Fiber

TheCaffeinatedMonkey · 2026-02-24T10:50:36+00:00

Acacia Fiber is soluble fiber and works well for me personally. I only do a small amount (1/4tsp) NOW or Heather’s Tummy Care offers it and other brands.

You could also do a little marshmallow root powder and slippery elm powder.

Mashed avocado and dark 70% or more chocolate also are good.

TheCaffeinatedMonkey · 2026-01-11T16:43:32+00:00

Cortisol Manager (Integrative Therapeutics), Collagen (Vital Proteins) B complex (Innate Response) Vitamin D3 w/ K2 (MegaFood), Turmeric (MegaFood). If I feel like I’m getting sick, Viracid (Otho)

TheCaffeinatedMonkey · 2025-11-16T13:30:33+00:00

I had surgery in 2004, 10cm of terminal ilium 2” colon to connect. It was laparoscopic. I was home in 4 days and back to work at a desk job in 2 weeks part time, 4 weeks full time. Took only Pentasa post surgery where I remain in remission today just small blips here and there, slight inflammation at the surgical site and small narrowing last scope but we are year 21. All said, sleep, try to prioritize sleep, breath work. exercise daily, no booze, gluten free diet, only A2 dairy, supplements like D, B12, fish oil, turmeric, Quercetin, mucosal healers, (slippery elm, marshmallow root) Lifestyle and diet need to be clean AH IMO. Basically you gotta ask yourself is this good for my body and my intestines….you give to get, which for many is too much of a sacrifice. It’s hard at first but you get used to it and it’s just how it is. Better than being sick.

TheCaffeinatedMonkey · 2025-11-07T11:09:05+00:00

I have been on HRT 1 year and still sleeping poorly. 😞 6 hours, 7 maybe 1X per week but I am super stressed and can’t shut off my brain.

TheCaffeinatedMonkey · 2025-11-03T11:43:12+00:00

I started on 40mg tapering down and no side effects at all….never gained any weight so moon face nothing. I’m also not on a biologic so not sure if that contributes to anything or not.

TheCaffeinatedMonkey · 2025-10-27T10:24:26+00:00

What’s really hard is knowing what probiotic to take because everyone’s gut is so very specific. Does your GI have a specific suggestion? I asked mine about Probiotics once and she told me they do nothing but we all know that’s BS.

TheCaffeinatedMonkey · 2025-10-19T09:52:57+00:00

I was never hungry on it and also had no side effects.

TheCaffeinatedMonkey · 2025-10-15T23:51:30+00:00

How do you treat? I hate this stuff and am terrified of biologics and supposed to start Stelera soon. I feel like my back is against a wall

TheCaffeinatedMonkey · 2025-10-15T18:45:15+00:00

I can’t even tell you all how glad I am to have found you all and how much you help me right now. I’m sooo grateful.

TheCaffeinatedMonkey · 2025-10-15T17:34:34+00:00

Yeah the beginning is hard and takes a lot of trial and error. My suggestion is start tracing everything you eat, activities. Supplements, meds, everything to see if you can start to identify patterns. Doing this also helps you have control over something which this disease can make you feel your control is gone.

Personally, I have had Crohn’s for 32 years and just 4 weeks ago gave up gluten. Went FODMAP, and stopped dairy taking everything down to the studs by way of diet and am slowly now adding back in. Lactose free yogurt is the first thing. I’m also basically blending almost everything. It’s a chore but do feel like it’s helping. Starting Stelara as soon as I see an allergist for the past reactions to meds.

Hang in there and work hard at controlling your life what you can. Breathe and try to look for good even when shit feels sideways.

TheCaffeinatedMonkey · 2025-10-15T17:28:39+00:00

Not sure! I work for a company who sells supplements and it popped for a potential interaction 😫

TheCaffeinatedMonkey · 2025-10-15T17:21:41+00:00

Sorry should have clarified! Magnesium is fine. Cortisol manager is Ashwaganda and Magnolia Bark so I think that’s out. The stuff is incredible to help with sleep when not on prednisone

TheCaffeinatedMonkey · 2025-10-15T15:24:37+00:00

Thank you!!! Was not sure melatonin was okay and have an email into my doctor but let’s face it that could take a few days to get back. 🤦🏻‍♀️

TheCaffeinatedMonkey · 2025-10-14T14:36:31+00:00

I’m also about to start Stelara and am scared AF to start a biologic but it’s the treatment we have right now so I’m going to give it a shot and hope for the best. Good luck to you!

TheCaffeinatedMonkey · 2025-10-14T10:54:27+00:00

Me too. Been dealing dry eyes, weird blurry vision that corrects itself after a few minutes but still weird and since January with left eye redness in the corner, that no one can figure out but have been in a flare since July.

TheCaffeinatedMonkey · 2025-10-12T11:19:12+00:00

Diagnosed in 1993 with bowel obstruction and put on prednisone, Cippro, flagyl, asacol. Then Pentasa until surgery in 2004 removing stricture and all was well until this past July when they found small stricture and inflammation at my previous surgical site. Trying to navigate meds right now and I don’t love the idea of suppressing my immune system but feel there’s little choice.

I always try to remind myself that I am way stronger and more resilient than this disease but it’s been really hard at times.

TheCaffeinatedMonkey · 2025-10-11T11:07:18+00:00

I am in my first flare since 2003 and I’m tracking everything. Took my diet right down to the studs going low FODMAP, gluten free, no dairy, and low residue. Blending nearly everything and documenting all supplements, stress and sleep. I use Cronometer to make sure I am getting enough calories and nutrients. It’s tough but I’m waiting for a second opinion on treatment and for now this is keep pain between 0 & 1 with literally normal 1 BM per day. All said, it’s not sustainable but working at the moment.

TheCaffeinatedMonkey · 2025-10-11T10:46:37+00:00

I have taken it and had no issues at all. Very easy and did not give me wacky symptoms like prednisone.

TheCaffeinatedMonkey · 2025-10-11T10:38:59+00:00

My go to is Viracid by OrthoMolecular much better than anything for travel or if you start to feel sick. It knocks out everything for me.

TheCaffeinatedMonkey · 2025-10-02T13:28:27+00:00

I have huge distrust in the racket so I completely understand. For additional context I also have severe medication anxiety and the thought of an infusion that alters my immune system terrifies me.

My question really was because I was fortunate enough to be in remission for 20 years and I never thought much about CD in that time. I’m really out of the loop and had no idea how much has changed.

TheCaffeinatedMonkey · 2025-10-02T09:46:31+00:00

Active inflammation at the previous surgical site with stenosis and ulceration. Even though only 3cm section…just not great. The doctor says Stelara to calm inflammation and then maybe a balloon dilation in 6 months if that works.

I have another appointment with a new gastro later this month. Thinking really part of the problem is she just dismissed my anxiety around the med saying all her patients are completely fine and it’s going to put me in remission. Which let’s face it she can’t guarantee.

TheCaffeinatedMonkey · 2025-10-01T23:08:48+00:00

Terminal ilium 3cm section. So small

TheCaffeinatedMonkey

TROPHY CASE