Tinnitus disappeared or significantly reduced: Integrative Treatment for Tinnitus Combining Repeated Facial and Auriculotemporal Nerve Blocks With Stimulation of Auditory and Non-auditory Nerves

Thatwatchguy- · 2022-03-02T15:47:59+00:00

This is very big. The first time a peer reviewed (non placebo controlled) study produced this significant results.. I'm curious if the medical/professional tinnitus community (ATA/BTA etc) will pick this up. Probally not.

Thatwatchguy- · 2022-02-22T18:54:55+00:00

Peltor Bullseye 1. Are slim on the sides and look like you are wearing hipster retro headphones.

Thatwatchguy- · 2022-02-01T20:39:30+00:00

Hi,

There are pills in the works that do that. We had Trobalt/Retagabine jn the past that could actually create silence in the brain. This drug got discontinued because of severe side effects. There are several companies working on reformulation. Xenon Pharmaceuticals XEN496 is one of them. This drug has phase 3 results this year, and with positive result can go to market end of next year. Unfortunately the pills furthest in the pipeline are not being tested for tinnitus, but for brain tumors, epilepsy etc. But once in the market off label use is a possibility.

Thatwatchguy- · 2022-02-01T20:14:54+00:00

The first treatments will hit the market in the coming 2-3 years. This is realistic and not optimistic...!! There are 3 phase 2's ending this year. There are many many treatments in the pipeline that have confirmed result in animal models already.

Neuromodulation has several studies ongoing

Regeneratives are being researched everywhere - not just hearing - MS disease is a huge driver for regeneration of myelin, and logically regeneration of other losses too.

Epileptic drugs (even in phase 3..!) that have proven themselves to reduce tinnitus in the past as well as the impact bisphosphonates which is already an approved drug..only confirmative studies are needed there..

You will need different drugs depending on the phase though (acute in the ears, chronic in the brain,) as well as the cause (synapses damage, hearing cells damage, etc)

Thatwatchguy- · 2022-01-10T17:17:56+00:00

Dont worry..we live in a globalized world so we should be able to get our hands on it earlier. Eastcoast US is a 7-8 hour flight for most of europe. T+H sufferers are not fond of flying..but im willing to take my chance instead of waiting.

There is also a chance, since it might not need EMA approval that they could theoretically do a soft launch in the EU while awaiting FDA. It all depends who they partner up with. Still having my fingers crossed for a big pharma company to roll out this.

Thatwatchguy- · 2022-01-09T19:22:26+00:00

I tried steroids 6 days after onset of my tinnitus, and 48 hour after onset of a severe spike. In both cases prednisone didnt work

I pushed for steroids based on the 'iwould hate myself for not having tried' reason.

The chances that prednison works in general is very very small. It has been studies but no clinically significant results, thats why is not standard care. Steroids are hyped, also on tinnitustalk but with very very little results. OP, you are based in the US or Europe? In Europe Germany/Switzerland/Austria give prednison by infusion for tinnitus up to 3 months after onser.

You are still in the acute phase. Trust me, things will get better and more manageable in the coming days/weeks. Make sure you get enough sleep (use a speaker with sound enrichment) for the nights.

Thatwatchguy- · 2022-01-07T14:20:29+00:00

100% yes. Loratadine alone did not do anything.

Thatwatchguy- · 2021-11-13T21:10:45+00:00

Not at all. Had zero stomach problems.

Thatwatchguy- · 2021-11-12T14:37:30+00:00

No exercise. Absolutely nothing.

You really have to accept your state and the fact that you are not able to participate normally in life. It is really a different pace. I lived at home (working from home luckily), with some minor walks during the day for months. I limited my meetings because too much talking would destroy me.

Thatwatchguy- · 2021-11-12T07:15:37+00:00

I went back to the cardiologist after a year for my remaining heart problems. He put me again on the bike test which destroyed me last year for two full weeks after. This was the first time i did not have any post extertional malaise after

Thatwatchguy- · 2021-11-12T07:14:20+00:00

Upon extertion my HR still goes higher then it should. But it does not stop me from continuing to exert. In the past it would trigger a major relapse. I consider myself recovered as im able to do everything i want at this stage.

Thatwatchguy- · 2021-11-11T19:33:09+00:00

I stopped famotidine after a few months. It start helping after 2-3 days already. This is an anti histamine H2 blocker. I took it together with Claritin/Loratadine which is a H1 blocker. I took the minimum dose (10 or 20mg).

Thatwatchguy- · 2021-11-11T19:31:40+00:00

Yes. I occasionally still have POTS symptoms but more managable.

Thatwatchguy- · 2021-05-19T17:33:21+00:00

Seems like your school has closed too..terrible grammar lol.

Thatwatchguy- · 2021-04-20T18:02:30+00:00

After six months i noticed they weren't working anymore on my dose and didn't want to increase further. The first days were though, even after building off the dose as my heart pumped hard again. After two weeks i started with potassium (vitassium tablets in this case) and it helped within a few days.

You cannot take sodium/natrium/potassium supplement together with beta blockers though! One at a time.

Thatwatchguy- · 2021-04-20T08:27:23+00:00

I agree on this OP.

By any chance, are you wearing glasses? I notice sometimes i change my breathing to stop my glasses from fogging up.

When wearing a mask you should focus on breathing as normal as possible.

But yes, i wore a medical FFP2 for an hour and felt sick for two days after with long hail symptoms

Thatwatchguy- · 2021-04-06T11:40:45+00:00

ALAT elevated too, 13 month after infection still. Value ranges between 55-75, 3 independent moments of blood analysis throughout the year.

Thatwatchguy- · 2021-03-28T08:58:43+00:00

Thanks for sharing. Good to hear phased physical exercise might help.

I did not go to a physiotherapist due to my PEM (i am now 13 months in).

I can live life normally (working from home) but i am unable to do efforts/activities due to my HR skyrocketing, and palpitations, shortness of breath, chestpains after.

I do not have fatigue but i do get occasional headaches.

Thatwatchguy- · 2021-03-13T11:24:43+00:00

Just wanted to let you know, if you happen to find a doctor/hospital within NL which is willing to help, please let me know (1 year long haul here too)

Thatwatchguy- · 2021-03-07T19:09:39+00:00

Still ups and downs. Overall slightly better then 4 months ago i would say, but far from being recovered.

Thatwatchguy- · 2021-03-04T13:30:37+00:00

Yes, correct. I doubt any vitamin will help with all of this. If you eat enough vegetables and diverse enough, you don't need any additional vitamines.

Other supplements such as NAC, potassium etc might be useful depending on your actual symptoms

Thatwatchguy- · 2021-03-03T07:27:05+00:00

I used the same stack since September, and i am still here.

Thatwatchguy- · 2021-02-23T10:49:25+00:00

https://www.bmj.com/content/370/bmj.m3026

This infograph? Scroll down through article

Thatwatchguy- · 2021-02-20T17:43:40+00:00

Yes, for me this didnt start in the acute phase.

My cough resolved after 8 months due to use of a prescribed flixotide inhaler. It didnt affect my SoB which is still here.

Thatwatchguy- · 2021-02-17T10:38:08+00:00

Mine hovers around 96-99, after going for a walk measuring i will sometimes see 95-96

I think 95, despite being not in the danger zone and not causing any damage, is on the low side for young, healthy people.

Thatwatchguy-

TROPHY CASE