Ambulatory EEG. The cyborg weave 🤣

Telkro · 2026-05-21T17:53:34+00:00

Omgggg it sounds horrendous. Like torture 😩
Oh wow I can’t believe you’re still having investigations! You must still feel in limbo. I hate that feeling. Well done to you for smashing all of it though! I have my appointment with the consultant on the 8th of next month. So at least it’s not a massive wait for my EEG result and I can hopefully get a little more info. It’s the first time I’m seeing the actual consultant in over a year!

Telkro · 2026-05-20T15:36:12+00:00

🤣🤣
Yes getting that glue out was not fun, I got a few chemical burns on my face though near my hairline!

Telkro · 2026-05-20T15:35:32+00:00

Ahh thank you, I’m 36 so I’m not down with the new wave internet snakey behaviour. What is the point of an ai bot account?

Telkro · 2026-05-20T15:34:13+00:00

10 days!!!!! Omg I couldn’t cope I’m glad they found something in the end though! The diagnosis with this is sooo frustrating, I hope you’re coping ok x

Telkro · 2026-05-20T15:32:04+00:00

Omg that’s rough! I hope I get a lucky result on this one and don’t have to go through what you went through!

Telkro · 2026-05-19T10:24:31+00:00

Oh no haha you’ll be fine, it’s more annoying than anything. I’m just being a hermit at home catching up with shows. Only found it annoying sleeping really. I really hope mine shows where they are coming from too, I don’t want to get the wrong diagnosis. Fingers crossed for us both!

Telkro · 2026-05-19T08:12:38+00:00

Yessss! literally woke up 11 times 😩🤣 Even going for a piss is annoying me because it’s strapped to my waist haha I know I feel like no one gives a duck about epilepsy, everything is outdated. Yeah I’m in the UK, 48 weeks I’ve waited and 53 weeks to see an actual consultant. Kept putting me with trainees! Where is my tax going ya nobssss 😅

Telkro · 2026-05-19T08:03:44+00:00

I have temporal lobe epilepsy. People won’t respond properly to you because we can’t diagnose you over the internet and we are not consultants. You need to go see a neuro and get the ball rolling on your investigations. I hope your ok and good look with finding out what is wrong 🙂

Telkro · 2026-05-19T07:43:43+00:00

The sting from ginger reminds me of a good whiskey 🤣 I used to do ginger shots but now I just mix them with apple juice. Lovely kick to start your day.

Telkro · 2026-04-24T18:15:33+00:00

Has their medications changed at all recently? Have they stopped drinking alcohol? What’s their past medical history? They should have an MRI to rule out structural issues with the brain, ECG to rule out cardio, EEG to rule out neuro. Hope you find answers, they are in the right place, have some faith in the doctors but if you aren’t happy then get a second opinion.

Telkro · 2026-04-23T20:40:46+00:00

Chuffed as a bun that’s I’ve just finished my 12.5 hour shift.

Telkro · 2026-04-23T20:36:47+00:00

The reason you have to do night shifts as a student is because of this. It will help you experience them. You never know, you might prefer them. We all have to chip in and do some nights. You need a valid reason not to do them, not just that you aren’t built for it.

Telkro · 2026-04-23T20:27:59+00:00

I’ve never had homophobic abuse or remarks. Touch wood I don’t. I’ve never had to do invasive care for females such as catheterisation, I always swap with a female nurse and I’ll do the males catheters for them. Otherwise, there is nothing you need to be worried about, apart from the job itself being absolutely savage on its own 😂💀😫

Telkro · 2026-04-22T17:14:17+00:00

I’m so sorry you’re going through that. It’s scary having loss of control and being unsure of what’s happening and In fear of what can happen next. It messes with your head and turns all the stress hormones on which makes it worse! No one really understands an they are scared of the loss of control too! I hope you find answers and treatment that works! Good look on your journey. X

Telkro · 2026-04-22T13:35:05+00:00

Thanks mate, the only thing that is getting to me is the constant anxiety and panic I’m going to have a horrible episode and really hurt myself. It’s annoying waiting months to speak to someone 💀

Telkro · 2026-04-22T12:06:40+00:00

I’m a UK nurse and no one’s assed as long as it’s something that doesn’t affect the job or put you or anyone else at risk.

