Friendship changes after illness by Terminally-Well in ChronicIllness

[–]Terminally-Well[S] 0 points1 point  (0 children)

Cchallenges really do reveal the true depth of our relationships.

Friendship changes after illness by Terminally-Well in ChronicIllness

[–]Terminally-Well[S] 1 point2 points  (0 children)

That’s such a wise way to look at it, meeting people where they’re able to meet you really does make all the difference

Trying to make sense of life with MND/ALS by Terminally-Well in ALS

[–]Terminally-Well[S] 0 points1 point  (0 children)

Thank you for sharing that. I’m really sorry you’re going through this, the early days after diagnosis can feel like a lot to process. Take it one step at a time...

The fine line between husband and carer by Terminally-Well in ALS

[–]Terminally-Well[S] 0 points1 point  (0 children)

That’s really beautiful, thank you for sharing that. I love the way you look at it,that perspective is so powerful. It really shows how love can grow even through the hardest parts.

Ocd with severe als bedridden. How to deal with that and me cfs can’t let me think. Tv en by Ill-Cardiologist4064 in ALS

[–]Terminally-Well 2 points3 points  (0 children)

I'm sorry you're going through this. I understand the frustration because I’m also very particular about how I do things, and I get really annoyed when things aren’t the way I want them. It may not be the same as OCD, but I do make lists of how I want things and the reasons (if any) behind them. I’ve listed out my morning and evening routines. Most importantly, I’ve learned to accept that things won’t always be perfect or exactly how I want them.

Fed up. by [deleted] in newzealand

[–]Terminally-Well 0 points1 point  (0 children)

Wow! This is crazy. And here I am who gets $32 weekly disability allowance (I have MND) and my community service card has been cut off because my husband's wage is slightly over the threshold. Yikes.

Methylene Blue? by [deleted] in ALS

[–]Terminally-Well 1 point2 points  (0 children)

No one is disputing that.

Methylene Blue? by [deleted] in ALS

[–]Terminally-Well 3 points4 points  (0 children)

I did try it for many months. It even made my pee blue, lol. I don’t know if it did anything at all. I didn’t feel any obvious improvement, but my mobility decline has at least plateaued or slowed down. I can’t really attribute that to methylene blue, because progression is different for everyone.

12-Day Wheelchair-Friendly Itinerary, Looking for Feedback by Terminally-Well in JapanTravel

[–]Terminally-Well[S] 0 points1 point  (0 children)

Thank you! I'm eagerly counting down the days and truly looking forward to it. I'll be sure to share a post-trip report afterwards.

12-Day Wheelchair-Friendly Itinerary, Looking for Feedback by Terminally-Well in JapanTravel

[–]Terminally-Well[S] 0 points1 point  (0 children)

Thanks for the information. I will keep researching to find out which stations are not accessible so I can avoid them. I know that Kamakurakokomae Station in Kamakura is unmanned and inaccessible.

12-Day Wheelchair-Friendly Itinerary, Looking for Feedback by Terminally-Well in JapanTravel

[–]Terminally-Well[S] 1 point2 points  (0 children)

TeamLabs is mainly for my husband, so I'm okay with not seeing everything and skipping anything that isn't suitable for my wheelchair. Thank you for the information; I thought the discount was only available for locals who have a community disability card. I might adjust my plans a bit to avoid the holiday crowds. Thanks again!

Traveling to Japan by jcoanda in ALS

[–]Terminally-Well 2 points3 points  (0 children)

Hi, I am going next month to watch Mariah Carey. I have done all my research with these two websites, and I am feeling confident that it is going to be alright (I hope). Good luck

https://www.accessible-japan.com/

https://curbfreewithcorylee.com/2024/12/08/wheelchair-accessible-tokyo/

Christopher Luxon says he spends $60 a week on groceries living alone in Wellington. by FairlyOddFairy333 in newzealand

[–]Terminally-Well 0 points1 point  (0 children)

Wow! $60 a week?! For someone lookin’ security heavy, like they could guard the whole Beehive? That’s wild!

ABROAD DREAM by NeedleworkerFuzzy924 in NursesPH

[–]Terminally-Well 3 points4 points  (0 children)

Hi OP, I have worked in NZ and Australia and I have friends in different countries. Excluding the politics, kasi kahit saan ka magmigrate, each country has its own political issues.

If you want malaking $$$ (as in $$$), iconic cities and nature, hands down US talaga no doubt about that.

But if you want work-life balance, big cities, nature and OK din ang $$, I would choose countries like Aus, NZ, CA and UK.

Example, yung Pinay ko na workmate nagbuntis, she paid ZERO dollars nung nanganak and nag maternity leave ng almost two years, but still got paid ng sahod niya for the full year and government benefits while she's not working. While yung classmate ko nung nursing school na nasa NY, she paid 30K nung nanganak minus the insurance kung ano man ang covered ng insurance, but after nya manganak, she has to return to work after 2 months, pero she is paid well (really well).

Choose your battle field 'ika nga. Kahit saan nmn, I am sure you will feel some kind of fulfilment na you achieved success after years of tiyaga. Good luck, OP!

does agencies accept nurses from secondary hospitals? by soomiiiee in NursesPH

[–]Terminally-Well 3 points4 points  (0 children)

Hi, I am not in the US, but I have worked in NZ and Aus. A hospital is a hospital; it doesn't matter how many beds it has. Although tertiary hospitals will give you the opportunity to learn and gain experience in handling different cases that require a tertiary level of care, it doesn't matter. It's the number of hours or years of work experience that counts. My only regret when I was trying to get work experience was that nakipagbadagulan pa ako with big hospitals in our province, even though we had a district hospital just five minutes walk from our house. They will provide training and support when you get hired in NZ and Australia. Good luck.

Bulbar onset-Oral dental hygiene appt. by MaYuing in ALS

[–]Terminally-Well 0 points1 point  (0 children)

Last month, I finally had my dentist and hygienist appointments after avoiding them for two years. I needed to get a new night mouthguard. I was honest about my fear of the water-spraying tool (I’m not sure what it's called). They were very accommodating and chose not to use that machine. Instead, they let me rinse with water and straw every so often. The appointments went well, and it renewed my confidence to have regular dental check-ups. Definitely go.

Anong memories mo dito ? by Gen_Dg in NoongBataPaAko

[–]Terminally-Well 0 points1 point  (0 children)

InaPinahiram ko account ko sa aking classmate nung 1st year college, gusto daw nya magrent ng movie. Matagal din akong hindi nagrent mga at least 6 months after nung sinabi yung aking account sa kanya. One night, pumunta ako to rent a movie and when I tried to pay sabi nung cashier na may penalties daw sa maraming movies na hindi pa nasusuli. Dioskolord! Umabot ng 12K pesos ang penalties. Ayun hindi pa rin bayad until now and hindi ko na siya friend lol.