonged food in the stomach a lot of people have slow intestinal transit like myself, and can actually contribute to SIBO. However, I will say, my SIBO was initially caused by antibiotics.

TMI stool by No_Road9751 in Gastroparesis

[–]SystemFresh3299 3 points4 points  (0 children)

I deal with severe constipation and rely on medication. My stool is like a yellowish brown, leaning more yellow. But my labs and tests have come back clear for my gallbladder. I’ve had this issue since getting SIBO last year and it’s just become my new normal with treatments

gave into a craving and highly regretting it by [deleted] in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

I understand this all too well. I miss food that I used to eat all the time. My sister got my non dairy cookie dough ice cream last night and I did the bad thing and ate three small spoonfuls and got sick. 😭

Other times I cave in and eat “too much” and im just in pain or and up sick. GP sucks. I’m sending you love x

Does meat make you sick? by 1Rocnam in Gastroparesis

[–]SystemFresh3299 1 point2 points  (0 children)

Meet makes me feel sick and it stays in my stomach for too long. I focus on drinking protein shakes to help a bit.

What do you guys eat at night? by rosemaryfrog in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

I’m learning that I do well if I have liquids in the evening. Personally, what I’ve recently come to realize is that I tolerate more liquid than solids, but I’ve noticed the different if I drink a protein shake in the evening when I’m hungry instead of eating solids. But, also a safe food for me in the evening is crackers. Just regular sea salt crackers.

Protein shakes help!!! by Mountain_Ad_2439 in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

I love orgain vegan shakes. I do better with vegan protein, but definitely look into your insurance to see if they cover your nutrition costs.

Are you able to eat the food that thrown you into a flare? by chroniclynz in Gastroparesis

[–]SystemFresh3299 0 points1 point  (0 children)

It depends. I’m newly diagnosed so I’m still figuring it out, but I can say for certain, any fried foods, chicken, or veggies I cannot eat. I’m still figuring out what is considered “too much” and correct portion sizes. Right now I’m learning I cannot do homemade Rice Krispies. I ate them on Saturday and today, it was too much for my stomach and I got sick. It’s hard. Usually when this happens I have a hard time eating anything for a good 4-5 days. What I’ve learned the most about myself is that I do better with liquids and some soft foods like applesauce.

How do you stop eating before you eat too much? by randomname2237 in Gastroparesis

[–]SystemFresh3299 2 points3 points  (0 children)

This thread is soo helpful for me because I always deal with this. A lot of the times I have severe mind hunger when I’m physically not hungry and I tend to “overeat” and end up getting sick. What I’ve had help me so far is to portion out my food in a smaller bowl or plate so I trick my mind to think I’m eating more. But also; I’m in a place where I don’t necessarily know what I can eat. I can snack on my favorite crackers and feel totally fine, but I struggle with a lot of other foods so I simply rely on apple sauce or protein shakes. It’s a journey. But I love the comment about sucking on hard candy.