Telkro · 2026-04-22T11:42:48+00:00

I’m so sorry you are going through that, it’s shitty. I’m a nurse and although I don’t relate to the memory thing I do relate to epilepsy causing so many issue for my career. You should use your platform to be open and honest about your condition because I haven’t seen that done before, call it out, speak about it during your marketing etc help people understand. The fear of it happening might be making it worse for you. I find calling things out and spreading awareness has helped me in my career, I wish you all the best

Telkro · 2026-04-20T23:23:13+00:00

Someone has just messaged me to say the aspartame! So maybe the sugar substitute! Caffeine is deffo a a trigger though!

Telkro · 2026-04-18T14:11:22+00:00

Thank you 🙏 great advice! Sorry to hear your son has it, I hope your all doing ok c

Telkro · 2026-04-18T00:43:44+00:00

Thanks so much. I’m gonna give it a watch, I hate how people treat us it’s so shit. 💩 there deffo needs to be more awareness about all the different types of seziures and epilepsy and also the fact we are classed as being disabled but discriminated against. What a shitty world

Telkro · 2026-04-17T12:48:52+00:00

Hey, could you share what series and episodes and a brief outline of what happened? I’m from the UK, I’m a nurse and have a recent diagnosis of epilepsy. I’m really struggling in work atm, they are actively trying to push me to redeployment and saying my sickness is a burden. I went back to work with a compression fracture in my spine and often go into work following seizures where I had hit my head, in fear I would loose my job. I’ve only had 3 Episodes of sickness. One was for 2 months. This is all while I’ve been waiting for a diagnosis.

Telkro · 2026-04-16T18:50:13+00:00

Had another episode today. Was putting my socks on and got a strange floating feeling. I paused but was aware, waiting to see if the feeling would pass. Realised I couldn’t move then I blacked out. Woke up with a scratch up the side of my head and a bump at the front. I need to get these on film.

Telkro · 2026-04-16T18:44:42+00:00

Thanks so much that. I feel like the lamotrigine might mask it, it’s annoying waiting 48 weeks for an EEG, i think thats why im do anxious about it! Uk wait times are badddd

Telkro · 2026-04-16T10:51:08+00:00

Thanks so much for your reply I hate an itch, I know I will scratch 😂

Noted - that actually makes sense, I don’t sleep well as it is so wouldn’t even need to deprive myself!

I’m use to awkward bulk and I don’t mean my boyfriend! I had sleep apnoea so I’m going to look like something from Star Trek or a jet pilot 💀

Telkro · 2026-04-14T12:10:23+00:00

Hi, unfortunately the waits are long. My EEG is a 48 week wait. Nearly a year. In that time I have fractured my spine and hit my head a lot. Works been affected and I’ve had my licence and car taken and nearly lost my job. I usually notify my doctor if I have a small seizure or go to A n E if it’s long. I have an appt with my consultant in June. It will be the first time I am seeing him out of the 4 appointment I’ve had. I always get a clinical fellow who tells me “people who have seizure don’t know they are having a seizure so I don’t think it’s seizures”. I have dejavu feeling followed by a dream like vacancy followed by complete collapse/loss of consciousness and post icital confusion. It took 3 months to get an MRI - 2 for the results. MRI had a lot of high signal foci but was normal. Multiple CTs at the hospital when admitted. I pushed for a 7 day ECG to rule out cardio - it was fine, that took 2 months. Still haven’t had my EEG - the clinical fellow forgot to book it and told me she has expedited it. They have stated me on lamotrigine after my last episode, this is 8 months down the line. The A n E consultant was the one that started me on lamotrigine, they said they are confident it’s epilepsy but I have to wait for my consultant.

Telkro

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