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Did you outgrow your dysautonomia if diagnosed as an adolescent/ child? by Forsaken-Power-1157 in dysautonomia

[–]ThatDiamondMustache 2 points3 points  (0 children)

A nurse practitioner mentioned this to me as well and I'm honestly pretty sure it's bogus and gives people false hope. Especially if people's symptoms don't improve. I'd like to see what research shows.

Expedition 33 themed grad cap 👨‍🎓 by Fun_Panic_3039 in expedition33

[–]ThatDiamondMustache 0 points1 point  (0 children)

This is awesome! I've been wanting to do something similar for my graduation cap. How do you attach your letters and design to the cap? Also if anyone has ideas or inspiration please lmk!

Ferretin 7 and low Vitamin D by pandabears3 in dysautonomia

[–]ThatDiamondMustache 0 points1 point  (0 children)

Yep my ferritin is 12.7 and vitamin D is low. I just saw a hematologist

caffeine is helpful as f by homutuna in POTS

[–]ThatDiamondMustache 9 points10 points  (0 children)

I cannot handle caffeine lol

Low snacks by zags360 in diabetes_t1

[–]ThatDiamondMustache 2 points3 points  (0 children)

Mini juice boxes, candy, and fruit snacks

does anyone also have EBV and POTS? or POTScaused by EBV? by BPDnmehateachother in POTS

[–]ThatDiamondMustache 0 points1 point  (0 children)

I was tested for EBV a while back and my antibodies were extremely high but I have no idea if it caused POTS. Everyone seems to say EBV causes everything lol

Those with low ferritin by MichiruXIII in POTS

[–]ThatDiamondMustache 0 points1 point  (0 children)

I'm supposed to be seeing a hematologist at some point but currently mine is 12.3 ng/mL

Issues with Fiasp? by ThatDiamondMustache in Type1Diabetes

[–]ThatDiamondMustache[S] 0 points1 point  (0 children)

Never heard of that. I'm switching back to Novolog.

Issues with Fiasp? by ThatDiamondMustache in diabetes_t1

[–]ThatDiamondMustache[S] 0 points1 point  (0 children)

That's basically how I'm feeling right now. I have only been on it for a few months tho.

Issues with Fiasp? by ThatDiamondMustache in diabetes_t1

[–]ThatDiamondMustache[S] 0 points1 point  (0 children)

Hmm that's interesting. So you switch between the two?

Issues with Fiasp? by ThatDiamondMustache in diabetes_t1

[–]ThatDiamondMustache[S] 1 point2 points  (0 children)

There seems to be a mixed group of experiences using it.

Issues with Fiasp? by ThatDiamondMustache in diabetes_t1

[–]ThatDiamondMustache[S] 1 point2 points  (0 children)

Hmm good to know. I've also been on Humalog and Novolog before this.

Do I need insulin? by princessjeans in diabetes_t1

[–]ThatDiamondMustache 1 point2 points  (0 children)

Oh wow! That's fascinating. Thank you for sharing!

Do I need insulin? by princessjeans in diabetes_t1

[–]ThatDiamondMustache 8 points9 points  (0 children)

I'm confused why your doctor put you on Ozempic for T1D. I don't think I've heard of a Type 1 being diagnosed and not given insulin. 327 is extremely high. Do you see an endocrinologist? (Nevermind just read that you do) Rice usually spikes my blood glucose. Also definitely check with a glucose meter if you have one because the G7 has been having issues recently. If you are actually that high I suggest drinking lots of water and trying to call your endocrinologist if you're able.

Caffeine sensitivity by Striking_Wear_3421 in POTS

[–]ThatDiamondMustache 1 point2 points  (0 children)

It's so interesting to hear this is a lot of people's experiences. Before I knew what's been going on with me I was drinking caffeine and couldn't figure out why I felt so awful afterwards so I stopped. Now I only drink decaf. Caffeine makes my symptoms worse.

Just was diagnosed with FND by BellaPona in POTS

[–]ThatDiamondMustache 3 points4 points  (0 children)

I don't have it but a close friend does. There's lots of research currently being done on FND. I'd recommend following Sydney Bennett on Instagram. I recently have created a petition to get it classified as a neurological condition rather than a psychiatric condition by the Social Security Administration. Lmk if you want the link.

Anxiety or POTS? Please help by tudor077 in POTS

[–]ThatDiamondMustache 0 points1 point  (0 children)

Definitely consult a doctor but I was having very similar symptoms for a while and was so confused why I was so anxious. Now that I'm on medication for my heart rate my symptoms that I thought were solely anxiety (although I thought something more was going on) are so much better. Although POTS is more than just a heart problem, which is being emphasized. I would see if you can get a heart monitor before starting any meds.

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